Tag Archive for: town meeting

The Best of 2015

best of 2015


 

As 2015 comes to an end, we would like to take a moment to highlight a few of our most popular posts and to thank the people who contributed to the popularity of these posts. We cannot thank the authors enough that have contributed, such as Marie Ennis-O’Connor, Tori Tomalia, Cindy Chmielewski, Dr. Michael Thompson, Edward Leigh, and Deana Hendrickson. Your efforts to Patient Empowerment Network are greatly appreciated.

best of people

From right to left: Edward Leigh, Tori Tomalia, Cindy Chmielewski, Marie Ennis-O’Connor, and Dr. Michael Thompson

PEN would also like to thank our sponsor AstraZeneca and our partner LUNGevity for their support in creating these posts.logos


 

Most Popular Posts of 2015

1.Virtual Patient Communities

Virtual patient communities offer support and information to cancer patients.

2. The Stigma of Lung Cancer

Tori Tomalia, a lung cancer patient explains the stigma of lung cancer, and that it doesn’t happen to only those who smoke.

3. Can Digital Wearables Help in Clinical Trials?

When applied to clinical trials, wearable technology is a potentially powerful research tool to gather clinical data in real-time and provides remote patient monitoring.

4. Clinical Trials 2.0: Reinventing Research For the Social Age

Clinical research is changing. No longer the sole preserve of clinicians and researchers, the Internet and new digital technologies are reinventing the way in which patients take part in the clinical trials process.

5. Cindy Chmielewski Talks About Clinical Trials

Carol Preston talks to myeloma patient Cindy Chmielewski about her role in advocating for clinical trials. Cindy explains how her cancer journey took her to self-advocacy and advocating for others in her community through social media.

6. Why So Few Adults in Clinical Trials

Dr. Michael Thompson discusses with Carol Preston the reasons behind some patients apprehensiveness towards clinical trials.

7. Spotlight on: LUNGevity – The Meaning of Lung Cancer Awareness Month

What can you do in support of Lung Cancer Awareness Month

8. Activating a Community of People Living With Lung Cancer

LVNG With is a community for people living with a lung cancer diagnosis. These people share their story and help inspire others like them.

9. How to Develop a Personal Medical Resume

Edward Leigh, Founder and Director of The Center for Healthcare Communication, shares his tips for creating a “medical résumé” to ensure great healthcare experiences.

10. Connecting to Cancer Patients Online

In the Empowering Lung Cancer Patients Town Meeting, Deana Hendrickson talks about how important it is to connect with other patients and advocates online.


 

Also, be sure to check out

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The Clinical Trial Toolkit is a resource to help you find clinical trials and financial assistance. You can view our Patients Helping Patients Blog for various aspects and perspectives of clinical trials. Also, don’t miss our Videos of patients, caregivers, and healthcare professionals!

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Being Your Own Advocate

Tamara Lobban-Jones, Patient Power Producer and Lung Cancer Community Manager, and Lisa Goldman, a stage 4 non-small cell adenocarcinoma patient discuss why cancer patients need to be their own advocate.

They discuss the need for doctors and patients to communicate in new ways that respect the balance between a doctor’s expertise and patients’ own thoughts and knowledge. With the ever increasing developments in cancer research, it has become harder for oncologists to understand everything about each specialized form of a certain cancer. As Lisa points out, all that patients need to know about is their own cancer, so they can dedicate more time and energy into researching than a doctor may be able to. Being an active participant in your cancer journey is the best way to feel confident in your decision making.

Being Your Own Advocate from Patient Empowerment Network on Vimeo.

Connecting to Cancer Patients Online

Deana Hendrickson talks about how important it is to connect with other lung cancer patients and advocates online. Connecting online to patients with your same disease allows you to make amazing and empowering connections. Check out the whole clip below as Deana explains:

Empowering Lung Cancer Patients Town Meeting from Patient Empowerment Network on Vimeo.

Multiple Myeloma Town Meeting at MD Anderson: Takeaways

 

I’ve just returned from MD Anderson in Houston where I facilitated a Multiple Myeloma (MM) forum put on by the Patient Empowerment Network (PEN). The program was titled “2014: Accelerating Progress in Myeloma and What it Means for You” and attended by 225 MM patients and caregivers plus another 40 folks watching live on-line.

