Entries by Kara Rayburn
Caregiver Action Network (CAN)
Caregiver Action Network (CAN) is a non-profit organization providing education, peer support, and resources to family caregivers across the country free of charge. CAN is the nation’s leading family caregiver organization […]
Spotlight On Monica Weldon – A Rare Disease Advocate
The 2019 Living Rare, Living Stronger NORD Patient and Family Forum is a conference in which patients and caregivers can gain insights and practical tools for living their best lives with rare […]
Leveraging Social Media for Patient Advocacy #patientchat Highlights
Last week, we hosted an Empowered #patientchat on leveraging social media for patient advocacy. The #patientchat community came together for an engaging discussion and shared their best advice and tips. Top Tweets […]
A Conversation With Becky Pleat
Specialty Pharmacy and the Patient Journey with Specialty Medication In this segment of A Conversation With, Becky Pleat, PharmD, RPh the Associate Director of Medical Managed Care Oncology Specialist at […]
Colon Cancer Coalition
The Colon Cancer Coalition‘s mission is to empower local communities to promote prevention and early detection of colon cancer, and to provide support to those affected.
Patient Access: Let’s Talk Healthcare Conferences #patientchat Highlights
Last week, we hosted an Empowered #patientchat on the power of patient storytelling with special guest HealthSparq (@HealthSparq) to explore the accessibility of patients to attend healthcare conferences. Lisa Deck (@lbdeck) and […]
The Power of Patient Storytelling #patientchat Highlights
Last week, we hosted an Empowered #patientchat on the power of patient storytelling with special guest Kerri Sparling (@patientrev). Kerri was diagnosed with type 1 diabetes in 1986, sits on the Patient […]
Patient Assistance Programs (PAPs)
Patient Assistance Programs: A Guide for Patients Cancer is costly. Each year, it costs $180 billion in health care expenses and loss of productivity, says the American Cancer Society. For […]
Colorectal Cancer Alliance
Colorectal Cancer Alliance has a goal to end colorectal cancer with a mission to empower a nation of allies who work with us to provide support for patients and families, […]
Jennifer Lessinger
Jennifer Lessinger is a professional writer and editor who learned the value of patient empowerment during her struggle with a hard-to-diagnose and complex endocrine disorder.
The Community Oncology Alliance
The Community Oncology Alliance (COA) is a non-profit organization dedicated to advocating for community oncology practices and, most importantly, the patients they serve. By offering innovative solutions to Congress and […]
Coping With the Emotional Side Effects of AML
A dynamic panel discusses the important aspects of care for AML patients, with a focus on the emotional side effects, research on new treatments underway and finding suitable clinical trials. […]
Finding Your Voice #patientchat Highlights
Last week, we hosted an Empowered #patientchat on finding your voice and what stops patients from seeking a second opinion. A second opinion is crucial to prevent misdiagnosis or unnecessary […]
