• Join Our Newsletter
Donate
  • A
  • A
  • A
  • Patient Empowerment Network
    • Facebook
    • Twitter
    • Pinterest
    • LinkedIn
    • Instagram
    • Youtube
    • For Patients
      • Blood Cancers
        • Leukemia
          • Acute Myeloid Leukemia (AML)
          • Chronic Lymphocytic Leukemia (CLL)
        • Lymphoma
          • Non-Hodgkin Lymphoma (NHL)
            • Diffuse Large B-Cell Lymphoma (DLBCL)
            • Follicular Lymphoma (FL)
            • Waldenström Macroglobulinemia
        • Myeloproliferative Neoplasms (MPNs)
        • Multiple Myeloma
      • Solid Tumor Cancers
        • Bladder Cancer
        • Breast Cancer
        • Colon Cancer
        • Gynecological Cancers
        • Head & Neck Cancer
        • Lung Cancer
        • Prostate Cancer
        • Renal Medullary Carcinoma (RMC)
        • Skin Cancer
        • Thyroid Cancer
      • General Cancer Information
        • All General Cancer Information
        • Health Policy Activity Guide
        • digital sherpa™
          • digital sherpa™
          • Digitally Empowered™
    • For Care Partners
    • For Providers/Professionals
      • Becoming Empowered
      • Empowering Providers to Empower Patients (EPEP)
        • Lung Cancer | Empowering Providers to Empower Patients (EPEP)
    • Events
    • Blog
    • About
      • Mission
      • 2023 Programs
      • Staff, Board, and Volunteers
      • Annual Report
      • The Value of PEN
      • Partners
    • Contact
    • Get Involved
      • Volunteer as an Empowerment Lead
      • Become a Donor or Fundraiser
      • Join the Board
      • Join Our Team
    • Donate
    • Search
    • Menu Menu
    What Resources Are Available for CAR T-Cell Therapy Care Partners

    What Resources Are Available for CAR T-Cell Therapy Care Partners?

    March 29, 2023/in Care Partner Programs, Care Partner Resources, Care Partner Resources Video, Care Partner TK, Care Partner TK Tools /by Kara Rayburn
    Bookmark (0)

    Please login to bookmark

    No account yet? Register

    What Resources Are Available for CAR T-Cell Therapy Care Partners? from Patient Empowerment Network on Vimeo. 

    Are there resources for CAR T-cell therapy care partners? Licensed clinical social worker Marc Paloma shares information about support resources that are provided to assist CAR T-cell care partners. Marc Paloma is an outpatient hematology/oncology clinic social worker at University of Chicago Medicine.

    See More from The Care Partner Toolkit: CAR T-Cell Therapy

    Related Resources:

    Expert Advice for CAR T-Cell Therapy Care Partners

    Expert Advice for CAR T-Cell Therapy Care Partners

    What Are Common Emotional Issues CAR T-Cell Therapy Care Partners Face

    What Are Common Emotional Issues CAR T-Cell Therapy Care Partners Face?

    CAR T-Cell Therapy Care Partners: What Questions Should You Ask the Healthcare

    CAR T-Cell Therapy Care Partners: What Questions Should Your Ask the Healthcare Team?

    Transcript:

    Katherine Banwell:

    Yeah. What resources are available for CAR T-cell therapy care partners? 

    Marc Paloma:

    So, I work with a variety of local and national organizations that do provide supports for CAR T partners. Some of the bigger national organizations would be like the American Cancer Society or The Leukemia & Lymphoma Society. They can link care partners with support groups for people who are doing caregiving for patients.  

    Sometimes you do have to do a little bit of research and I think now, especially kind of post-pandemic still, there’s a lot of things that are being done online or through Zoom. So, there – but I do notice, especially locally here in Chicago, things are kind of getting back to where there is some in-person meetings. So, support groups, I think from organizations I think also not only to it – this is something – these are things that support the patient and the care provider both.  

    And this is something whereas a social worker I can help, there are many different kinds of grant programs like in-kind actual money and funds that are available for CAR T recipients. And the care partners that can help them with cover the cost of transportation for all of their follow-up visits, or they are needing to live locally in lodging or hotels following their CAR T hospitalization. There’s a lot of organizations that can be tapped into that way to get financial assistance or financial help.  