Drs. Robert Orlowski (MD Anderson), Gareth Morgan & Faith Davies (both at the University of Arkansas) clearly explained what MM is (including MGUS and Smoldering) and its symptoms.  Did you know in just the last month, ultra high risk Smoldering MM, which is asymptomatic and treated as “watch & wait” has been reclassified as actual Multiple Myeloma where patients should consider treatment?  These doctors summarized current treatments as well as clinical trials for new drugs and protocols, focusing on new monoclonocal antibodies as well as future patient biology testing enabling more precise treatment recommendations for a given patient.

Later in the day, our panel of doctors was joined by a myeloma nurse practitioner, social worker, and 2 patients who all shared their thoughts on how patients can monitor and plan their treatments while living well with our cancer.  We all have varying degrees of MM symptoms and treatment side effects which need to be managed by our health team, perhaps the most important member being a patient’s caregiver.

In addition to breakout meetings where patients met each other and shared experiences while asking questions, many of which were addressed by the panel, the final hour of the forum was spent answering questions from both the live and on-line audience.  Sample questions included maintenance recommendations after transplants, length of bisphosphonate (aredia or zometa) usage, and the mental issues of testing every 2 months for smoldering without starting treatment. These are difficult questions without precise answers but our doctors and other panelist shared their experiences and advice.

I have no doubt (because many told me afterwards) that this program provided a wonderful education for both myeloma patients and their caregivers.  As a 20-year survivor of MM myself, I am proud to be associated with PEN and help make such a program possible.

(The following is from the editor)

This meeting was the first PEN meeting that was live streamed using Zoom.us technology. I registered for the streaming and watched the Houston meeting from my couch in Charlottesville, Virginia. The audio and video were very clear. The video was so clear that many of the photos below were the result of screen shots that I took while streaming. I loved watching this meeting online. The reason is, that I have been to these meetings and I have talked to the participants. The patients and their families so enjoy the meetings and so enjoy hearing the experts speak and listening to the patient stories and the patient questions. How wonderful that now we have a chance for more patients to benefit from these meetings. Many patients live too far to attend these meetings in person. Many are homebound or too sick to travel. Live streaming the meetings will give those patients a chance to watch the event.

 

Tag Archive for: town meeting

Town Meeting for Myeloma Patients, Caregivers, and Families

A Virtual Town Meeting: Understanding the New World of Myeloma Treatment

Sunday, October 2, 2016
Online via Zoom

Progress in the treatment and understanding of multiple myeloma is leading to real change for patients. It is vital—now more than ever—for patients with myeloma and their care partners to empower themselves to get the best care. Join us on Sunday, October 2, as Patient Power andThe University of Texas MD Anderson Cancer Center host a live, virtual town meeting. Watch online to learn the latest treatment news and advice for living well with multiple myeloma. An expert panel will discuss the latest treatment approvals, emerging therapies and support resources.

Watching online is easy—once you register for the webinar, you’ll receive a link via email to watch the program at the scheduled time. During the town meeting, you’ll have the opportunity to ask our expert panel your questions.

Please join us virtually for this FREE webinar to learn:

  •       The latest in multiple myeloma treatment and research news and what it could mean for you or a loved one
  •       Effective tools for treatment planning and monitoring disease symptoms
  •       Inspiring stories from powerful myeloma patients and their care partners
  •       Strategies for dealing with disease complications and treatment side effects
  •       Advice for living well with multiple myeloma, including support resources for emotional issues

AGENDA

11:00 – 11:15 AM Welcome and Introductions
11:15 – 11:45 AM Understanding Multiple Myeloma and Current Treatment Options
11:45 – 12:15 PM The Latest on Clinical Trials and Emerging Therapies
12:15 – 12:30 PM Break
12:30 – 1:15 PM Managing Symptoms, Side Effects and Strategies for Living a Full Life With Myeloma
1:15 – 1:45 PM Q&A Session

*All times listed are for the Central time zone.

[su_button url=”https://zoom.us/webinar/register/c4e41333c94ab308d746f627e8486654″ target=”blank” style=”soft” background=”#28687c” size=”11″ wide=”yes” center=”yes” radius=”0″]Register to Attend Online[/su_button]

 


GUEST PRESENTERS


[table id=2 /]


HOST


Andrew Schorr

 

Andrew Schorr

Host, Two-Time Cancer Survivor and Patient Advocate

 

 

 


This virtual town meeting is sponsored by the Patient Empowerment Network, which received educational grants from AbbVie Inc. and Takeda Oncology. It is produced by Patient Power in partnership with The University of Texas MD Anderson Cancer Center.

