General Whole Patient Support Archives

Cancer can unleash a whirlwind of unexpected emotions and experiences for patients and care partners. You are more than just a patient; more than just a treatment plan.

Whether your concerns are physical, emotional, nutritional, or spiritual, we can help.

More resources for General Whole Patient Support from Patient Empowerment Network.

Complete Guide To Mindfulness

Suja JohnkuttyHi there ! I’m Suja Johnkutty, MD a conscientious mom and neurologist . My one simple goal is to provide you honest, practical, simple action steps to experience better relaxation in your life. https://betterrelaxation.com

About the New Normal

This podcast was originally published by BBC You, Me & the Big C on 13 September 2018, here.

 

In Rachael’s final podcast with Deborah and Lauren they discuss the ‘new normal’.

This term is commonly used by doctors and cancer communities when people are finding a sense of normality in their lives after diagnosis and treatment. Dr Liz O’Riordan, who has recurrent breast cancer, joins the #YouMeBigC girls to talk about her experiences.

This podcast was released at the request of Rachael and her husband Steve.

Treating Cancer Body Mind and Spirit

This podcast was originally published by WeHaveCancerShow.com by  on August 13, 2019, here.

By treating cancer by focusing on the body, mind and spirit, Dr. Rob Rutledge makes deep connections with his patients. During our conversation we discussed:

  • The profound impact Dr. Bernie Siegel’s book, Love, Medicine and Miracles had on him and how it helped him realize oncology was his calling.
  • The roles mindfullness, meditation and spirituality play in his life.
  • How he came to realize the importance of support groups.
  • Why focusing on the body, mind and spirit is so important to healing.
  • The three-day retreats that he and Dr. Timothy Walker facilitate.
  • The meaning and importance of integrative medicine.

Links Mentioned In the We Have Cancer Podcast

Healing and Cancer – http://healingandcancer.org/

Love, Medicine and Miracles by Bernie Siegel, M.D. – Love, Medicine and Miracles

The Healing Circle – https://thehealingcircle.ca/

Dr. Timothy Walker – http://healingandcancer.org/book-an-event/dr-timothy-walker/

Follow Healing and Cancer on Twitter – https://twitter.com/HealingNCancer

Follow Healing and Cancer on Facebook – https://www.facebook.com/HealingandCancerFoundation/

Follow Dr. Rob Rutledge on Twitter – https://twitter.com/robrutledgemd

 

Social Media for People With Cancer

This podcast was originally published by Cancer.net with Merry Jennifer Markham, MD, and Danielle Gentile, PhD, on March 5, 2019, here.

 

Dr. Merry Jennifer Markham and Dr. Danielle Gentile recently published a study in the Journal of Oncology Practice that describes potential benefits and drawbacks of people with cancer using social media. Today, we’re going to discuss with them some of the findings from their study, as well as what people with cancer should know about using social media and how it can provide support.

Transcript:

[music]

ASCO: You’re listening to a podcast from Cancer.Net (Cancer dot Net). This cancer information website is produced by the American Society of Clinical Oncology, known as ASCO, the world’s leading professional organization for doctors who care for people with cancer.

The purpose of this podcast is to educate and to inform. This is not a substitute for professional medical care and is not intended for use in the diagnosis or treatment of individual conditions. Guests on this podcast express their own opinions, experience, and conclusions. The mention of any product, service, organization, activity, or therapy should not be construed as an ASCO endorsement. Cancer research discussed in this podcast is ongoing, so the data described here may change as research progresses.

Monika Sharda: Hello. I’m Monika Sharda, an editor on the Cancer.Net team and your host for today’s podcast. In this episode, I will be talking with two guests about how cancer patients use social media. Our first guest, Dr. Merry Jennifer Markham is a hematologist at the University of Florida in Gainesville. Welcome, Dr. Markham.

Dr. Markham: Hi. Good morning. Thanks for having me.

Monika Sharda: We also have with us Dr. Danielle Gentile, who is a researcher at Levine Cancer Institute in Charlotte, North Carolina. Hi Dr. Gentile.

Dr. Gentile: Hi Monika. Thank you for having us this morning.

