Dr. Vinicius Ernani: Why Is It Important for You to Empower Patients?

Dr. Vinicius Ernani: Why Is It Important for You to Empower Patients? from Patient Empowerment Network on Vimeo.

Why is it vital for small cell lung cancer patients  to be empowered by cancer experts? Expert Dr. Vinicius Ernani from the Mayo Clinic discusses the power of giving patients hope and the importance of clinical trials.

See More from Empowering Providers to Empower Patients (EPEP)

Related Resources:

Beth Sandy: Why Is It Important for You to Empower Patients?

Dr. Yaw Nyame: Why Is It Important for You to Empower Patients?

Dr. Yaw Nyame: Why Is It Important for You to Empower Patients?

Transcript:

Dr. Vinicius Ernani:

So I think it’s always important to give the patient hope. It doesn’t matter how aggressive the disease is. I think the patients, they need to have hope to go home and continue moving with their lives. So again, small cell, it’s an aggressive disease, yes, but it responds very well to treatment. And now, we know that immunotherapy is there, it improves survival. We know that about 10 percent, 12 percent of the…50 percent of the patients are alive at one year after they start treatment. If you look at two years, there’s about 20 percent of the patients are alive. And if we look at five years, there’s about 10 percent of the patients that are alive with small cell. So we are seeing some progress with immunotherapy.

And again, I encourage, this is a disease that responds very quickly. It’s going to make you feel better very soon. I think that any patient with extensive stage small cell lung cancer deserves to be treated. And again, there’s more clinical trials coming with the immunotherapy, with the antibody drug conjugates. So hopefully, we’re going to continue to move the needle in small cell lung cancer.

Dr. Isaac Powell: Why Is It Important for You to Empower Patients?

Dr. Isaac Powell: Why Is It Important for You to Empower Patients? from Patient Empowerment Network on Vimeo.

What are some ways that cancer patients can be empowered by healthcare providers? Expert Dr. Isaac Powell from Karmanos Cancer Institute shares his perspective on ways patients can take charge of their health and situations that may be outside their control.

See More from Empowering Providers to Empower Patients (EPEP)

Related Resources:

Dr. Isaac Powell: Why Is It Important for You to Empower Patients?

Dr. Yaw Nyame: Why Is It Important for You to Empower Patients?

Dr. Yaw Nyame: Why Is It Important for You to Empower Patients?

Transcript:

Dr. Isaac Powell:

I tell my patients that they have to take charge of their health. They have to talk to the doctor. You have to ask the doctor challenging questions. Then you have to do things that are going to help you as well. You have to be responsible for your own health, such as losing weight if necessary, such as exercising if necessary.

There are things that can cause things that you can’t control, like the pollution of the air and the water. But even in those situations, you need to challenge that and say, we need to do something about this polluted area where I’m living. And so those are the kinds of things that I discuss with my patients. Take charge of your health in every aspect.

Dr. Ronald Chen: Why Is It Important for You to Empower Patients?

Dr. Ronald Chen: Why Is It Important for You to Empower Patients? from Patient Empowerment Network on Vimeo.

 Empowering patients and care partners is key to helping them to make informed care decisions.  How can experts provide the right information about various options based on what matters most to the patient? Prostate cancer expert Dr. Ronald Chen with the University of Kansas Medical Center shares his approach to empowering patients so they can make the individual decision for them and their family.

See More from Empowering Providers to Empower Patients (EPEP)

Related Resources:

Dr. Silvina Pugliese: Why Is It Important for You to Empower Patients?

Dr. Yaw Nyame: Why Is It Important for You to Empower Patients?

Dr. Yaw Nyame: Why Is It Important for You to Empower Patients?

Transcript:

Dr. Ronald Chen:  

I empower my patients by giving them the necessary information, so that patients and their caregivers are empowered to make the best decision for them. I think for every cancer patient, there’s always a balance that’s struck between how aggressive the treatment should be, and also how important quality of life is to them. And every patient may make a different decision among the different options that are available.