Town Meeting for MPN Patients, Caregivers, and Families

Understanding Myeloproliferative Neoplasms (MPNs)

Empowering Yourself and Your Loved Ones to Get the Best Care

Saturday, October 1, 2016
The University of Texas
MD Anderson Cancer Center
Houston, Texas

 Experts now have a stronger understanding of myeloproliferative neoplasms (MPNs), and it is changing the way care and treatment is approached for patients. New therapies are improving the lives of those living with polycythemia vera (PV), essential thrombocythemia (ET) and myelofibrosis (MF).  On Saturday, October 1st, in Houston, Texas, Patient Power and its partner, The University of Texas MD Anderson Cancer Center, will host a town meeting, featuring MPN experts, clinicians and patient advocates to discuss the latest revelations in MPN research and how you can be empowered to get the best care for you or a loved one.

By attending this town meeting, you will have the opportunity to meet and connect with other patients and care partners living with MPNs and to shape the conversation by participating in this interactive event.  Our hope is that you’ll share your knowledge among your peers to learn and be inspired by those you meet.

Please join us online or in-person for this FREE interactive event to learn:

  •        The latest discoveries and research for MPNs
  •        Evolving MPN therapies and treatment approaches
  •        Advice for seeking a specialist and getting high quality care
  •        Tips for living well with an MPN

AGENDA

9:30 – 10:00 AM Registration | Connecting With Other MPN Patients and Care Partners
10:00 – 11:00 AM Understanding MPNs and Treatment Approaches
11:00  – 11:30 AM Monitoring and Managing MPN Symptoms
11:30- 11:45 AM Meet the Patient Panel
11:45 – 12:30 PM Lunch Provided
12:30 – 1:00 PM Strategies for Managing a Full Life With an MPN
1:00 – 1:30 PM Q&A Session
1:30 – 2:00 PM Breakout Session: Connecting With MPN Experts

*All times listed are for the Central time zone.

[su_button url=”https://www.patientpower.info/event/mpn-houston-2016#form” target=”blank” style=”soft” background=”#28687c” size=”11″ wide=”yes” center=”yes” radius=”0″]Register to Attend In-Person[/su_button]

 

[su_button url=”https://zoom.us/webinar/register/65a864dd9c483f5fcde7dc3c8da9331e” target=”blank” style=”soft” background=”#28687c” size=”11″ wide=”yes” center=”yes” radius=”0″]Register to Attend Online[/su_button]


GUEST PRESENTERS


Srdan Verstovsek, MD, PhD

Srdan Verstovsek, MD, PhD

Chief, Section for Myeloproliferative Neoplasms, Department of Leukemia

The University of Texas MD Anderson Cancer Center

 

 


Prithviraj Bose, MD

Prithviraj Bose, MD

Hematologist

The University of Texas MD Anderson Cancer Center

 

 


Carmelita Escalante

Carmelita Escalante, MD, FACP

Professor and Chair, Department of General Internal Medicine

The University of Texas MD Anderson Cancer Center

 

 


Olatoyosi Odenike, MD

Olatoyosi Odenike, MD

Associate Professor of Medicine

University of Chicago Medical Center

 


Julie Huynh-Lu, PA-C

Physician Assistant, Department of Leukemia

The University of Texas MD Anderson Cancer Center

 


HOST


Andrew Schorr

Andrew Schorr

Host, Two-Time Cancer Survivor and Patient Advocate

 

 

 


ONLINE HOST


Jeff Folloder

Jeff Folloder

Patient Advocate and Host

 

 

 


Location:                

Duncan Building
1155 Pressler St.
Houston, TX 77030

Parking:

Free self-parking in the Pressler Garage located at 1180 Pressler St.  Pressler Garage is connected by a skybridge on floor 4 to Mays Clinic. Attendees should enter the Mays Clinic from the skybridge and follow signs to the event in the Duncan Building (Elevator Q).


This town meeting is sponsored by the Patient Empowerment Network, which received an educational grant from Incyte Corporation. It is produced by Patient Power in partnership with The University of Texas MD Anderson Cancer Center.