Monika Sharda: My pleasure. Drs. Markham and Gentile recently published a study in the Journal of Oncology Practice that describes potential benefits and drawbacks of people with cancer using social media. Today, I’m going to discuss with them some of the findings from their study, as well as what people with cancer should know about using social media and how it can provide support.

First off, I want to know what sparked your interest in studying social media and its use for people with cancer. Dr. Markham, let’s start with you.

Dr. Markham: Sure. So I have had an interest in social media for several years. And some of that stems from my own personal and professional use of social media, primarily platforms like Twitter. And one thing that I’ve noticed is that I’ve connected on Twitter with a lot of patient advocates and colleagues and sometimes people who identify themselves as patients, as well. And there’s a lot of searching for information that happens, I think, on social media. So that has really stemmed my interest in exploring it further as a potential tool for patients, as well as researchers and oncologists and other health professionals, to take advantage of what’s out there.

Monika Sharda: And what about you, Dr. Gentile?

Dr. Gentile: I’ll echo many of the things that Dr. Markham shared. And there’s ways to find so much information through social media, things that a person may not even be directly seeking. They can come across things indirectly and learn that way. So it’s quite interesting to see how people are able to make connections across the country and across the world with people who are in similar situations that they are. And social media is a way to gain some social support in ways that may not be possible in person. So if a person is not feeling well from their cancer diagnosis or treatments, they can reach out online. And through Twitter or Facebook, they’re able to meet others who can share in the experience with them.

Monika Sharda: So what I took away from your study is that social media can sort of be a double-edged sword. There’s potential benefits for patients, but then there are also potential drawbacks. So let’s start by talking about some of the pros. How can social media be helpful to patients?

Dr. Gentile: So there’s a few ways that patients can use social media to their benefit. And one is that it’s great for engagement and empowerment. So it provides a platform for patients to talk about their diagnoses, to search for information, digest what is happening in the world of cancer research as well. And through all of that information and connection with others, it can provide psychosocial support too. So those who are able to disclose some of their thoughts and their feelings and meet with others who share similar stories and are in the same boat, it can be helpful for them to make those connections.

Dr. Markham: I think that that source of support is really one of the invaluable pros to social media. I am a medical oncologist and see patients who have gynecologic cancers. And we live in an area where there’s not a lot of in-person access to support groups. I am never offended when my patients come to me with things that they’ve read on the internet because, unfortunately, it really is a resource that a lot of people rely on. And I think that when my patients are able to connect on social media to other patients with similar diagnoses or similar health experiences, it really allows me to have a better conversation with that patient in the exam room. She can bring me information about what she’s read or what she’s heard from a friend of hers across the country. And then we can have a conversation and I can take care of her better knowing what she knows.

Dr. Gentile: So another pro coming from me from a research perspective is that social media can be a valuable recruitment tool for researchers who are looking for demographics of patients that are pretty specific. So if you imagine a rare cancer diagnosis, it can be hard to find those patients in any small geographic area. But by using social media, those groups can cluster online. So it could be a Facebook support group for a certain diagnosis and a researcher could post on that group and ask if anyone is interested in a potential research study or a trial. And so it’s a way of connecting patients to opportunities to participate in research that their home oncologist and their support team may not be aware of.

Monika Sharda: Absolutely. And what are some of the cons? What should patients be cautious about when using social media?

Dr. Markham: I think one of the real risks of social media is misinformation. It’s very easy for false information or altered information to spread widely on social media, either Twitter or Facebook or otherwise. And sometimes it’s hard for people to distinguish what’s the good information, what’s a quality piece of research, or a true statement about health that can be trusted, versus what is myth and what’s not to be trusted. So distinguishing between good information and reliable health information is certainly one of the risks that I do worry about with, not just patients, but with their caregivers, and, truthfully, health professionals as well.

c And another, with all of that information that patients can find online, is they’re trying to decipher what’s good information, what’s misinformation, and what to act on. It can result in what we call information overload. And that’s when a person has gathered so much information that they become overwhelmed by the amount of the information and they’re not sure how to act on it. So it can lead to this feeling of paralysis or being stuck. And something that we recommend for that is always talking with the clinician. Like Dr. Markham said, she’s not offended when her patients bring her information they’ve learned online. And that’s one of the best resources to determine if information is worthy or not.

