EPEP Videos Archives

Dr. Samuel Cykert: Why Is It Important for You to Empower Patients?

Dr. Samuel Cykert: Why Is It Important for You to Empower Patients? from Patient Empowerment Network on Vimeo.

Why is it important to empower patients? Non-small cell lung cancer (NSCLC) expert Dr. Samuel Cykert from UNC School of Medicine discusses the Greensboro Health Disparities Collaborative and ways that he works to empower his patients.

Related Resources:

Dr. Charlotte Gamble: Why Is It Important for You to Empower Patients?

Dr. Sikander Ailawadhi: Why Is It Important for You to Empower Patients?

Dr. Sara Taveras Alam: Why Is It Important for You to Empower Patients?

Transcript:

Dr. Samuel Cykert: Yeah, I think the most important thing in empowering patients is communication. First of all, on the explanation side, you have to communicate to the patient that I’m talking to you in normal English that you can understand. I’m not using medicalese to make it impossible for you to understand, so I’m communicating in a way where I’m making it digestible, and then the other thing I always do is I use a teach-back and I ask the patient to tell me what they’ve heard, I want to make sure that the patient can translate back to me the kinds of things that I’ve been saying, but even on top of that, I try to always talk to patients about their families and how their families are fitting in because family is so important in the decision-making process, and even having a family member at the discussion who’s supportive of treatment and care, I think can be another important factor. And I want to communicate that I’m listening, I want the patient’s questions, I want to encourage him or her to ask questions, so that this decision is shared.

Yeah, the only important thing is I did mention the Greensboro Health Disparities Collaborative, which is a community group, some of whom have experienced cancer, some of whom are teachers and UPS drivers, some of whom are healthcare professionals, and there are also patients of color and white individuals and it’s a group where the feedback, particularly in the context of a racial equity training, where everybody’s speaking the same language, their feedback on designing the interventions of the studies we’ve done, the feedback was crucial, and it was a matter of, we heard them, we heard the principles that they wanted to establish, and then we took those principles and used our expertise to translate them into the healthcare system, into the cancer care system. So I just want to say that talking to the community, particularly the community that experiences barriers, really important.

Dr. Charlotte Gamble: Why Is It Important for You to Empower Patients?

Dr. Charlotte Gamble: Why Is It Important for You to Empower Patients? from Patient Empowerment Network on Vimeo.

Why is it important to empower patients? Expert Dr. Charlotte Gamble from MedStar Health discusses the benefits of patient empowerment and methods she uses to help build trust and to empower her patients.

Related Resources:

Dr. Emily Hinchcliff: Why Is It Important for You to Empower Patients?

Charise Gleason: Why Is It Important for You to Empower Patients?

Dr. Craig Cole: Why Is It Important for You to Empower Patients?

Transcript:

Dr. Charlotte Gamble:

Yeah, this is such a good question and like actually, goes to the reason why I chose to have a career in medicine and like why I’m doing this. I think that it’s really important to understand that patients are their own individuals and not the tumor, they’re the cancer that they have, that they have whole lives and are whole people before they walk into our clinic doors. And to understand that there is a whole life that they have had and will continue to have alongside a cancer diagnosis.

And so one of the things that I think is so important is when I talk to patients to really understand the condition of their lives, to understand how long it took them to get to my office, to understand who is with them or who is not with them in the room to understand what their fears are, what experiences have they had with the healthcare system prior to meeting me.

How do I regain trust or earn trust, in the context of a healthcare system and a, you know, political system that is, pretty fraught. And I think being able to listen, is one of the greatest skills that I’ve been taught and have really tried to work on. And listening in and of itself I think helps to empower patients because they find their voice because either the doctor listening to them and asking them to tell me what’s happening.

And so the mere act of me listening, this is something that doctors need to do, that helps I think, patients find their voice. I think what I had mentioned previously also was making sure that they have people in their lives that are aware of what’s happening in terms of their cancer diagnosis and treatment plan that can be a support to patients.