Town Meeting for MPN Patients, Caregivers, and Families

Understanding Treatment and Management of Myeloproliferative Neoplasms (MPNs) | New York, NY

A Town Meeting for MPN Patients and Their Loved Ones

Sunday, May 15, 2016
New York, NY
Attend In-Person or Online

Treatment and research for myeloproliferative neoplasms (MPNs) is evolving rapidly, especially in recent years.  New therapies and genetic discoveries are improving the lives of individuals living with polycythemia vera (PV), essential thrombocythemia (ET) and myelofibrosis (MF).  On Sunday, May 15th, in New York, NY, Patient Power and its partner,The Herbert Irving Comprehensive Cancer Center at Columbia University Medical Center, will conduct a town meeting, featuring clinical experts and patient advocates. The panel will discuss topics on how to live well with MPNs, including the latest research, managing symptoms and side effects, and how to access the best care for you or a loved one.

During this interactive event, you will have the opportunity to meet and connect with other patients and care partners.  Our hope is that you’ll share your knowledge among your peers to learn and be inspired by those you meet. Join us in-person or online on May 15 to learn:

  • Strategies for coping with MPN symptoms
  • How research is expanding treatment options
  • Tips for living well with, and beyond, your MPN
  • Advice for navigating your care and coping with the emotional side of a chronic condition

[su_button url=”http://www.patientpower.info/event/mpn-nyc-2016#form” target=”blank” style=”soft” background=”#28687c” size=”11″ wide=”yes” center=”yes” radius=”0″]Register to Attend In-Person[/su_button]

[su_button url=”https://zoom.us/webinar/register/f3093a472c8fa1368c34be5db4a05ad8″ target=”blank” style=”soft” background=”#28687c” size=”11″ wide=”yes” center=”yes” radius=”0″]Register to Attend Online[/su_button]


GUEST PRESENTERS

Mark Heaney

 

Mark Heaney, MD, PhD
Associate Clinical Professor of Medicine
Columbia University Medical Center

 

 


John M
John Mascarenhas, MD
Associate Professor of Medicine Myeloproliferative Disorders Program Tisch Cancer Institute, Division of Hematology/Oncology
Mount Sinai School of Medicine

 

AGENDA

10:30 AM Registration / Check-in Opens
11:00 – 12:00 PM Understanding Treatment Choices for Myeloproliferative Neoplasms
12:00 – 12:15 PM Meet the Patient Panel
12:15 – 12:45 PM Breakout Session: Connecting With Other Patients and Care Partners
12:45 – 1:15 PM Lunch Provided
1:15 – 1:45 PM Managing Symptoms and Treatment Side Effects
1:45 – 2:30 PM Tips and Strategies for Living Well With an MPN
2:30- 3:00 PM Q&A Session

*Times listed are for the Eastern (EDT) time zone


Location:                

Club 101
101 Park Avenue
New York, NY 10178

Getting There:

Club 101 is located on Park Avenue between East 40th and 41st Streets, just south of Grand Central Terminal. The club enjoys close proximity to the Metro North Rail Road and the 4, 5, 6, 7 and Shuttle subway lines at Grand Central.

Parking:

Parking is conveniently available on the lower level through QuikPark (212-661-7493). The garage entrance is on 40th Street between Park and Lexington Avenues.  Please call QuikPark for exact pricing.


This town meeting is sponsored by Incyte Corporation. It is produced by Patient Power in partnership withThe Herbert Irving Comprehensive Cancer Center at Columbia University Medical Center.

Town Meeting for CLL Patients, Caregivers, and Families

Living Well With CLL | New York, NY

A Town Meeting for Patients, Families and Care Partners

Saturday, May 14, 2016
New York, NY
Attend In-Person or Online
 

As rapidly developing research leads to new treatment options and an improved quality of life for people with chronic lymphocytic leukemia (CLL), it’s more vital than ever for patients and their loved ones to stay informed.

Join us, along with our partner, The Herbert Irving Comprehensive Cancer Center at Columbia University Medical Center, on Saturday, May 14th, for a free in-person CLL town meeting for patients and care partners. Learn more about emerging therapies, current treatment options and support resources—straight from leading CLL experts.

During this interactive town meeting, you will have the opportunity to meet and connect with experts, other patients, survivors and care partners touched by CLL to share your knowledge with your peers, learn and become inspired.