So as a physician, giving patients the right information about the different options and about the implications in terms of side effects and quality of life and survival is so important, so that each patient is empowered to make the individual decision for them and their family.

Dr. Yaw Nyame: Why Is It Important for You to Empower Patients?

Dr. Yaw Nyame: Why Is It Important for You to Empower Patients? from Patient Empowerment Network on Vimeo.

Patient empowerment is a vital part of care, but how can healthcare providers help? Prostate cancer expert Dr. Yaw Nyame with the University of Washington shares his approach to patient care and connections that he provides to help ensure optimal patient outcomes.

See More from Empowering Providers to Empower Patients (EPEP)

Related Resources:

Dr. Silvina Pugliese: Why Is It Important for You to Empower Patients?

Dr. Danielle Brander: Why Is It Important for You to Empower Patients?

Dr. Danielle Brander: Why Is It Important for You to Empower Patients?

Transcript:

Lisa Hatfield:

Dr. Nyame, how do you empower your patients and their care partners? And why is that important? 

Dr. Yaw Nyame:

I think the best way to empower patients and their care partners is just by giving them the time. My clinic always runs late…I’m not sure that’s something I should brag about but it always runs late, and when I come into a room, I always say, “I’m sorry, I’m running late.” I usually explain if someone needed more time before then, and I always end that with, “I’m going to give you the same time that you need to answer all your questions and have your needs met as the last person, and so don’t worry about what the clock says about when your appointment was supposed to be. Let’s just cover what we need to cover.”

I also jot quite a bit of notes, a lot of families come in with notebooks and they’re writing everything down, and I try to actually have some notes that are individualized to my patient, their particular cancer and what are my recommendations down on a sheet of paper that I give to them. It’s almost like a deliverable for that visit, which I think oftentimes takes the burden of the patient feeling like they’re the one that has to collect all this information, and it’s almost like I’m going to be in charge of collecting this and giving it to you at the very end of our visit.

And then lastly, I’m really big on trying to connect folks to the resources that they need socially or clinically, and so everyone gets a list of vetted resources to read more or to go back to if they have questions, everyone gets connected to advocacy organizations that I do work with and trust, and then lastly everyone gets my contact info, sometimes a cell phone number, sometimes an email, something where they feel like they can get reconnected to me. That’s my approach, some people would say that’s too much, but I find that the more ways I can allow patients to feel like I’m accessible, that I’m at their level, that I’m not some super human, whatever, but I’m just like their neighbors or friends, the people that are in their community, the more empowered they are to ask for the things that they need and ultimately have a better clinical experience and outcomes.

Dr. Danielle Brander: Why Is It Important for You to Empower Patients?

Dr. Danielle Brander: Why Is It Important for You to Empower Patients? from Patient Empowerment Network on Vimeo.

How can cancer experts help empower patients? Expert Dr. Danielle Brander from Duke Cancer Institute shares her approach to patient care through diagnosis and treatment and explains how patient empowerment helps in creating optimal care.

See More from Empowering Providers to Empower Patients (EPEP)

Related Resources:

Dr. Ebony Hoskins: Why Is It Important for You to Empower Patients?

Dr. Yaw Nyame: Why Is It Important for You to Empower Patients?

Dr. Yaw Nyame: Why Is It Important for You to Empower Patients?

Transcript: 

Dr. Danielle Brander:

My hope or my goal from my first meeting together, and that could be around the time of their diagnosis. Sometimes we’re meeting because patients are referred to talk about treatment. Sometimes patients have had a few treatments, of course, if they’re being referred for a clinical trial or a novel course of therapy. And my hope from the very beginning is creating an environment or creating a conversation and relationship where first and foremost patients feel free and not hesitant to ask their questions. Because if there’s misunderstanding or a lack of understanding or patients don’t know what to look out for, then it’s really hard to really to help them, whether that’s treatment or empowering them on other aspects of their health. And sometimes those questions come up with the visits, sometimes they come up after.

