This resource was originally published by Melanoma International here.
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Caregiver Resources, Clinical Trials, Prescription Drug Assistance, Support, Hospice, Hotlines and Forums, Insurance/Financial Assistance, Lodging, Lymphedema, Other Types of Melanoma, Pain Management, Radiation, Suggested Reading, Survivorship, Transportation
Caregiver Action Network
1130 Connecticut Ave, NW
Washington, DC 20036
Phone: (202) 454-3970
Caregiver Action Network works to improve the quality of life for the more than 90 million Americans who care for loved ones with chronic conditions, disabilities, disease, or the frailties of old age. CAN (the National Family Caregivers Association) is a non-profit organization providing education, peer support, and resources to family caregivers across the country free of charge.
Family Caregiver Alliance
785 Market Street
San Francisco, CA 94103
FCA seeks to improve the quality of life for caregivers through education, services, research, and advocacy. FCA’s National Center on Caregiving offers information on current social, public policy and caregiving issues, and provides assistance in the development of public and private programs for caregivers.
The Caregiver Relief Fund
900 South Wabash Avenue
Chicago, IL 60605
A social venture committed to caring for caregivers. Provides resources, assistance and a voice to over 50 million Americans who are currently caregivers to the chronically ill, aged and disabled.
9500 Euclid Avenue R36
Cleveland, OH 44195
The 4th Angel Program is part of the Scott Hamilton CARES Initiative. This is a free, national service which provides a one-to-one supportive relationship (phone or email based) to cancer patients and their caregivers. The program has over 400 patient and caregiver mentors who are at least 6 months post treatment, and continues to train more mentors.
Irving, Texas 75015
Organization strives to educate and assure caregivers and oncology teams there are ways to ease the journey’s relentless demands. Goal is to help caregivers emerge on the other end with less stress, more energy and a feeling of accomplishment that they did all they could for their loved ones.
3350 Griffin Road
Fort Lauderdale, FL 33312
A leading provider of information, support and guidance for family and professional caregivers. Founded in 1995as a producer of Today’s Caregiver magazine, the first national magazine dedicated to caregivers. Caregiver Media Group and all of its products are developed for caregivers, about caregivers and by caregivers.
The National Cancer Institute at the National institute of Health
A registry and results database of federally and privately supported clinical trials conducted in the United States and around the world. ClinicalTrials.gov gives you information about a trial’s purpose, who may participate, locations, and phone numbers for more details.
The Perelman Center for Advanced Medicine
3400 Civic Center Blvd
Philadelphia, PA 19104
Comprehensive information about specific types of cancer, updates on cancer treatments and news about research advances. Information is updated every day and provided at various levels, from introductory to in-depth.
Dermatology & Early Detection
Center for Disease Control (CDC) Centers for Disease Control and Prevention
4770 Buford Hwy NE
Atlanta, GA 30341
Federal agency that provides information on cancer prevention and control.
American Academy of Dermatology
930 E. Woodfield Road
Schaumburg, IL 60173
1445 New York Avenue, NW, Suite 800
Washington, DC 20005
(866) 503-SKIN (7546)
International: (847) 240-1280
Founded in 1938. With a membership of more than 17,000, it represents virtually all practicing dermatologists in the United States, as well as a growing number of international dermatologists. Find free screening locations as well as information on research, diagnosis and treatment.
The Department of Dermatology and Skin Science
University of British Columbia
835 West 10th Avenue
Canada V5Z 4E8
DermWeb is a premier destination for dermatology links and resources on the Web. There are several areas of interest for practicing dermatologists, for dermatology students, and for the general public.
The Skin Cancer Foundation
149 Madison Av.
New York, NY 10016
Educates about skin cancer and its prevention by means of sun protection; as well as the need for early detection, and prompt, effective treatment. It is the only international organization devoted solely to combating the world’s most common cancer, now occurring at epidemic levels.
National Cancer Institute
6116 Executive Boulevard, Suite 300
Bethesda, MD 20892
The NCI coordinates the National Cancer Program, which conducts and supports research, training, health information dissemination, and other programs with respect to the cause, diagnosis, prevention, and treatment of cancer, rehabilitation from cancer, and the continuing care of cancer patients and the families of cancer patients.