Please join us in person for this FREE town meeting to learn:

  • The latest treatment and research news and what it could mean for you or a loved one
  • Effective tools for treatment planning and monitoring CLL
  • Inspiring stories of people living well with CLL
  • Strategies for dealing with CLL complications and treatment side effects
  • Advice for living well with CLL and coping with day-to-day issues

Our expert panel will take your submitted questions, and advocacy groups will be on hand to offer support and to connect you with valuable resources.

[su_button url=”http://www.patientpower.info/event/cll-nyc-2016#form” target=”blank” style=”soft” background=”#28687c” size=”11″ wide=”yes” center=”yes” radius=”0″]Register to Attend In-Person[/su_button]

[su_button url=”https://zoom.us/webinar/register/6cd99dc4be8cab3066858a512be5123a” target=”blank” style=”soft” background=”#28687c” size=”11″ wide=”yes” center=”yes” radius=”0″]Register to Attend Online[/su_button]


GUEST PRESENTERS

Michael Keating

Michael Keating, MB, BS
Professor of Medicine, Department of Leukemia
The University of Texas MD Anderson Cancer Center

 

 


Nicole Lamanna

Nicole Lamanna, MD
Associate Clinical Professor of Medicine
Columbia University Medical Center

 

 


Jennifer Abraham

Jennifer Abraham, Patient Advocate

 

 

 


AGENDA

9:30 AM Registration / Check-in Opens
10:00 – 10:15 AM Understanding CLL and How It Progresses
10:15 – 10:45 AM Update on the Latest Treatment and Research
10:45 – 11:15 AM Monitoring and Treatment Decisions
11:15 – 11:30 AM Meet the Patient Panel
11:30 – 12:00 PM Breakout Session: Connect With Other Patients and Care Partners
12:00 – 12:30 PM Lunch Provided
12:30 – 1:15 PM Living Well With CLL
1:15- 2:00 PM Q&A Session

 

*Times listed are for the Eastern (EDT) time zone.


Location:                

Club 101
101 Park Avenue
New York, NY 10178

Getting There:

Club 101 is located on Park Avenue between East 40th and 41st Streets, just south of Grand Central Terminal. The club enjoys close proximity to the Metro North Rail Road and the 4, 5, 6, 7 and Shuttle subway lines at Grand Central.

Parking:

Parking is conveniently available on the lower level through QuikPark (212-661-7493). The garage entrance is on 40th Street between Park and Lexington Avenues.  Please call QuikPark for exact pricing.


This town meeting is provided by CLL Global Research Foundation, which received support from Gilead Sciences, Inc., Teva Pharmaceutical Industries Ltd and TG Therapeutics, Inc. and the Patient Empowerment Network, which received support from AbbVie Inc. and Genentech Inc. It is produced by Patient Power in partnership with The Herbert Irving Comprehensive Cancer Center at Columbia University Medical Center.

A Virtual Town Meeting for Advanced Prostate Cancer Patients and Their Loved Ones

Understanding Research and Treatment News

Progress into treating and understanding prostate cancer is leading to real change for patients, including those with advanced disease. It is vital—now more than ever—for men with prostate cancer and their care partners to stay informed. Join us on Sunday, April 10, as Patient Power and the Robert H. Lurie Comprehensive Cancer Center of Northwestern University host a live, interactive webinar. Watch online to learn the latest research news and advice for living well with prostate cancer. An expert panel will discuss emerging therapies, current treatment options and support resources.

Watching online is easy—once you register, you’ll receive a link via email to watch the program at the scheduled time. You’ll have the opportunity to ask our expert panel your questions throughout the program. You can submit questions in advance to prostate@patientpower.info

Please join us virtually for this FREE interactive event to learn:

  • The latest in prostate cancer treatment and research news and what it could mean for you or a loved one
  • Effective tools for treatment planning and monitoring disease
  • Inspiring stories from powerful prostate cancer patients and their care partners
  • Strategies for dealing with disease complications and treatment side effects
  • Advice for living well with prostate cancer, including support resources for emotional issues

AGENDA

11:00 – 11:15 AM Welcome and Introductions
11:15 – 12:00 PM Understanding Current and Developing Treatment Options
12:00 – 12:30 PM Managing Symptoms, Side Effects and Communicating With Your Healthcare Team
12:30 – 12:45 PM Break
12:45 – 1:15 PM Advice and Resources for Living Well With Prostate Cancer
1:15 – 1:45 PM Q&A Session

 

*Times listed are for the Central (CDT) time zone.