I think getting these diagnoses can be traumatizing and recognizing the trauma that having a cancer diagnosis, can have, and the ripple effect that it has on not only the patients, but those that surround them is really important to recognize the gravity of that. And that while I might be seeing 20, 25 patients with cancer in my clinic or operating on three to four patients in a day, these are, really seminal moments in a person’s life. And recognizing the gravity and the responsibility that I have as their provider to not only listen to them, but make sure that they are surrounded by love and compassion, by people in their lives. And making sure that they feel that they have the language to share their diagnosis with their loved ones and to bring their loved ones on for the ride, is really important. So, I don’t know. I listen. I try to make sure that they’ve got folks that are there and present. And, I think that that’s really kind of how I try to center patients in this whole cancer care process.

Dr. Sikander Ailawadhi: Why Is It Important for You to Empower Patients?

April 2, 2024/in EPEP, EPEP Videos /by Kara Rayburn

Dr. Sikander Ailawadhi: Why Is It Important for You to Empower Patients? from Patient Empowerment Network on Vimeo.

How can healthcare providers empower patients? Expert Dr. Sikander Ailawadhi from the Mayo Clinic explains the mindset and approach he takes to patient empowerment and questions that he asks patients to put them in better control of their care.

Related Resources:

Dr. Emily Hinchcliff: Why Is It Important for You to Empower Patients?

Charise Gleason: Why Is It Important for You to Empower Patients?

Dr. Craig Cole: Why Is It Important for You to Empower Patients?

Transcript:

Dr. Sikander Ailawadhi:

Patient empowerment is an extremely important aspect of how we deliver healthcare and how our patients consume healthcare. Let’s take a step back and think about it this way. A patient was diagnosed with cancer. This is not what they were expecting. This is not what their families, their loved ones, anybody was expecting. It throws a wrench in their life plans, and suddenly they have lost control, not over their health, in a lot of cases, even over their lives, over their families, their jobs, everything. What can we do to empower our patients and make them feel in control?

A statement that is very frequently used by a lot of people, frankly, is, well, the patients need to be their own advocates. Yeah, but I really strongly feel if a patient does not even know what to ask, how are they going to ask the right question? How do they know what is the right question to even put up to the clinician? So in my opinion, the biggest thing, in fact, in some ways, even the least thing I can do to empower my patients is to educate them, is to make them aware about the disease, about the treatment, both the benefits and the side effects, about long-term outcomes.

I do offer to my patients, for example, “Are you interested in knowing about prognosis?” Some patients don’t want to hear about it, but some were afraid to ask. If they know what they have to expect, they are able to plan better. They are able to get in control better. So for me, the number one way of empowering the patient is spending time with them, educating them, making them aware about their disease, about their treatment, and about the long-term expectations of living their life after the cancer diagnosis.

Dr. Sara Taveras Alam: Why Is It Important for You to Empower Patients?

March 19, 2024/in EPEP, EPEP Videos /by Kara Rayburn

Dr. Sara Taveras Alam: Why Is It Important for You to Empower Patients? from Patient Empowerment Network on Vimeo.

How do care providers empower patients, and why is it important? Acute myeloid leukemia expert Dr. Sara Taveras Alam from UT Health Houston shares various methods she employs to empower patients in their care, cancer journeys, and ultimate decisions about the way they want to live with cancer.

Related Resources:

Dr. Emily Hinchcliff: Why Is It Important for You to Empower Patients?

Charise Gleason: Why Is It Important for You to Empower Patients?

Dr. Craig Cole: Why Is It Important for You to Empower Patients?

Transcript:

Dr. Sara Taveras Alam:

I empower my patients by explaining their disease at an elementary grade level, educating them on what to expect with treatments and keeping open lines of communication with them. I encourage my patients to share their journey with those who are close to them and to accept help. An extra set of ears may be helpful to recall conversations with physicians, and writing down questions in between visits can make sure that questions don’t go unanswered. I provide my patients with educational resources on their disease and do my best to explain the nuances of their treatment and what life with AML looks like.

I empower them to be their best advocate and ensure they know that they are the decision makers in this process, and we are here to guide and support them. Ultimately, it is their life, and they get to choose what is important to them. We should accommodate as best as we can. And sometimes that may be allowing them to postpone their next chemo cycle for a few days for a meaningful life event.

When things are rough, I empower patients by acknowledging their hardship and keeping alive the hope of cure unless that is no longer feasible. In the circumstances when controlling the disease is no longer feasible, I make every effort to accompany the patient in their concession of end of life care where there are no doubts about stones unturned, there is quality time with their loved ones, and there is peace of a life well-lived.

Dr. Emily Hinchcliff: Why Is It Important for You to Empower Patients?