I encourage them to bring them back for their follow-up visits. It’s okay to ask the same questions because they’re going to be at different paths and points in their CLL journey along the way. It’s important for them to be empowered because again, that helps us in tailoring their treatment. It helps us at understanding what they want, what their goals are in choosing a treatment or choosing a trial path.

And again, only the patient and their family or caregivers truly know what is best for them and for us to meet them where they are. But the other empowering things I tell patients is that, you know, when they ask their questions or when they bring forth their experience, it improves our understanding to help them. But it’s really through those conversations that we learn so much to help all our patients, to be quite honest. We hope through trials that gives us information, but we know trials can’t capture all of this. It’s these individual relationships. And so I tell patients that them sharing their experience really does help us tailor things for them. But really, I think, enriches the experience and the way that we can help everyone.

Dr. Sameh Gaballa: Why Is It Important for You to Empower Patients?

Dr. Sameh Gaballa: Why Is It Important for You to Empower Patients? from Patient Empowerment Network on Vimeo.

How can cancer experts help empower patients? Expert Dr. Sameh Gaballa from Moffitt Cancer Center shares his perspective about the role of physicians and why patient empowerment is essential in shared decision-making for treatment.

See More from Empowering Providers to Empower Patients (EPEP)

Related Resources:

Dr. Nizar Tannir: Why Is It Important for You to Empower Patients?

Dr. Gabriela Hobbs Why Is It Important for You to Empower MPN Patients

Dr. Ana Maria Lopez Why Is It Important for You to Empower Patients

Dr. Ana Maria Lopez Why Is It Important for You to Empower Patients

Transcript:

Dr. Sameh Gaballa:

So our role as physicians is really we have to put in front of the patient and also the referring physicians all the information and all the options. And at the end of the day, it’s really the patient’s choice. But our role is to try to walk them through it so that they have the…all the information and all the tools they need to make the right decision for themselves. Because not every patient is going to be the same. There’s always going to be other factors that we have to consider that the patient would really be the one that knows about them so social issues or someone who travels a lot or a caregiver situation.

So all these things, because we’re dealing with human beings at the end. So when we’re trying…we have to assess the whole patient’s situation, not just medically, but also from all other aspects to arrive at the correct decision. And again, at the end of the day, it’s really the patient’s decision to make the call. And we, again, we try to educate them on all the treatment options and all the data, so they really know why, what our recommendation is stemming out from.

Nurse Natasha Johnson: Why Is It Important for You to Empower MPN Patients?

Nurse Natasha Johnson: Why Is It Important for You to Empower MPN Patients? from Patient Empowerment Network on Vimeo.

What are some ways that myeloproliferative neoplasm (MPN) oncology nurses and other MPN care team members can aid in empowering patients? Oncology nurse practitioner Natasha Johnson from Moffitt Cancer Center how she helps patients and their loved ones become more involved in care and treatment decisions.

See More from Empowering Providers to Empower Patients (EPEP)

Related Resources:

Dr. Nizar Tannir: Why Is It Important for You to Empower Patients?

Dr. Gabriela Hobbs Why Is It Important for You to Empower MPN Patients

Dr. Ana Maria Lopez Why Is It Important for You to Empower Patients

Dr. Ana Maria Lopez Why Is It Important for You to Empower Patients

Transcript:

Natasha Johnson:

So I’m an encourager, so I will encourage patients to be involved, get their loved ones involved, educate themself on the disease on the common symptoms, on treatments, and then ways to alleviate those symptoms. So I would encourage them too, to keep on living. Let’s do what we can to improve the symptom burden so you can keep on living. And I think this is important, because I believe that empowered patients are very well-informed, and they are the top key player in their care. They’ll share their goals of care, which makes them better prepared to work with the healthcare team to create an individualized plan of treatment for them.

Dr. Gabriela Hobbs: Why Is It Important for You to Empower MPN Patients?

Dr. Gabriela Hobbs: Why Is It Important for You to Empower MPN Patients? from Patient Empowerment Network on Vimeo.