    And I think lastly also the CAR T companies themselves, I mean, there are – when we started doing this, I can’t even remember here at the University of Chicago four or five years ago, maybe. There were just three or two CAR T companies that were offering CAR T, and now there’s over a dozen. And we do so many now and they’re all different. And as much as I can, I try. But there are CAR T companies that actually also offer patients and care partners that kind of in-kind, kind of support like assistance like financial assistance with food, with lodging, with travel.  

    So, those are all things, again, I mean that helps the patient, but that also very much is helping the care provider as well because they also need to make sure that their expenses are taken care of, so. I always whenever I’m doing the initial meeting with a patient and the care provider, I always say check back and it’s, again, it’s with their CAR T nurse coordinator, check back with your CAR T nurse coordinator.  

    See if the CAR T that you are doing, see if that company offers any kind of actual assistance with transportation or with your lodging or whatever. And their patients who are flying from other parts of the country who come here where they don’t realize that their CAR T program actually can cover the cost of their flights when they’re going back and forth. So, yeah. So, it’s things like that. 

    Tags: advocacy groups, American Cancer Society, CAR T-Cell Therapy, care partners, caregivers, financial assistance, food, Leukemia & Lymphoma Society, licensed clinical social worker, lodging, Marc Paloma, nurse coordinator, oncology clinical social worker, pharmaceutical companies, support groups, travel, University of Chicago Medicine
    Share this entry
    • Share on Facebook
    • Share on Twitter
    • Share on WhatsApp
    • Share on Pinterest
    • Share on LinkedIn
    • Share on Tumblr
    • Share on Reddit
    • Share by Mail
    https://powerfulpatients.org/pen/wp-content/uploads/What-Resources-Are-Available-for-CAR-T-Cell-Therapy-Care-Partners.png 600 600 Kara Rayburn https://www.powerfulpatients.org/pen/wp-content/uploads/New-Logo-300x126.png Kara Rayburn2023-03-29 14:11:552023-03-29 14:29:49What Resources Are Available for CAR T-Cell Therapy Care Partners?
    You might also like
    What Is Myeloma CAR T-Cell Therapy?What Is Myeloma CAR T-Cell Therapy?
    How Can You Engage in Your Myeloma Treatment Decisions?How Can You Engage in Your Myeloma Treatment Decisions?
    Key Questions to Ask Your Myeloma Doctor About Induction TherapyKey Questions to Ask Your Myeloma Doctor About Induction Therapy
    How Does Immunotherapy Treat Myeloma?How Does Immunotherapy Treat Myeloma?
    Are Clinical Trials Too Risky: A Lung Cancer Expert Reviews the FactsAre Clinical Trials Too Risky? A Lung Cancer Expert Reviews the Facts.
    Trustworthy Resources to Help You Learn More About Lung CancerTrustworthy Resources to Help You Learn More About Lung Cancer

    Recent Posts

    • Transforming Your Social Media Presence: 5 Steps to Foster Inclusivity and Advocate for AllTransforming Your Social Media Presence: 5 Steps to Foster Inclusivity and Advocate for AllMay 26, 2023 - 10:37 am
    • AML Patient Profile: Jordan SupinoAML Patient Profile: Jordan SupinoMay 25, 2023 - 8:53 am
    • May 2023 Notable NewsMay 2023 Notable NewsMay 24, 2023 - 11:12 am
    • [ACT]IVATED Program LogoBecoming an Empowered and [ACT]IVATED After An Endometrial Cancer DiagnosisMay 23, 2023 - 3:34 pm
    • [ACT]IVATED Program LogoBecoming an Empowered and [ACT]IVATED Breast Cancer PatientMay 23, 2023 - 9:50 am
    Patient Empowerment Network
    SUBSCRIBE TO OUR NEWSLETTER DONATE

    CONNECT WITH US

    Ecologi 6mo Badge

    © 2023 Patient Empowerment Network, a 501(c)(3) Public Charity
    Inclusion Policy | Privacy Policy | Corporate Giving Policy
    Scroll to top