March 7, 2024/in EPEP, EPEP Videos /by Kara Rayburn

Dr. Emily Hinchcliff: Why Is It Important for You to Empower Patients? from Patient Empowerment Network on Vimeo.

How can patients be empowered? Gynecological oncologist Dr. Emily Hinchcliff from Northwestern Medicine shares the approaches she uses in her practice to help empower patients in their journey through care.

Related Resources:

Dr. Jung Gong: Why Is It Important for You to Empower Patients?

Dr. Jun Gong: Why Is It Important for You to Empower Patients?

Charise Gleason: Why Is It Important for You to Empower Patients?

Dr. Craig Cole: Why Is It Important for You to Empower Patients?

Transcript:

Dr. Emily Hinchcliff:

So I empower my patients through education. I think that we as physicians, as providers, serve a really key role for patients in terms of serving as medical translators, in terms of helping our patients to ensure they understand the diagnoses that are facing them and their treatment options kind of for what the next steps in their care are.

So as a GYN oncologist, I really kind of weave that through my entire practice and every step of the way, I have the great privilege of caring for my patients from their diagnosis throughout their cancer journey. And so every step of the way, ensuring that they are educated about their disease and educated about their options, I think really allows us to build a powerful partnership and gives them the kind of ownership over their own cancer care.

Charise Gleason: Why Is It Important for You to Empower Patients?

March 6, 2024/in EPEP, EPEP Videos /by Kara Rayburn

Charise Gleason: Why Is It Important for You to Empower Patients? from Patient Empowerment Network on Vimeo.

How can patients and families be empowered? Advanced practice professional Charise Gleason from Winship Cancer Institute discusses her perspective and communication methods that have shown benefits for her myeloma patients.

Related Resources:

Dr. Jun Gong: Why Is It Important for You to Empower Patients?

Beth Sandy: Why Is It Important for You to Empower Patients?

Dr. Craig Cole: Why Is It Important for You to Empower Patients?

Transcript:

Charise Gleason:

I think it’s important to empower our patients, and we do that from day one. Patient comes to us, we’re starting to develop that relationship. And the discussions that we have early on can be very different from later, but we have to continually reinforce, ask questions, give patients the opportunity to ask us questions. I know when I talk to a patient about a clinical trial, and I’m documenting, I put that back in, patient or family member or care partner was given the opportunity to ask questions.

Our clinics go very quickly, and you have to make the time for your patients. So you have that relationship, and they know that they can bring issues to you. Sometimes we don’t get it right either, and you’ve got to own that and move on to that next step. So you continue that relationship. Patients are going through losing control with having a cancer, and like myeloma and many times patients never even heard of multiple myeloma until they come into our world.

So it is an ongoing open communication, and we don’t make decisions for them. We give them options and upfront or early relapse, you may have far more options than you do in that relapsed/refractory setting. But you’ve got to know what’s important to your patient and what their goals are. And, are they still working? Our patients vary in age. But you want to think about where your patient is, what’s important to them, and you don’t know that unless you ask the questions and have that communication. Our patients are very savvy. We go to meetings. The first thing they want to know is what did you learn? Even when they’re doing well on their current treatment, they want to know what’s next. What’s out there for me if this stops working?

When we’re in that biochemical relapse phase where we don’t have to change treatment, we’re already having those conversations about what are those options next for you? And so I think that having that team approach, that open communication is really important for our patients and empowers them to make good decisions. As an advanced practice provider, it’s important for me to explain my role, right?

Patients will come to a practice, and sometimes they’re surprised that I don’t see the physician every time I come. So I think it’s instead of ignoring that and not telling patients, I think it’s important that we describe our roles in that care as well. That, yes, I also specialize in multiple myeloma. I collaborate with your physician. We talk about you, even if you’re not seeing your physician. And so I think that patient and family understanding the rest of the team and what we bring to the table for them is essential as well.

Dr. Craig Cole: Why Is It Important for You to Empower Patients?

March 6, 2024/in EPEP, EPEP Videos /by Kara Rayburn

Dr. Craig Cole: Why Is It Important for You to Empower Patients? from Patient Empowerment Network on Vimeo.

How can patients and families be empowered? Expert Dr. Craig Cole from Karmanos Cancer Institute discusses methods of empowering patients in their care and the benefits of patient empowerment.