And I’ll share another potential con for social media and that is privacy concerns. So pretty much anything that goes onto the internet is for public use. And folks will think about their privacy filters. Do they want only their connections to see it? Do they want it to be widely, publicly available? But one can never be sure, even with those privacy filters, that their information won’t go somewhere they don’t intend it to. So if a person posts on Twitter in a private group thing that they have a certain diagnosis, it can never be for certain that someone in their daily social connections might see that. So anything a person posts online, I would advise make sure that’s something you feel comfortable with everyone knowing.

Monika Sharda: Going back to the idea of misinformation for a minute, you mentioned one way for it to help patients differentiate between what’s worthy information and isn’t is, of course, to talk with your oncologist about it. Talk with your healthcare team. Are there any other tips you can provide patients with how they can differentiate between reliable and unreliable information?

Dr. Markham: So I think looking for the source of information can be helpful. Information that’s put out by American Cancer Society or by ASCO or Cancer.Net, for example, is vetted by clinicians and physicians who, I think, lend some support to that information being trustworthy. There are other sources, such as the National Cancer Institute that shares information regularly on social media. I think it’s when there’s an article in a non-medical journal or not one of these professional organizations that is sometimes hard to see today whether it’s true or not true. And I think in those situations, it really is advisable for patients to take that information to their doctor, to ask more questions about it. I’ve encouraged my patients to go to certain resources online for information. And I’ve also encouraged them to bring me information that they want to know more about. And it’s not infrequent that I have my patients come to me with things that they’ve seen online, whether on social media or otherwise, and it allows us to have a good conversation about what’s true and what’s myth.

Dr. Gentile: It can also be important to think, “What is the motivation behind whomever has posted the certain piece of information?” So if it’s a reliable source, like ASCO or Dr. Markham is posting it, she is a hematologist, she is likely doing that because she wants to share the information for educational purposes and to help the lives of her patients. But there are plenty on social media who have profit motives for sharing information. So it might be some type of miracle cure where taking this product would completely take care of the cancer. And something my mom told me, is true in this situation: if it sounds too good to be true, it is. So be cautious and think about why a person might post something on social media.

Monika Sharda: Those are some really great tips. And Dr. Markham, I think it’s really great how you encourage your patients to talk with you about what they’ve read, what they’ve seen on social media and really encourage that conversation instead of them trying to figure out on their own whether the information that they’re seeing is worthy, is reliable. What would you say is the most effective way for patients to use social media to communicate?

Dr. Markham: So the most effective way, that’s a bit of a hard question because I think there’s probably multiple ways for patients to use social media. I think one reason that I like Facebook for health information, actually, is because there are a variety of groups that are closed and private that patients may discover for health information and, primarily, for support. So I think those are sometimes opportunities. The challenge of those, of course, is is there reliable information being shared. Some groups have healthcare moderators within them and some do not. So that is one of the risks of participating in a group. I think if a patient feels uncomfortable or overwhelmed, they should remove themselves from that situation.

I think on Twitter, there’s an opportunity to participate around hashtags. Hashtags are terms that you can plug into Twitter using the hashtag or pound sign with a phrase behind it, such as #breastcancer. And that is a good way of sort of filtering out information that’s targeted to that type of health problem. And there’s a lot of communities, actually, in the Twitter space built around these hashtags for healthcare where there are routine chats that may happen. Breast cancer actually has a good advocacy group on Twitter centered around the #bcsm, which stands for breast cancer social media. And there are physicians within that community and patient advocates and patients themselves. And it’s, I think, a good starting point for a patient who may be on Twitter and wants to connect with others who have similar interests or similar desires to connect.

Dr. Gentile: And I think it’s also important for any patient who wants to access social media in relation to their cancer diagnosis to spend some time before they enter these platforms and ask themselves, “What are they hoping to get out of the experience?” Is their primary motivation to get social support and meet others in social support groups, or is it looking for new, reliable information? Is it a mix of the two? And then, again, checking in with oneself periodically and asking, “Am I getting what I need, what I was intending to get?” For example, Dr. Markham was saying that if a person becomes uncomfortable or they find the situation overwhelming within social media, fielding many messages, then they can just remove themselves. And one should really go at their own pace and do what makes them feel comfortable and beneficial. There’s no real obligation to respond to folks if you’re not finding it to be beneficial.