Prescription Drug Assistance
Needy Meds, Inc.
P.O. Box 219
Gloucester, MA 01931
This service provides information on drugs and offers applications (if available) for financial assistance, coupons for drugs, discount drug cards, free/low cost clinics and government program information.
Together Rx Access Card
One Outlet Lane
Bald Eagle Court
Lock Haven, PA 17745
Free prescription savings program for qualified enrollees, which provides savings on more than 300 FDA-approved prescription drugs.
Partnership for Prescription Assistance
This program helps uninsured and financially struggling patients get access to nearly 500 healthcare and prescription assistance programs that offer medicines for free or nearly free.
National Conference of State Legislatures
State Pharmaceutical Assistance Programs
More than 30 states have programs that will give discounts on prescription drugs, often for free. Visit web site to learn more about the various programs state legislatures have developed.
111 Brewster Street
Pawtucket, RI 02860
Patient assistance programs run by pharmaceutical companies to provide free medications to people who cannot afford to buy their medicine. RxAssist offers a comprehensive database of these patient assistance programs, as well as practical tools, news, and articles.
P.O. Box 42886
Cincinnati, OH 45242
Advocate in making the patient assistance program journey easier and faster by supplying vital information and help.
The Cancer Support Community
1050 17th Street, NW
Washington DC 20036
An international non-profit dedicated to providing support to people affected by cancer. Services are available through a network of professionally led community-based centers, hospitals, community oncology practices and other non-profits, as well as online.
Fighting Cancer with Hope
9575 Katy Freeway, Suite 428
Houston, Texas 77024
Cancer survivors of more than 50 different types of cancer volunteer for CanCare to provide emotional support to those currently facing a battle with cancer. Family members of survivors provide emotional support to family members of cancer patients.
1715 Yankee Doodle Road
Eagan, MN 55121
Free, personal and private websites that connect people experiencing a significant health challenge to family and friends, making each health journey easier.
MyLifeLine.org Cancer Foundation
A 501(c)(3) nonprofit organization that encourages cancer patients and caregivers to create free, customized websites. Our mission is to empower patients to build an online support community of family and friends to foster connection, inspiration, and healing.
275 Seventh Ave. Floor 22
New York, NY 10001
National Office serves people with cancer and their loved ones throughout the entire 50 states, Puerto Rico, and the U.S. Virgin Islands.
US Dept of Health & Human Services
Write to healthfinder.gov at Health and Human Services Department for easy entry point to trustworthy health information.
National Cancer Institute (NCI)
Very comprehensive information from the US Government agency wing of the National Institute of Health (NIH).
A medical education site from a company that helps both consumers and healthcare providers navigate the healthcare community.
HFA Hospice Foundation of America
1710 Rhode Island Ave, NW
Washington, DC 20036
National Hospice Foundation
1731 King Street, Suite 200
Alexandria, Virginia 22314
Hotlines and Forums
Melanoma International Foundation
Toll free Patient and Family Helpline: 1-866-463-6663
Forum: Melanoma Forum
Dana Farber Cancer Institute
Family Studies Cancer Risk Line
Information regarding familial cancers
Patient Advocate Foundation
1-800-532-5274 (Mon.-Thurs., 8am-8pm; Fri., 8:30am-7pm EST)
Provides education and legal counseling to cancer patients (relative to a diagnosis) concerning managed care, discrimination, insurance and financial issues.
Hereditary Cancer Center
Creighton University School of Medicine
2500 California Plaza
Omaha, NE 68178
1-800-648-8133 (Mon.-Fri., 8am-5pm CST)
Studies family-linked cancer. Counseling, information on clinical trials, cancer and hereditary factors.
Cancer Information Service
Sponsored by National Cancer Institute.
Provides information about cancer and cancer-related resources to patients, the public and health professionals. Offers one-on-one smoking cessation counseling and literature. Free publications.
Skin Cancer Foundation
1-800-754-6490 (Mon.-Fri., 9am-5pm EST)
Provides educational materials and information on skin cancer and treatment.
Cancer Research Institute
1-800-992-2623 (Mon.-Fri., 9am-5pm EST)
Provides general cancer resource information. Supports leading-edge research aimed at developing immunologic methods of preventing, treating and curing cancer.