Town Meeting for Lung Cancer Patients, Caregivers, and Families

Lung Cancer Town Meeting

For Patients and Care Partners

Getting the Right Testing and the Right Treatment at the Right Time

Saturday, September 10, 2016
Robert H. Lurie Comprehensive Cancer Center
Chicago, Illinois

On Saturday, September 10th, in Chicago, Illinois, Patient Power and LUNGevity will hold a free in-person town meeting at Robert H. Lurie Comprehensive Cancer Center of Northwestern University—one of the world’s most respected centers recognized for providing exemplary patient care and innovative advancements.

At this meeting, you and your loved one will hear the latest in both research and treatment from leading lung cancer experts. The meeting will also be broadcast live online.

During this interactive town meeting, you will have the opportunity to meet and connect with medical experts, other patients, survivors and care partners touched by lung cancer. Our hope is that participants will pool their knowledge, so you can gain more insight and become more empowered to make YOUR best treatment choices in lung cancer.

Please join us in-person for this FREE interactive town meeting to learn:

  •       What information do you need UP FRONT to make decisions about treatment?
  •       Who is biomarker testing right for?
  •       How might I get information about clinical trials?
  •       How to live your best life with lung cancer
  •       How to cope with financial, emotional and lifestyle issues
  •       Tips and resources for care partners

Our expert panel will take your questions, and patient advocates will be on hand to offer support and connection to a variety of resources.


GUEST PRESENTERS


David Odell

 

David D. Odell, MD, MMSc

Assistant Professor, Thoracic Surgery

Robert H. Lurie Comprehensive Cancer Center of Northwestern University

 


Screen Shot 2016-08-09 at 12.27.44 PM

 

D. Ross Camidge, MD, PhD

Director, Thoracic Oncology Clinical and Clinical Research Programs; Professor of Medicine, Division of Medical Oncology

University of Colorado Denver

 


Timothy Kruser

 

Timothy J. Kruser, MD

Assistant Professor, Radiation Oncology

Robert H. Lurie Comprehensive Cancer Center of Northwestern University

 


Nisha Mohindra

 

Nisha Mohindra, MD

Assistant Professor of Medicine, Hematology/Oncology Division, Feinberg School of Medicine

Robert H. Lurie Comprehensive Cancer Center of Northwestern University

 


Sandra Manley-Eichler

 

Sandra Manley-Eichler, LCSW

Licensed Clinical Social Worker, Supportive Oncology

Robert H. Lurie Comprehensive Cancer Center of Northwestern University

 


HOST


Janet Freeman-Daily

 

Janet Freeman-Daily

Stage IV Lung Cancer Survivor, Patient Advocate

 

 

 


AGENDA

9:30 – 10:00 AM Registration | Connecting With Other Lung Cancer Patients and Care Partners
10:00 – 10:45 AM Current and Novel Treatment Options for Lung Cancer
10:45 – 11:30 AM Understanding Biomarker Testing in Lung Cancer
11:30 – 11:45 AM Meet the Patient Panel
11:45 – 12:30 PM Lunch Provided
12:30 – 1:00 PM Resources and Strategies for Living Well With Lung Cancer
1:00 – 2:00 PM Interactive Q&A Session

*All times listed are for the Central time zone.

[su_button url=”https://www.secure.cancer.northwestern.edu/registrations2/lung2016/index.cfm?ref=patientpower” target=”blank” style=”soft” background=”#28687c” size=”11″ wide=”yes” center=”yes” radius=”0″]Register to Attend In-Person[/su_button]

[su_button url=”https://zoom.us/webinar/register/477bbbdfa878c6934ac87b605f06faf5″ target=”blank” style=”soft” background=”#28687c” size=”11″ wide=”yes” center=”yes” radius=”0″]Register to Attend Online[/su_button]

LOCATION:

Robert H. Lurie Medical Research Center
Hughes Auditorium
303 E. Superior St., Ground Floor
Chicago, IL 60611

PARKING:

Parking is available just one block away in the Huron Superior Parking Garage (222 E. Huron).  Attendees will receive FREE parking.


This in-person town meeting is sponsored by the Patient Empowerment Network through educational grants from Helsinn, Genentech and Novartis, with additional funding from LUNGevity Foundation through an educational grant from Pfizer. It is produced by Patient Power in partnership with the Robert H. Lurie Comprehensive Cancer Center of Northwestern University and LUNGevity.