Monika Sharda: For someone that’s not too comfortable with social media or has trouble finding relevant hashtags or Facebook groups, do you have any tips for them on how they can seek out these groups and what the relevant hashtags are for them?

Dr. Gentile: Sure. So I’d recommend that a patient get started with some platforms that they know are reliable, valid, good information sources. So, for example, Dr. Markham mentioned the #bcsm, breast cancer social media. And just starting with one hashtag or one support group on Facebook can lead a person down the line to other places to explore. So starting small and then branching out, I think, would be helpful for most cancer patients.

Dr. Markham: ASCO has some good resources, both for patients and for caregivers, I believe. There’s something called Social Media 101 for Patients that ASCO has published. So that’s a good starting point for people who may want to jump into social media period. Also, I think patients who are interested in finding groups may be able to reach out to their oncologist or other physicians to inquire if those physicians know of reputable groups that they could join.

What I find, though, is that a lot of the networking that my patients experience in social media has come from their online sort of word of mouth, which is a little harder to know about. Our social worker in my own clinic is sort of compiling a list of places where patients tend to congregate online so that she can point other patients in the right direction. But I think we still have a lot of work to do in this area to help really guide our patients well.

Monika Sharda: And that actually leads me to my next and final question. I was going to ask you to share some resources for patients to learn more about using social media safely and effectively. So you’ve already mentioned ASCO and the resources they have and also, talking to your healthcare team and your oncologist. Do you have any other resources that you can share?

Dr. Gentile: So I think those are probably two of the most important. I know that I have had patients who have reached out to organizations on social media, such as American Cancer Society and, probably, Cancer.Net may have had this experience as well, asking for information from those groups on who to recommend and how to approach things. So I think that Cancer.Net certainly has lots of good resources. But, really, I think ultimately, just conferring with a physician at the end of the day, to make sure that the space that is being found and using social media in a safe way as a patient, can be a discussion with the physician and patient together.

Monika Sharda: Right. Well, that’s all of the questions I have. Is there anything that, perhaps, we didn’t touch on already that you’d like to talk about?

Dr. Gentile: I’d like to say that it’s going to be different for every patient or every loved one who is caring for someone with cancer, when it comes to social media. And to feel okay with taking it at your own pace. And if you find that you have a piece of information that you are unsure about, the take-home message is to share that with your healthcare team and get that checked out. And to not make big decisions on how you’re going to care for yourself or your loved one solely based on a piece of information from social media.

Dr. Markham: I think that’s an excellent point. And the only other thing I would add is that social media can be scary for those who are just diving in, and I don’t think it necessarily has to be. It’s just a matter of taking it slow, at your own pace, as Dr. Gentile said. And just testing the waters.

Monika Sharda: That’s really great advice. Drs. Markham and Gentile, you’ve shared a lot of great tips with our listeners on using social media and provided additional resources where they can learn more about the topic. It’s been a pleasure having you on this podcast. Thank you so much for joining us today.

Dr. Markham: Thank you so much for having us.

Dr. Gentile: It’s been a great pleasure for me too.

ASCO: Thank you, Dr. Markham and Dr. Gentile. Find more resources on using social media at www.cancer.net. And if this podcast was useful, please take a minute to subscribe, rate, and review the show on Apple Podcasts or Google Play.

Cancer.Net is supported by ASCO’s Conquer Cancer Foundation, which funds breakthrough research for every type of cancer, helping patients everywhere. To help fund Cancer.Net and programs like it, donate at conquer.org/support.

 

Human Connection After a Cancer Diagnosis

This podcast was originally published by CureToday.org on August 15, 2019, by KRISTIE L. KAHL here.

In this week’s episode of the “CURE Talks Cancer” podcast, we spoke with a melanoma survivor about the importance of community and human connection to build hope after a cancer diagnosis.

Following his stage 3 melanoma diagnosis, Patrick called upon what he had learned to find hope. His first thought: Ok, what’s next?