What are some ways that can myeloproliferative neoplasm (MPN) care providers can help empower their patients? MPN expert Dr. Gabriela Hobbs from Dana-Farber/Harvard Cancer Center shares her perspective of how she educates her patients. Dr. Hobbs explains her methods of empowering all her patients in their care – whether they’re newly diagnosed, needing long-term MPN care, or going on to seek care from other clinicians.

See More from Empowering Providers to Empower Patients (EPEP)

Related Resources:

Nurse Natasha Johnson: Why Is It Important for You to Empower MPN Patients?

Dr. Ebony Hoskins: Why Is It Important for You to Empower Patients?

Dr. Ana Maria Lopez Why Is It Important for You to Empower Patients

Dr. Ana Maria Lopez Why Is It Important for You to Empower Patients

Transcript:

Gabriela Hobbs, MD: 

I think that empowering patients is really important in developing an excellent longitudinal relationship with an MPN patient. And the way that I like to empower my patients is through education. And that starts with the first meeting with the patient when they’re recently diagnosed, or maybe they’re seeking you out for another opinion because maybe something is going not well with their disease.

And so that first visit, I really like to spend a lot of time educating about what MPNs are, the different types, the things that we worry about, the possibility of disease progression, and then spending a lot of time talking about the different treatment options that exist. As well as spending a lot of time talking about how patients can maximize their quality of life with both pharmacologic interventions as well as lifestyle modification. And so education really is at the center of empowerment for patients.

And I think that that gives them a lot of control over their disease and prepares them for additional visits with me or with other clinicians if they’re seeking other care from other clinicians as well, especially those patients that maybe travel from far away. And so education during that visit is important, but also talking to patients about how to prepare for additional visits. So I talk to patients a lot about taking track of their symptoms, keeping track of how they’re feeling, how they feel with the medication, with perhaps a change in medication, how they feel like their symptoms are changing over time. Talking to them about the MPN symptom assessment form, and making sure that they can utilize that form to keep track of how they feel.

And then also asking questions…If they don’t ask questions during the encounter, make sure that they write down those questions in a notebook so that when they do go to see their clinician at the next appointment, they can make the most of that encounter by knowing that they’re going into that encounter, prepared with questions and able to summarize the way that they’ve been feeling over the last couple of weeks or months since their last appointment. So education is really always at the center of empowerment. 

Dr. Idoroenyi Amanam: Why Is It Important for You to Empower MPN Patients?

Dr. Idoroenyi Amanam: Why Is It Important for You to Empower MPN Patients? from Patient Empowerment Network on Vimeo.

How can myeloproliferative neoplasm (MPN) care providers empower their patients? Hematologist-oncologist Dr. Idoroenyi Amanam from City of Hope shares his perspective of his experience with a family member going through cancer. Dr. Amanam explains how that experience helped mold his approach to informing and empowering patients in their cancer journeys.

See More from Empowering Providers to Empower Patients (EPEP)

Related Resources:

Dr. Nizar Tannir: Why Is It Important for You to Empower Patients?

Dr. Ebony Hoskins: Why Is It Important for You to Empower Patients?

Dr. Ana Maria Lopez Why Is It Important for You to Empower Patients

Dr. Ana Maria Lopez Why Is It Important for You to Empower Patients

Transcript:

Dr. Indoroenyi Amanam: 

I know from personal experience, I’ve had a family member who had cancer and had to struggle with therapy and some of the complications associated with therapy. And I felt that her doctor was really good with giving a…giving us an understanding of what was up next for us, giving us an understanding of what the disease meant for her, and really just helped us wrap our heads around what was about to happen. And I think that’s tough when you get a diagnosis and things have to happen very fast. I think we…you’re diagnosed by possibly an ER doctor or a general practitioner. Then you’re sent as a referral to an oncologist who has 30 minutes to talk to you about your diagnosis and ready. Then they scheduled possibly for you to get a port and/or you have to get imaging, or you have to go and get another biopsy, or another procedure.