Town Meeting for Lung Cancer Patients, Caregivers, and Families

LUNGevity Live

Making Your Best Treatment Choices in Lung Cancer

Saturday, March 5th  
MD Anderson Cancer Center
Houston, Texas

There are numerous new developments in the treatment of lung cancer, including multiple treatments approved over the last several months. As the pace of research quickens, many patients and care partners find themselves trying to make sense of what treatment choices are most appropriate and when to pursue them. For example, what biomarker tests are available? And what information is necessary to make the best treatment choices for you and when?

On Saturday, March 5th, in Houston, Texas, Patient Power and LUNGevity will hold a free in-person town meeting at MD Anderson Cancer Center—one of the world’s most respected centers devoted exclusively to cancer patient care, research, education and prevention.  At this meeting, you and your loved one will hear the latest in both research and treatment from leading lung cancer experts.  The meeting will also be broadcast live online.

During this interactive town meeting, you will have the opportunity to meet and connect with medical experts, other patients, survivors and care partners touched by lung cancer. Our hope is that participants will pool their knowledge, so all can gain more insight and become more empowered to make YOUR best treatment choices in lung cancer.

Please join us in person for this FREE interactive town meeting to learn:

  • What information is needed to make the best treatment decisions for YOU?
  • What emerging therapies are in development?
  • How to best manage side effects.
  • How to find a clinical trial.
  • How to cope with financial, emotional and lifestyle issues.
  • Tips and resources for care partners.

Our expert panel will take your questions, and advocates will be on hand to offer support and connection to a variety of resources.

Head on over to Patient Power to sign up to attend in-person or online!

AGENDA

9:30 AM Registration / Check-in Opens
10:00 – 11:00 AM Current and Novel Treatment Options for Lung Cancer
11:00 – 11:30 AM Managing Side Effects and Symptoms
11:30 – 11:45 AM Meet the Patient Panel
11:45 – 12:15 PM Connecting with Other Lung Cancer Patients and Advocates
12:15 – 12:45 PM Lunch
12:45 – 1:30 PM Living Well With Lung Cancer
  1:30 – 2:00 PM Q&A Session

Patient Power logo 1MD Anderson logo

LUNGevity

Town Meeting for CLL Patients, Caregivers and Families

Patient Power and CLL Global will host a town meeting for CLL patients, caregivers and families on October 25th, 2015 at MD Anderson Cancer Center. Check back later for details. Thank you!

Town Meeting for MPN Patients, Caregivers and Families

MPN Town Meeting Houston 10/24

 

Advancing research in the field of myeloproliferative neoplasms (MPNs) is leading to expanded treatment options and shifting the landscape of the condition to improve the lives of those living with polycythemia vera (PV), essential thrombocythemia (ET) and myelofibrosis (MF). On Saturday, October 24th, in Houston, TX, Patient Power and its partner, The University of Texas MD Anderson Cancer Center, will conduct an MPN town meeting. The program will feature clinical experts and patient advocates discussing the latest research and treatments for MPNs, strategies for coping with symptoms and side effects, and tips on how to live well with an MPN.

You will have the opportunity to meet and connect with other patients and caregivers living with MPNs, and your feedback during the interactive event will help shape the conversation.  Our hope is that you’ll share your knowledge among your peers to learn and to be inspired by those you meet.

Please join us in person for this FREE interactive event to learn:

  • An understanding of MPNs and available treatment options
  • The latest research and emerging therapies for MPNs
  • Tips for monitoring your condition and managing side effects
  • Advice for navigating your care and coping with the emotional side of a chronic condition

Our panel of experts  will take your questions throughout the program. Local advocacy groups will also be on hand to offer support and to help you connect with the MPN community.

Click here for more details and to register.

Hope and Progress for Multiple Myeloma

Screen Shot 2015-07-01 at 4.13.33 AM

The landscape of multiple myeloma treatment and research is constantly evolving. Researchers are more hopeful than ever about the options for treatment and understanding of this complex disease. The latest advances in research are making a difference and improving the lives of those living with multiple myeloma. On Saturday, July 11, in Houston, TX Patient Power and its partner, the University of Texas MD Anderson Cancer Center, will host a town meeting, where you will hear the latest progress from world-renowned myeloma experts.