Related Resources:

Dr. Jun Gong: Why Is It Important for You to Empower Patients?

Beth Sandy: Why Is It Important for You to Empower Patients?

Charise Gleason: Why Is It Important for You to Empower Patients?

Transcript:

Dr. Craig Cole:

Well I think I’ll start with the why that’s important first. It is not only good patient care. I mean, it’s good patient care to have your patients empowered, that you’re not making decisions for them, but you have shared decision-making and work as a team. And so that’s, I think the biggest thing is it really is good patient care. It enhances compliance, it enhances the patient experience, the provider experience to have empowered patients.

The other thing is that it makes your job fun to have empowered patients. For me to walk into a room and a patient just says, “Well, I’m okay,” is one thing to have a patient, for me to walk in a room and say, “Well, I’m okay. So what’s new in myeloma?” And then being able to talk about that, because I can’t talk about this new myeloma at home anymore. I mean, my wife and kids are sick of hearing about myeloma. So who do I have to talk to? I have patients to talk to. And you can’t talk to unempowered patients. You have to talk to empowered patients. So it just makes your job fun to have an empowered patient. So, how do you do that?

And again, it’s good patient care. So how do you do that? Is that you start on day one and giving data to patients so that they see giving their data so that my patients go home with their bone marrow biopsy. They go home with their cytogenetic data. They go home with the data that they have so that they see that what happens in the clinic, what happens at home, that it’s not black and white, but there’s a continuum there, that they’re empowered and they have the data in front of them to see that this is really happening.

The second thing is offering options to patients that patients understand that is just not, a four drug therapy or two or one drug therapy, but there are options for therapy and that you can pick the best option for you as we go through sort of the risks and benefits. So I’ve been criticized by offering too many options to my patients, and I think that’s impossible to, that you can’t offer too many options because I don’t live in my patients’ shoes.

They’re the best ones to say, do I want to be here once a week, every week, for an hour or don’t want to be here once a week for two hours, three weeks out of four weeks, or do I want to not come in at all and get an oral therapy and they’re the best judge for that. So we offer things, including offering clinical trial space. So offering options gets them involved in the process, so they’re part of the empowerment.

Also referring them to educational resources. We have fantastic support groups and patient advocacy organizations here and around the world, and they’re very, very helpful. And when you see other empowered patients, it’s hard to not be empowered yourself when you see all the great opportunity. We also make sure the patient uses their portal so that if they have a question that they can communicate directly to me, they don’t have to wait a month in order to, it is very un-empowering to sit there with a rash for two weeks, as opposed to just, sending me a message to the portal. And probably most importantly, I think, is really listening and validating patients’ concerns.

There was a study that was done by the Cancer Support Community and their Patient Experience Survey, and that a lot of patients, over 50 percent of patients, don’t discuss financial toxicity, don’t discuss their behavioral health concerns, such as depression, because they think that the doctor can’t or the providers can’t do anything about it. And part of that is that if someone says, “Well, it’s kind of expensive for my drug,” and you don’t validate and listen to that, then they’re going to drop it and they may never bring it up again. Or if they say, “I’m having trouble with sleep and engaging other people,” basically saying that they have depression, if you don’t validate and listen to that, then they may never bring it up again, and they’re going to suffer with that along with their myeloma. So it’s really important as an empowering thing for patients for you to listen and validate what patients have and their concerns.

Dr. Jun Gong: Why Is It Important for You to Empower Patients?

February 28, 2024/in EPEP, EPEP Videos /by Kara Rayburn

Dr. Jun Gong: Why Is It Important for You to Empower Patients? from Patient Empowerment Network on Vimeo.

Why is it important to empower patients? Expert Dr. Jun Gong from Cedar-Sinai Medical Center shares his perspective on how empowering patients impacts them and specific ways he improves his gastric patient care.

Related Resources:

RuthAnn Gordon: Why Is It Important for You to Empower Patients?

Beth Sandy: Why Is It Important for You to Empower Patients?

Dr. Isaac Powell: Why Is It Important for You to Empower Patients?

Transcript:

Dr. Jun Gong:

So empowering patients is very important because we can only do so much from our side in terms of we have treatments to offer, we have prescriptions to provide, we have diagnostics we can do to work up certain maladies and illnesses. However, I think what we don’t grasp is how much happens at home. The majority of the time is the patient at home with their caregiver, with their family members? And here, I think it’s a very important pillar of treatment where not only is one pillar just from the oncologist side and from the doctor’s and all the healthcare providers’ side, the other pillar is what happens at home.