And a lot of the time that you’re spending at the hospital is really by going to these different appointments, but actually not really talking to anyone about what this really means. And so from my own personal experience of going through it with a family member, I think it’s really important to try to help patients understand what’s really going to happen, what this means for them long term, what the treatments…what the complications are associated with that.

And I know that most of our…most of my colleagues, they do that. And I know that we all want to ensure that our patients have great outcomes, but I do think that having that personal experience does give me some type of connection to patients in possibly in a different way. And so I just want to empower them with understanding that this is something that wasn’t expected. There are a lot of things that have to happen. Here’s what we need to do, and I’m there for you, and I’m there to support you in any way possible that I can to help you get through this.

Dr. Silvina Pugliese: Why Is It Important for You to Empower Patients?

Dr. Silvina Pugliese: Why Is It Important for You to Empower Patients? from Patient Empowerment Network on Vimeo.

How can skin cancer care providers work to empower their patients? Expert Dr. Silvina Pugliese from Stanford Cancer Center discusses her approach to patient empowerment, healthcare professionals she partners with, and methods to help enable informed patient decisions.

See More from Empowering Providers to Empower Patients (EPEP)

Related Resources:

Dr. Nizar Tannir: Why Is It Important for You to Empower Patients?

Dr. Ebony Hoskins: Why Is It Important for You to Empower Patients?

Dr. Ana Maria Lopez Why Is It Important for You to Empower Patients

Dr. Ana Maria Lopez Why Is It Important for You to Empower Patients

Transcript:

Dr. Pugliese:

I do think it is a great honor to care for patients, and I do think of it as my duty to empower patients or the way I think about it, to inform patients and allow them to come to their own conclusions and decisions based on the information that I provide. So the ways that I go about doing this are, first, I think it’s really important to establish a relationship with patients. I don’t have the fastest clinic visits, but I know a lot about my patients and they know a lot about me, and I do think that that relationship is a really important foundation for the trust that is needed in order to have a very secure patient-and-doctor relationship.

As part of that, I do listen to what patient concerns are, because I think that if we don’t identify what patients are fearful of, what they actually are very comfortable doing, if we don’t hear what their concerns are with certain treatments, then I think all the education that we do is really not going to be helpful if it doesn’t align with the patient’s treatment wishes and desires and what they’re comfortable doing. And then I provide information. So basically I will provide as much information as I have and know and always connect patients with someone who knows more than I do in their particular area of concern and who can provide information beyond what I know for certain situations. So often I will partner with other dermatologists, surgical dermatology, oncology, radiation oncology, medical oncology, surgical oncology, just to make sure that I have resources available for patients when they are making a decision.

So by doing those different things, I hope that I’m empowering my patients to feel better about their medical care, to feel like they are receiving the best medical care and to feel comfortable in making some really difficult decisions. It is important for me to do again, because I think that is my job, it’s my duty, I don’t take it for granted. And I think that it is the least that we can do when we’re being really entrusted with some very like vulnerable and personal information that patients are providing to us.

Dr. Nizar Tannir: Why Is It Important for You to Empower Patients?

Dr. Nizar Tannir: Why Is It Important for You to Empower Patients? from Patient Empowerment Network on Vimeo.

Renal medullary carcinoma (RMC) can be a devastating cancer, but healthcare providers can help make a substantial impact. RMC expert Dr. Nizar Tannir from MD Anderson Cancer Center shares how he creates a positive, healing relationship with patients and what he views as the future of RMC patient care.

See More from Empowering Providers to Empower Patients (EPEP)

Related Resources:

Dr. Heather Wakelee: Why Is It Important for You to Empower Lung Cancer Patients?

How Do You Empower Patients?

Dr. Ana Maria Lopez Why Is It Important for You to Empower Patients

Dr. Ana Maria Lopez Why Is It Important for You to Empower Patients

Transcript:

Dr. Tannir:

It all starts with listening to the patient and taking their history. And their symptoms very seriously not to dismiss what they tell you. That’s the first step patients who seek our help, they come to the provider, they come to the physician to help them seeking healing. I think it’s fundamental to listen, listen carefully take every symptom they report to us seriously. And when we think of a diagnosis of RMC as physician first, because the patient comes first before anything else. We provide them with all the information we have, we may not have all the information about their diagnosis or about the future.