In this week’s episode, we spoke with Patrick, who is now a three-year melanoma survivor, about the importance of community and human connection to build hope after a cancer diagnosis.

Sexuality During Cancer Treatment

This blog was originally published by Everyday Health by Diana Rodriguez on February 2, 2010, here.

You can still experience intimacy while undergoing cancer treatment. Understanding the changes you may be experiencing will help ease concerns about your sexuality.

Last Updated:  2/9/2010

Cancer treatment can have a huge impact on every aspect of your life, including your sex life. Although intimacy and sexuality may not be top priorities for cancer patients at first, as cancer treatment goes on, it’s likely to become an issue in your relationship. If you’re prepared for some possible changes in your body and your libido, you won’t be surprised by changes in your sex life.

Cancer and Sexuality: Intimacy Issues for Men

Cancer treatment may result in a number of different side effects, which will vary from person to person depending on the type of cancer and type of cancer treatment. Common sexual side effects that male cancer patients may experience during or following treatment include:

  • Low libido
  • Genital pain
  • Reaching orgasm too quickly
  • Nausea, fatigue, pain, and depression that can lead to sexual problems or loss of interest
  • Anxiety or concern about intimacy and sexuality, such as how you will perform or how you look
  • Infertility
  • Inability to release semen during orgasm
  • Erectile dysfunction
Intimacy issues for women will also depend on the type of cancer, its treatment, and the individual. Common sexual problems and concerns of female cancer patients during and after treatment include:
  • Low libido
  • Vaginal dryness
  • Pain during intercourse
  • Tightening of the vaginal muscles, preventing intercourse
  • Infertility and early menopause
  • Possible inability to have an orgasm if treatment has affected the spinal cord

For both men and women, some issues may only be temporary, like low libido and pain during intercourse. Other problems, like infertility, can be permanent. It’s important to discuss these potential long-term issues with your partner and your doctor to find out what can be done to alleviate them or find alternatives, like adoption or freezing eggs or sperm in case of infertility.

Cancer and Sexuality: Preparation and Communication

Many cancer patients may be unprepared for changes in their sexuality and sex life during or after cancer treatment, making these side effects or sexual problems more difficult to address. Before you undergo cancer treatment, talk to your doctor about possible long-term sexual side effects that you can anticipate and what steps can be taken to remedy them.

As you re-engage in sexual relations, be open to new types of sexual contact as well as new positions that may make intimacy more comfortable as well as more pleasurable. Keep in mind that you may need products like vaginal lubricant or moisturizer to help with intercourse.

A healthy sex life is an important part of a healthy relationship, but it is only one part. Communication is also necessary. Worrying about your sex life may only make any problems worse, so talk to your partner about your fears, concerns, and limitations. Realize, too, that there may have been problem issues in your sex life before you received a cancer diagnosis — your relationship might benefit from addressing any prior concerns now, as you and your partner return to intimacy.

Cancer Treatment Making you Feel Sick? Exercise Can Help!

This blog was originally published by Everyday Health by Denise Schipani on August 13, 2019, here.

Research has confirmed it: Staying physically active during cancer treatment can help you feel less tired and nauseous, tamp down anxiety and stress, and alleviate neuropathy pain.

Last Updated:  8/13/2019

 

For safety, you may want to consider exercising with a friend, caregiver, or trainer.
For safety, you may want to consider exercising with a friend, caregiver, or trainer.

If you’re being treated for cancer with chemotherapy, radiation, or both, you know how taxing this regimen can be. The side effects are well-known: fatigue, pain, nausea, and neuropathy (pain caused by nerve damage), not to mention stressdepression, and anxiety.

Exercise can help you cope, says the American College of Sports Medicine, which certifies cancer exercise trainers in a program it runs in collaboration with the American Cancer Society. Whether you have cancer or are a cancer survivor, exercise can have a positive affect on your body weight, overall fitness, muscle strength, flexibility, and quality of life.

Plus, it appears that exercising makes cancer treatment itself go more smoothly, with fewer side effects. Kerry Courneya, PhD, professor of kinesiology, sport, and recreation at the University of Alberta in Edmonton, Canada, has done numerous studies on the benefits of exercise for cancer patients. Remaining as active as possible during treatment, he notes, can prevent fatigue during and after treatment, and there’s evidence it can also alleviate depression, improve sleep quality, and lessen joint pain and lymphedema (the buildup of lymph fluids under the skin, typically caused by removal or damage to lymph nodes during cancer treatment).