And this is where I think empowering patients is very important. This is where empowering them to control what foods they eat, what foods have been known to be risk factors for stomach cancer or any kind of cancer.

What foods to focus on, to building nutrition, to be able to tolerate chemotherapy or cancer treatment, to be able to boost your immune system. These are important aspects that are controlled really at the patient level and the family level. The other way to empower patients is activity. We often say it that, mother knows best. If you don’t use it, you’re going to lose it. And so debilitation is a big problem in our cancer patients as well.

So ways to promote activity, whether it’s just a walk, a daily walk outside the neighborhood, or even to more strenuous types of cardiac exercises. And here we actually have newer resources available in our physical rehab colleagues. Our cancer nutritionists are excellent resources as well. And these are just aspects of empowering patients on what they can do at home. Because I often find patients and family members ask, what else could we be doing beyond what we are prescribing in the clinic and what we’re doing in the hospital or the medical care setting?

The other aspect is to empower patients to know that it is appropriate, always appropriate to seek more than another opinion on your treatment plan. And we have a really, really close relationship from both the academic to the community level where we’re more than happy to review clinical trials, provide second opinions. Here is a very important part that we recognize that we are not here to, let’s just say, have patients stay with us for treatment. We envision a relationship where if a trial is not available, our recommendations should be to deliver these recommendations to the community provider so that they can provide day-to-day care because their care is just as excellent and they have just the same access to standard of care. We are here for a mutual relationship and partnership. It is not a one-way street, and it’s not definitely a black hole where if you refer patients to a larger academic center, are you worried that you won’t hear from the patient or from the provider? We always make it a close goal to have timely feedback to our referring partners. And this is just some of the few ways that I believe it’s important to empower your patients.

Dr. Beth Faiman: Why Is It Important for You to Empower Patients?

February 6, 2024/in EPEP, EPEP Videos /by Kara Rayburn

Dr. Beth Faiman: Why Is It Important for You to Empower Patients? from Patient Empowerment Network on Vimeo.

How can patients be empowered, and why is it an important part of their care? Dr. Beth Faiman from Taussig Cancer Institute shares three key elements that comprise her view of patient empowerment.

Related Resources:

RuthAnn Gordon: Why Is It Important for You to Empower Patients?

Beth Sandy: Why Is It Important for You to Empower Patients?

Dr. Isaac Powell: Why Is It Important for You to Empower Patients?

Transcript:

Dr. Faiman:

I think as an advanced practice provider, I consider about three key elements of patient empowerment to include information, access, and engagement. So those three things really resonate with me through shared decision-making. So first of all, the patients need to possess the knowledge that they need to make informed decisions about their health? What is their health status remission? What are their future therapeutic options? Are there clinical trials available? And what’s the best treatment for them?

And I share this information with the caregiver and the patient as well. Access is also an important role, and important thing for a patient, access to medications. Sometimes there’s co-pay assistance that we need to gain as nurses, advanced practice providers, and physicians to get patients what they need whether it’s a pill or a shot. And then finally, I did mention that shared decision-making process. And that’s where the patients are really engaged.

So I like to mutually share information between the patient caregiver and the clinical team, so we’re sharing information back and forth. We can identify what their goals of care are, and we can make decisions about their health that lessen the risk of decisional regret. Again, make them feel comfortable about the decisions they’re making. And so by these little strategies, I really thinking empowering the patients to take hold of their own health is a way that we can all mutually feel successful in their care.

RuthAnn Gordon: Why Is It Important for You to Empower Patients?

February 6, 2024/in EPEP, EPEP Videos /by Kara Rayburn

RuthAnn Gordon: Why Is It Important for You to Empower Patients? from Patient Empowerment Network on Vimeo.

How can patients be empowered, and why is it an important part of their care? Director of Clinical Trials Nursing RuthAnn Gordon from Memorial Sloan Kettering Cancer Center shares her expert perspective.

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Dr. Vinicius Ernani: Why Is It Important for You to Empower Patients?

Beth Sandy: Why Is It Important for You to Empower Patients?

Dr. Isaac Powell: Why Is It Important for You to Empower Patients?