When they ask us what will the future look like? What should they expect? We may not be able to answer that the question, but we can still provide them with help and take their question seriously and say, “I don’t know the answer to your question, I don’t know what the future will bring, but I’m going to tell you, I will not leave any stone unturned until I get to the bottom of it. And until I am able to find an answer to your question. “Then second, for young investigators who aspire to have a career in medicine, in medical research, in scientific research RMC is the most fulfilling field that you can make an impact on humanity.

For all of you who are ambitious, aspirational, hardworking, well-trained, smart, want to make a difference in the world and help humanity, RMC will provide you with a golden opportunity to make that difference, because patients with RMC are young, are all active before they come to us. Sick, debilitated, devastated with devastated family members. It is an aggressive disease that if not treated aggressively, urgently, unfortunately, patients may not make it. So it behooves us to provide them with the best care and research will give us the opportunity to, in the future, hopefully cure this disease once and for all. And what’s more rewarding for a career than seeing young patients achieve a cure from a devastating cancer that may, unfortunately, take their life away in few months or a year or two, if they can live for many many years to their fullest potential as a normal human being, to live to the final aging and give the society back, its citizens to be productive in society.

Give those young individuals the chance to go back to work or back to college. Maybe start a family, get married and have a family and have children. What is more rewarding than this? I think empowering yourself. Empower yourself with that golden opportunity. Empower yourself with that career that can help you make a difference in the world so that the world will not be deprived of young people like Herman Connor who could have not had that opportunity but now is alive and well and a productive member of society and a citizen 11 years after diagnosis. So imagine what you could do to help another patient like Herman and give that patient the opportunity to be cured.

Dr. Ebony Hoskins: Why Is It Important for You to Empower Patients?

Dr. Ebony Hoskins: Why Is It Important for You to Empower Patients? from Patient Empowerment Network on Vimeo.

 Patient empowerment is a vital part of the patient experience. Ovarian cancer expert Dr. Ebony Hoskins from MedStar Health shares her methods for moving her patients to empowerment and her reasoning for her different empowerment methods.

See More from Empowering Providers to Empower Patients (EPEP)

Related Resources:

Dr. Heather Wakelee: Why Is It Important for You to Empower Lung Cancer Patients?

Transcript:

Dr. Hoskins:

I empower my patients by, number one, educating them on their diagnosis and providing information regarding any treatment options side effects. So one, education. The second thing, how I empower my patients is allowing them to ask questions, whether they think it’s an easy question or a hard question. So having an open discussion about what…

I empower my patients by educating them on their diagnosis, the treatment options, side effects. So number one, education. Number two, I think we need to have an open communication. So allowing them to ask questions, whether they think it’s an easy or a hard question. And another part of empowerment is making sure they have another set of ears. Sometimes the shock and awe of a diagnosis, they can’t hear everything that you say.

So having either a close family member or a friend that’s there for a visit that can kind of help advocate for them and also be a second pair of ears. I think it’s all important in terms of having a good trusting relationship to empower our patients, to let them know that they are involved in the process and also know that they have a trusting doctor that they can rely on for their care going forward.

Dr. Leigh Boehmer: Why Is It Important for You to Empower Patients?

Dr. Leigh Boehmer: Why Is It Important for You to Empower Patients? from Patient Empowerment Network on Vimeo.

How can healthcare providers help with patient empowerment? Expert Dr. Leigh Boehmer from Association of Community Cancer Centers (ACCC) shares her perspective about patient empowerment and methods they have used at ACCC to help empower patients.

See More from Empowering Providers to Empower Patients (EPEP)

Related Resources:

Dr. Heather Wakelee: Why Is It Important for You to Empower Lung Cancer Patients?