Cancer Information and Counseling Line
(Mon.-Fri., 8:30am-5pm MST)
Provides current medical information and counseling for cancer issues.
Cancer Hope Network
1-877-467-3638 (Mon.-Fri., 9am-5:30pm EST)
One-on-one support offered to cancer patients and their families undergoing cancer treatment from trained volunteers who have survived cancer themselves.
BLOCH Cancer Hotline
Networks persons with cancer and home volunteers with same type of cancer. Free books about cancer.
6900 N Dallas Pkwy,
Plano, TX 75024
Good Days exists to improve the health and quality of life of patients battling chronic disease, cancer or other life-altering conditions who cannot afford the medications they so desperately need.
P.O. Box 4133
Gaithersburg, MD 20878
The HealthWell Foundation® provides full or partial financial assistance to eligible individuals who cannot afford their insurance co-payments, premiums, deductibles for certain treatments, and other out-of-pocket health care expenses.
Medicare & Medicaid
7500 Security Blvd
Baltimore, MD 21244-1850
Medicare is a federal system of health insurance for people over 65 years of age, and Medicaid assists low-income individuals and certain younger people with disabilities.
National Patient Advocate Foundation (NPAF)
725 15th St, NW, 10th Floor
Washington, DC 20005
NPAF provides professional case management services to individuals facing barriers to healthcare access for chronic and disabling disease, medical debt crisis and employment-related issues at no cost.
505 E 79th Street
New York, NY 10075
Joe’s House website lists thousands of places to stay across the country near hospitals and treatments centers that offer a discount for traveling patients and their loved ones.
Healthcare Hospitality Network, Inc.
P.O. Box 1439
Gresham, OR 97030
The Healthcare Hospitality Network, Inc. (HHN) is a nationwide professional association of nearly 200 unique, nonprofit organizations that provide lodging and support services to patients, families and their loved ones who are receiving medical treatment far from their home communities. The mission of HHN is to support homes that help and heal to be more effective in their service to patients and families.
Hope Lodge –American Cancer Society
Hope Lodge offers cancer patients and their caregivers a free, temporary place to stay when their best hope for effective treatment may be in another city. Currently, there are 31 Hope Lodge locations throughout the United States. Accommodations and eligibility requirements may vary by location.
National Lymphedema Network
116 New Montgomery Street, Suite 235
San Francisco, CA 94105
A non-profit organization founded in 1988 to provide education and guidance to lymphedema patients, health care professionals and the general public by disseminating information on the prevention and management of primary and secondary lymphedema.
Other Types of Melanoma
Oral Cancer Foundation
3419 Via Lido #205
Newport Beach, CA 92663
The Oral Cancer Foundation is a non-profit 501 (c) (3) public service charity that provides information, patient support, sponsorship of research and advocacy related to this disease. At the forefront of our agenda is to promote solid awareness in the minds of the American public about the need to undergo an annual oral cancer screening and an outreach to the dental community to provide this service as a matter of routine practice.
Ocular Melanoma Foundation
P.O. Box 29261
Richmond, VA 23242-0261
OMF aspires to be the top destination for up-to-date OM-related educational information, a meeting place, and advocacy resource. For doctors and researchers, OMF strives to be the connective tissue, facilitating interdisciplinary cancer research.
American Academy of Pain Management
The largest pain management organization in the nation and the only one that embraces an integrative model of care, which is patient-centered, focuses on the “whole” person, is informed by evidence, and brings together, all appropriate therapeutic approaches to reduce pain and achieve optimal health and healing. The Academy offers continuing education, publications, and advocacy.
American Chronic Pain Association
PO Box 850
Rocklin, CA 95677
Since 1980, the ACPA has offered peer support and education in pain management skills to people with pain, family and friends, and health care professionals. The information and tools on our site can help you to better understand your pain and work more effectively with your health care team toward a higher quality of life.
American Society of Radiation Oncology
8280 Willow Oaks Corporate Drive, Suite 500
703-502-1550 or 1-800-962-7876
Web site explains to patients, their families and the public how doctors called radiation oncologists use radiation therapy to treat cancer safely and effectively.
Radiation Therapy Fact Sheet
National Cancer Institute
A fact sheet that defines the different types of radiation therapy and discusses scientific advances that improve the effectiveness of this treatment.