Transcript:

RuthAnn Gordon:

Thank you for the question. I think one of the most important things we can do to empower our patients is to educate them. They really need to be prepared for what they can expect when they’re on their journey and also what their responsibilities are and what the clinician’s responsibilities are. What are going to be the expectations? And outlining that in a format that they’re comfortable with so considering what their literacy is, how they like to learn is important in those empowering conversations. Learning about the patient, building that relationship with them so you understand their learning styles, so you understand what they might need more direction on or more education on is really important.

And the reason why all of those things are important is because we want our patients to feel like they’re being heard. We want them to feel like no matter how big or small the question that they should ask it, that we are in a place to support them and help them and that we want to hear their questions. And we want to educate them. And we want them to feel like they have the best support that they need, the most appropriate support that they need in order to be educated and empowered and informed and a part of the process.

It’s important to make your patient a part of the process. It is we are in this, we are doing this. What do you need? What can I do to help? And really giving them that confidence. You understand what their needs are, and you want them to speak up and that it is safe to speak up, and that your questions will be heard here. I think that makes patients feel empowered, and it also gives them more self-confidence. And with confidence comes so many other healing things. And so I think it’s really important to help them with their processing with everything that’s going on is to empower them and educate them. And educating them will empower them.

Dr. Kami Maddocks: Why Is It Important for You to Empower Patients?

January 23, 2024/in EPEP, EPEP Videos /by Kara Rayburn

Dr. Kami Maddocks: Why Is It Important for You to Empower Patients? from Patient Empowerment Network on Vimeo.

What benefits can patients and care providers see from empowering patients? Expert Dr. Kami Maddocks from The Ohio State University Comprehensive Cancer Center explains benefits that she’s seen in her patients and ways that she helps encourage deepening of their knowledge and capacity for informed treatment decisions.

Related Resources:

Dr. Vinicius Ernani: Why Is It Important for You to Empower Patients?

Beth Sandy: Why Is It Important for You to Empower Patients?

Dr. Isaac Powell: Why Is It Important for You to Empower Patients?

Transcript:

Dr. Kami Maddocks:

I think empowering patients is so critical, because I think when they understand their disease better, the treatment options, or why they’re not receiving treatment and kind of what their journey could look like, that they overall do much better. I think when a patient comes in, I like to give them my explanation of their disease, make sure that I am answering all of their questions, information. Some patients have read a lot before they come in and some have not read a lot. I like to provide them with websites or areas of information that I know is accurate and up-to-date information and encourage them once they read that to give us a call.

We also provide them some written information and I have a 24-hour line. And I always encourage patients, I don’t know whether you’re getting treatment and having a side effect, whether you’re at home worrying about a symptom, whether you have a question about what’s going on, I don’t know that you’re worried unless you let me know.

So I like to encourage patients, if you have questions, concerns, please reach out. We also have a portal where patients can ask non-urgent questions if they’d rather have it in writing, but I think making sure that they know we’re here to help them. I think offering information on clinical trials, I encourage patients if they have questions or concerns on the information they’re provided that they think about second opinions.

And patients that I see for second opinions I like them to know that you’re getting great treatment locally or this treatment is something that you don’t have to drive here for if you need treatment. But I’m always available if there’s other concerns or something doesn’t seem right. So I think making sure that patients’ questions are answered. I think making sure that they are comfortable getting other opinions if they need to and making sure that they know that if they have concerns they should reach out and not worry or use Google but use us to help them.

Dr. Rafael Santana-Davila: Why Is It Important for You to Empower Patients?

January 8, 2024/in EPEP, EPEP Videos /by Kara Rayburn

Dr. Rafael Santana-Davila: Why Is It Important for You to Empower Patients? from Patient Empowerment Network on Vimeo.

What are some ways for cancer patients to be empowered by experts? Dr. Rafael Santana-Davila with the University of Washington School of Medicine shares his perspective and benefits of patient empowerment.

Related Resources:

Dr. Vinicius Ernani: Why Is It Important for You to Empower Patients?

Beth Sandy: Why Is It Important for You to Empower Patients?

Dr. Isaac Powell: Why Is It Important for You to Empower Patients?