During this interactive town meeting, you will have the opportunity to meet and connect with experts, other patients, survivors, and care partners touched by multiple myeloma. Our hope is that you’ll share your knowledge with your peers, to learn and become inspired. Please join us online or in-person for this FREEinteractive event to learn:

  • An understanding of multiple myeloma and treatment options
  • The latest research and new treatments in development
  • How to effectively communicate with your healthcare team and to share in your treatment decisions
  • Strategies for monitoring your condition and managing side effects
  • Tips for navigating your care and coping with the emotional side of a chronic condition

Our expert panel will take your questions throughout the program.

Register for this event here

 

Agenda:

9:30 AM Registration/Check-in Opens
10:00 – 11:00 AM Current and Novel Treatment Options for Multiple Myeloma
11:00 – 11:30 AM Monitoring and Managing Symptoms
11:30 – 11:45 AM Meet the Patient Panel
11:45 – 12:15 PM Breakout Session: Meet Other Patients and Care Partners
12:15 – 12:45 PM Lunch Provided
12:45 – 1:30 PM Taking Care: Resources for Living Well with Multiple Myeloma
1:30 – 2:00 PM Q&A Session

Accelerating Progress in Myeloma and What it Means for You – Colorado

 

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New research and development is leading to a better understanding of multiple myeloma and MGUS. Experts are excited about expanding treatment options that are changing the way myeloma is treated and improving the lives of patients. On Sunday, November 9, in Denver, Colorado, Patient Power and our partner Rocky Mountain Cancer Centers, will conduct an in-person forum where you will hear the latest in treatment and research from world-renowned myeloma experts.

You will also have the opportunity to meet and connect with other patients and caregivers living with myeloma and MGUS and your feedback during the interactive event will help shape the conversation. Our hope is that you’ll share your knowledge among your peers to learn and be inspired by those you meet.

Please join us in person for this FREE interactive event to learn:

  • The latest myeloma treatments and research and what it means for patients
  • Strategies for managing side effects and monitoring your condition
  • Tips for effective communication with your healthcare team and family members
  • Day-to-day coping skills for living well with myeloma

Our expert panel will take your questions throughout the program. Local advocacy groups will also be on hand to offer support and help you connect with the myeloma community.

Accelerating Progress in Myeloma and What it Means For You – Houston

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New research and development is leading to a better understanding of multiple myeloma and MGUS. Experts are excited about expanding treatment options that are changing the way myeloma is treated and improving the lives of myeloma patients. On Sunday, November 2, in Houston, TX, Patient Power and our partner MD Anderson Cancer Center—one of America’s leading cancer research and treatment centers—will conduct an in-person forum where you will hear the latest in treatment and research from world-renowned myeloma experts.

You will also have the opportunity to meet and connect with other patients and caregivers living with myeloma and MGUS, and your feedback during the interactive event will help shape the conversation.  Our hope is that you’ll share your knowledge among your peers to learn and be inspired by those you meet.

Please join us in person for this FREE interactive event to learn:

  • The latest myeloma treatments and research and what it means for patients
  • Strategies for managing side effects and monitoring your condition
  • Tips for effective communication with your healthcare team and family members
  • Day-to-day coping skills for living well with myeloma

Our expert panel will take your questions throughout the program. Local advocacy groups will also be on hand to offer support and to help you connect with the myeloma community.

 

Living Well with MPNs – Houston

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New research and development is leading to a better understanding of myeloproliferative neoplasms (MPNs). Experts are excited about expanding treatment options that are changing the way MPN is treated and improving the lives of MPN patients. On Saturday, November 1, in Houston, TX, Patient Power and our partner MD Anderson Cancer Center—one of America’s leading cancer research and treatment centers—will conduct an in-person forum where you will hear the latest in treatment and research from world-renowned MPN experts.

You will also have the opportunity to meet and connect with other patients and caregivers living with MPNs, and your feedback during the interactive event will help shape the conversation.  Our hope is that you’ll share your knowledge among your peers to learn and be inspired by those you meet.

Please join us in person for this FREE interactive event to learn:

  • The latest MPN treatments and research and what it means for patients
  • Strategies for managing side effects and monitoring your condition
  • Tips for effective communication with your healthcare team and family members
  • Day-to-day coping skills for living well with MPNs

Our expert panel will take your questions throughout the program. Local advocacy groups will also be on hand to offer support and to help you connect with the MPN community.