From PEN-Powered Activity Guide V, beloved medical oncologist Dr. Bora Lim of The University of Texas MD Anderson Cancer Center walks us through what a clinical trial is, the phase of how drugs get approved, and how the pandemic crisis has amplified the criticality of clinical trials. What is a Clinical Trial? What is […]
Counteracting MPN Fatigue and Finding Adequate Rest from Patient Empowerment Network on Vimeo. MPN Network Manager Summer Golden who lives with myelofibrosis, and her care partner Jeff, discuss how they handle her fatigue. From tracking sleep on smartwatches to choosing optimal dinner and travel times — they do not let fatigue boggle them down. Watch as […]
For over 30 years, doctors in Utah have been perplexed by the number of childhood cancer survivors being admitted to hospital with breathing difficulties in the winter. Last year, new research finally began to shed light on the link. The importance of air quality to recovery is widely recognized, but could it be that air quality continues to be […]
Tips for Traveling During COVID with a Blood Disorder from Patient Empowerment Network on Vimeo. PEN MPN network managers Summer and Jeff take us on the road for their annual camping trip in the Julian forest in Southern California. What are some of the challenges of traveling with a blood disorder? Both share tips on […]
Partnering With Your Doctor on CLL Treatment Decisions from Patient Empowerment Network on Vimeo. Which CLL treatment could be right for you? Dr. Steven Coutre, a CLL specialist, reviews current approaches and explains why patients should stay informed about emerging options. Dr. Steven Coutre is a Professor of Medicine in the Hematology Department at Stanford University […]
Maria Bellefeuille is the NORD Rare Action Network Volunteer State Ambassador for Illinois. In advance of this weekend’s Living Rare, Living Stronger Patient and Family Forum, Maria answered some questions about being both a rare disease patient and advocate. Advocate Perspective Please tell us about yourself and why you decided to become a rare disease […]
How is Acute Myeloid Leukemia (AML) Treated? from Patient Empowerment Network on Vimeo. When diagnosed with Acute Myeloid Leukemia (AML), understanding available treatment options can be overwhelming. Dr. Alice Mims, an AML specialist, provides an overview of AML therapies and discusses factors to consider when deciding on an appropriate therapy with your healthcare team. Dr. […]
Pairing Old and New Therapies Effective AML Combination Treatment: Pairing Old and New Therapies from Patient Empowerment Network on Vimeo. With advances in AML research and a number of new treatments, can older therapy types still play a role in care? Dr. Alice Mims discusses pairing early AML treatments with new agents to boost their […]
From implants to self-diagnosis, innovation is growing in the medical industry, and can soon transform healthcare all together. Although technology has already evolved since the development of the microscope back in the 17th century, the health industry is still welcoming more advances to medical and surgical tools, as well as new ways to make effective […]
The telehealth market is expected to experience an 80% year on year growth in 2020 as a result of the pandemic, with telehealth services easing the burden on traditional healthcare systems by urging patients with mild or moderate ailments to use web-based applications for treatment or management. Telemedicine also takes the lead in the cancer care strategy during the coronavirus outbreak […]
Dogs perform many different services for people, including helping us when we’re down. It isn’t uncommon to see a therapy dog wandering down the halls of a nursing home, cheering up the patients inside. New research has shown that dogs can help alleviate everything from depression to anxiety to aggression and other mental health problems. But how […]
Ways for families to deal with cancer. How to support patients and how to get used to a new lifestyle. How Does Cancer Affect Family Life? A cancer diagnosis doesn’t only affect the patient but his or her family. For family members, it’s difficult to hear such a diagnosis since their worries become much more […]
Cancer, the abnormal growth of cells that multiply aggressively, has become one of the most prevalent diseases in today’s time. Diagnosis marks one of the most challenging periods in a person’s life. Although curable at early stages, the malignancy itself and the side-effects of treatment change the sufferer’s life at a significant scale. Lymphocytes represent […]
What is Leukemia? Leukemias are cancers that start in cells that would normally develop into different types of blood cells. It is a cancer of the body’s blood-forming tissues, including the bone marrow and the lymphatic system. Most often, leukemia starts in early forms of white blood cells, but some leukemias start in other blood […]