Transcript:

Dr. Rafael Santana-Davila:

An empowered patient is a patient that does better, because they know what’s going on. They have a better understanding of the disease. They’re better engaged. So how do you empower your patients? It’s a very difficult question to answer, because I don’t think that there’s a recipe to do this. And every patient is different. But what I try to do is to educate patients and know that these are hard conversations that a lot of it is going to be over their head. So you have to do a lot of re-education. And when I say over their heads, I’m not meaning that they are not smart enough to get it, it’s just they’re going through a lot. So you have to be simple with them. You have to meet them where they are and just do a lot of re-education and talking about the things that you think you’ve talked about, but many times they were thinking about something else, and they didn’t get it.

Beth Sandy: Why Is It Important for You to Empower Patients?

January 8, 2024/in EPEP, EPEP Videos /by Kara Rayburn

Beth Sandy: Why Is It Important for You to Empower Patients? from Patient Empowerment Network on Vimeo.

How can patients be empowered by cancer care providers? Expert Beth Sandy from Abramson Cancer Center shares her perspective and actions she takes to help activate patients in their care.

Related Resources:

Dr. Vinicius Ernani: Why Is It Important for You to Empower Patients?

Dr. Rafael Santana-Davila: Why Is It Important for You to Empower Patients?

Dr. Isaac Powell: Why Is It Important for You to Empower Patients?

Transcript:

Beth Sandy:

I think the best way for me to empower my patients is to be optimistic and to give them hope and because I’ve seen a lot of good stories. I also think one of the best ways to empower patients is to get to know them and who they are as a person and what is important to them, because then we can tailor our treatments and our discussions to what is important to them. I think another way to empower patients is to give them time to ask questions and frequently I’ll say, “Do you have any other questions?” I always ask that before we leave the room. “Do you have any other questions for me? Do you understand everything that we’ve said?”

Another way is to make sure they know how to get in touch with me. So I personally really like the online portal. So patients can send us messages through the portal, but they can certainly call as well. But make sure they know how to get in touch with you, because that’s something that can be really scary when you’re at home and you’re worried about something, and you don’t know how to get in touch with your care team.

Dr. Vinicius Ernani: Why Is It Important for You to Empower Patients?

January 8, 2024/in EPEP, EPEP Videos /by Kara Rayburn

Dr. Vinicius Ernani: Why Is It Important for You to Empower Patients? from Patient Empowerment Network on Vimeo.

Why is it vital for small cell lung cancer patients to be empowered by cancer experts? Expert Dr. Vinicius Ernani from the Mayo Clinic discusses the power of giving patients hope and the importance of clinical trials.

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Dr. Vinicius Ernani:

So I think it’s always important to give the patient hope. It doesn’t matter how aggressive the disease is. I think the patients, they need to have hope to go home and continue moving with their lives. So again, small cell, it’s an aggressive disease, yes, but it responds very well to treatment. And now, we know that immunotherapy is there, it improves survival. We know that about 10 percent, 12 percent of the…50 percent of the patients are alive at one year after they start treatment. If you look at two years, there’s about 20 percent of the patients are alive. And if we look at five years, there’s about 10 percent of the patients that are alive with small cell. So we are seeing some progress with immunotherapy.

And again, I encourage, this is a disease that responds very quickly. It’s going to make you feel better very soon. I think that any patient with extensive stage small cell lung cancer deserves to be treated. And again, there’s more clinical trials coming with the immunotherapy, with the antibody drug conjugates. So hopefully, we’re going to continue to move the needle in small cell lung cancer.

Dr. Isaac Powell: Why Is It Important for You to Empower Patients?

January 4, 2024/in EPEP, EPEP Videos /by Kara Rayburn

Dr. Isaac Powell: Why Is It Important for You to Empower Patients? from Patient Empowerment Network on Vimeo.

What are some ways that cancer patients can be empowered by healthcare providers? Expert Dr. Isaac Powell from Karmanos Cancer Institute shares his perspective on ways patients can take charge of their health and situations that may be outside their control.

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Dr. Isaac Powell:

I tell my patients that they have to take charge of their health. They have to talk to the doctor. You have to ask the doctor challenging questions. Then you have to do things that are going to help you as well. You have to be responsible for your own health, such as losing weight if necessary, such as exercising if necessary.

There are things that can cause things that you can’t control, like the pollution of the air and the water. But even in those situations, you need to challenge that and say, we need to do something about this polluted area where I’m living. And so those are the kinds of things that I discuss with my patients. Take charge of your health in every aspect.

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