Transcript:

Dr. Leigh Boehmer:

At ACCC, we’ve made a commitment to including patients and patient advocates in all of our ongoing educational initiatives, we no longer want to create or disseminate resources that weren’t first designed and vetted within communities for which they’re being built, and we also believe in rooting all of our work in health equity. Because all people deserve to be offered safe and effective cancer care, and I think…I feel so passionate about patient empowerment because I identify as a cancer survivor myself, I have my own patient story, and, unfortunately, cancer has touched the lives of so many across the globe, and so I advocate for recognizing patients and caregivers as vital components of any care delivery team, and I  think it’s so critical because to be honest, we’re always going to be stronger together.

Dr. Ana Maria Lopez: Why Is It Important for You to Empower Patients?

Dr. Ana Maria Lopez: Why Is It Important for You to Empower Patients? from Patient Empowerment Network on Vimeo.

Can myeloproliferative neoplasm (MPN) care providers take a different approach to hierarchical patient-provider healthcare? Expert Dr. Ana Maria Lopez from Sidney Kimmel Cancer Center provides insight to the approach she takes to help empower patients in their care experience.

See More from Empowering Providers to Empower Patients (EPEP)

Related Resources:

Dr. Heather Wakelee: Why Is It Important for You to Empower Lung Cancer Patients?

Transcript:

Dr. Ana Maria Lopez:  

I think, I really see myself as a facilitator of the healing process, the patient is the expert in their disease, in their illness process, they are living it every single day. And by having the patient, kind of like what we said earlier, you know the patient has questions, or the patient comes in with a list of questions, that’s great, because the patient is activated…is empowered enough to say, “Hey, these are my concerns.” So I think having a person get to that space or helping them get to that space is really, really important, and then what I can do to help with that is one, is simply to encourage that, that the patient is the expert in their own disease, and how they want to, I want to understand what is the experience like for you? What are your goals, what are your needs, what is most difficult or least difficult, and what is it that we need to address? So that I’m really partnering and really understanding from the patient’s experience, so I think that we’ve had such changes and there used to be the physician and the patient, and very hierarchical.

I tell you what to do. There’s so much information now, and there’s really more of a respect, and I think that’s really important, that respect that we are partners. And ultimately, this is about you, this is about the patient. So “How can I help you?”  is I think my approach.

Dr. Krisstina Gowin: Why Is It Important for You to Empower MPN Patients?

Dr. Krisstina Gowin: Why Is It Important for You to Empower MPN Patients? from Patient Empowerment Network on Vimeo.

Empowerment for myeloproliferative neoplasm (MPN) patients is a vital part of their care, but how can providers help with this? Dr. Krisstina Gowin from the University of Arizona shares key ways that she helps empower her patients and explains some reasons why patient empowerment is important in their care.

See More from Empowering Providers to Empower Patients (EPEP)

Related Resources:

Dr. Heather Wakelee: Why Is It Important for You to Empower Lung Cancer Patients?

Dr. Ana Maria Lopez Why Is It Important for You to Empower Patients

Dr. Ana Maria Lopez Why Is It Important for You to Empower Patients

Transcript:

Dr. Krisstina Gowin: 

I think the first key to empowerment is education. And so anytime I meet a patient, I spend a significant amount of time really making sure they understand their disease and what are the treatment goals, and how do we best achieve those together? And I think for MPNs in particular, that I want them to understand that, yes, we want hematologic response, we want to control your blood counts and your numbers, we want to reduce those thrombotic complications, we want to control your symptom burden, so so important, your quality of life and symptom burden is part of the disease management.

And so I want them to understand what is symptom burden, and how is it measured, and how do we best achieve chronologic measurements? Do they do that at home? Is it best in clinic, are they going to be journaling? So symptom burden and measuring, and then the other is wellness and the management of cardiovascular risk factors, and so education around all of those for my MPN patients.

And then why is it important while it’s important because we want our patients to feel empowered, we want to feel like they are driving the bus and contributing to their own survivorship and wellness, and so how do they best do that is through education and then again, getting the tools they need to really navigate their journey in the most precision and personal, personalized way as possible, and so that’s really my strategy is education and empowerment.