Here’s more about what exercise can do for you during cancer treatment:

Ease Fatigue and Nausea

In a study published in June 2015 in the Journal of Clinical Oncology, researchers at the Netherlands Cancer Institute divided 230 breast cancer patients into three groups. The first group engaged in a moderate-intensity aerobic and strength program, guided by a trained therapist; the second group was assigned to a low-intensity program, done at home; and the third group did no exercise at all. The women in the first two groups, who exercised either a lot or a little, all experienced less fatigue, pain, and nausea during chemotherapy. The women who benefited the most — who were able to tolerate chemotherapy the best — were those in the moderate-intensity program.

Allay Anxiety and Stress

In a report published in June 2016 by the Norwegian Institute of Public Health, a review of more than 100 studies found that exercise can improve cancer patients’ overall quality of life during treatment. For another investigation, conducted in Taiwan, researchers enrolled 116 lung cancer patients in a home-based program in which participants walked for about 40 minutes, three days a week. The study, published in February 2015 in the British Journal of Cancer, concluded that even this moderate amount of exercise over the course of treatment reduced participants’ levels of anxiety and depression.

Alleviate Neuropathy Pain

Chemotherapy-induced peripheral neuropathy (CIPN) is a form of nerve damage that includes burning pain, tingling, numbness, and sensitivity to cold in the hands, feet, or other parts of the body. In a study published in May 2016 in the Journal of Clinical Oncology, researchers randomly assigned patients receiving chemotherapy treatment to either an exercise or no-exercise group. The exercisers did a six-week at-home walking program, supplemented by gentle resistance training, and ultimately reported fewer symptoms of neuropathy.

Prevent Lymphedema

Lymphedema is swelling caused by a build-up of lymph fluid and is a common side effect of cancer surgery, specifically the removal of cancerous or potentially cancerous lymph nodes. Women who’ve had underarm lymph nodes removed as part of treatment for early breast cancer are at risk for this complication (the risk goes up with the number of nodes removed), and doctors often advise them to avoid exercises such as lifting weights.

Unfortunately, this recommendation runs counter to the findings of the Physical Activity in Lymphedema Trial, published in the journal Contemporary Clinical Trials. For this study, women who’d had lymph-removal surgery undertook a year-long program of supervised weight training. The results showed that women at high risk for lymphedema who lifted weights were 70 percent less likely to develop the condition than women at similar risk who did not weight train.

Improve Overall Fitness and Ease Recovery

Someone accustomed to a regular workout routine will find it frustrating to give up exercising during treatment, but even people who didn’t work out regularly before cancer will feel the negative effects of a suddenly sedentary lifestyle, says Robert Steigerwald, an exercise physiologist and certified cancer exercise trainer in Huntington, New York. Chemo and radiation may decrease your endurance, aerobic capacity, and muscle strength, which makes treatment tougher on you physically. Any amount you can work out, Steigerwald says, “puts you in a better place as you recover.”

The effects of exercise on cancer may have even more far-reaching impact, says Dr. Courneya. Researchers are investigating whether exercising improves responsiveness to treatment and long-term survival. “If exercise during treatment were shown to improve these cancer outcomes, I think that would be a game-changer,” Courneya says.

Advice to Keep in Mind Before You Lace Up

All cancers are different, as are all patients. Before you begin or resume exercising during treatment, be sure to talk to your oncologist or consult a cancer exercise trainer, and consider the following:

  • Allow for “down” days — scaling back your workouts, for instance, when you’re experiencing the worst side effects of treatments.
  • If you haven’t been regularly active before your diagnosis, begin with very low-intensity exercise; you might try taking a slow walk most days.
  • Avoid public facilities, such as pools or locker rooms, that may expose you to infection.
  • Avoid exercise or dramatically pull back if you are anemic (your red blood cell count is very low), neutropenic (your white blood cell count is very low), or thrombocytopenic (your platelet count is very low).
  • Consider exercising with a trainer, friend, or caregiver, for safety.
  • Stop working out and seek medical help if you become disoriented, dizzy, nauseated, short of breath, or feel any pain, such as muscle cramps or, particularly, chest pain.

 

Support Group Connector

This resource was originally published by CancerCare.org here.

Online Support Groups

Online support groups take place using a password-protected message board format (not live chat) and are led by professional oncology social workers who offer support and guidance. Groups are held for 15 weeks at a time, and group members must register to join. After completing the registration process (which can take up to 2-3 business days), members can participate by posting in the groups 24 hours a day, 7 days a week.

Begin the registration process

Already a member? Log in.

VIEW GROUPSMORE…

Telephone Support Groups

Connect with other people from across the country who share similar concerns in weekly, regularly scheduled, one-hour sessions.

VIEW GROUPSMORE…

Face-to-Face Support Groups

Led by CancerCare® oncology social workers at our offices in New York City, Long Island and New Jersey. Don’t live in the area? We can help you find face-to-face support groups in your own community.

VIEW GROUPSMORE…

To learn more about CancerCare’s telephone and face-to-face support groups or to register, call 800‑813‑HOPE (4673).

My Life Line

This resource was originally published by My Life Line.org here.

Transforming the cancer experience through community and connection

Connect with Others Like You

  1. Join our discussion boards
  2. Find support and hope
  3. Exchange information, opinions, and stories
  4. Moderated by a licensed professional
  5. Available 24 hours/day, 7 days/week

Living with Cancer

Find resources on financial issues, health insurance, treatment options, clinical trials, diagnoses, nutrition, and much more.

Keep Your Friends & Family Informed & Involved

  1. Connect through your private community website
  2. Interactive blog to document your cancer journey
  3. Events & volunteers on the Helping Calendar
  4. Assign Care Coordinators to help manage your site

Privacy Controls

Ensure the right people have access to comments, volunteer to help you, send you private messages and see your discussion posts.

33K+

Active Members

1600+

Annual Volunteers

15K+

Annual Member Updates

1000+

Discussion Board Supporters

My Care Activator ™

This resource was originally published by Cancer.com here.

My Care Activator™ Taking a proactive role in your health is important. My Care Activator™ is an interactive resource that uses information about your health and habits to provide support when you need it most.

STEP 1: Set your Cancer.com preferences to unlock access to My Care Activator™.

Set Your Preferences Now  If you already set your Cancer.com preferences, access My Care Activator™ now.

STEP 2: My Care Activator™ will ask questions in order to tailor a program focused on your needs to build skills in the following areas:

– Coping With Symptoms
– Handling Emotions
– Learning to Relax
– Working With Your Care Team
– Getting Better Sleep

– Building Support
– Asking for Help
– Living With Purpose
– Getting Moving

To support your progress, My Care Activator™ gives you Action Steps—think of them as exercises or tips and tricks to take better care of yourself.

Your program will include skills to help you cope with symptoms and live a more fulfilling life.

Your To-Do List helps keep you on track with your Action Steps.

Unlock
My Care
Activator

Get access to My Care Activator™, an exclusive support program to help with your unique challenges.

Start Now

Dealing with Hair Loss

This video was originally published by Macmillian.org here.

We have ideas and information about wigs, hats, scalp care and more to help you deal with hair loss.

In these videos, people with experience of cancer and hair loss share their stories. You can also watch tutorials on wigs, headwear and eye make up.

Wigs

Wigs may help you cope with hair loss. There are many different styles and colors available.

Pain Control Support For People with Cancer

This video was originally published by National Cancer Institute on February 14, 2018, here.

 

Cancer patients and members of their health care team discuss the issues and steps for keeping cancer pain under control. You will learn how to manage cancer pain, how to talk with the healthcare team, the different medicines and methods available, and other ways to get comfortable, taking attention away from pain. The video was produced as a supplement to the NCI booklet, Pain Control, http://www.cancer.gov/cancertopics/co… To learn more about the physical effects of cancer, please visit: http://www.cancer.gov/cancertopics/co… To view NCI’s Pain PDQ, please visit: http://www.cancer.gov/cancertopics/pd…

Healthy Eating, Active Living Videos

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