On April 24, 2021 Summer Golden and Jeff Bushnell—beloved PEN Managers—hosted a virtual comedy show to benefit the Patient Empowerment Network featuring comedians who have journeyed through cancer. In order of appearance: Summer Golden, Laura Hiltz, Josie Leavitt, Kat McCoy, Karin Tausan, and Mickey Zeichick.
MPN Network Manager Summer who lives with myelofibrosis and her care partner Jeff discuss the importance of not putting your life on hold. Summer continues to work on her comedy routine and Jeff has been enjoying ZOOM photography classes. Watch to hear how else Summer and Jeff continue to make the most of life despite any challenges that may present itself.
“We have not put our lives on hold during COVID or as a result of Summer’s MF diagnosis. Our challenge to you is to do the same.”
Want to connect with Jeff and Summer? Email them at firstname.lastname@example.org
What is the most important aspect of being a good care partner? MPN Network Managers, Jeff and Summer give tips on best practices for being a phenomenal care partner. Jeff breaks down his strategy for managing Summer’s myelofibrosis, including modifying their schedules due to Summer’s fatigue.
Most important tip?
Jeff: “To be a good caregiver, you have to take care of yourself.”
Want to connect our MPN Network Managers, Jeff and Summer? Email them, email@example.com
MPN managers Summer and Jeff share tips for keeping busy during a crisis. They both share how exercise, scrapbooking, and zoom improvisational theater has kept them occupied.
Summer, who lives with myelofibrosis, shares her experience with getting her regular blood draw and some of the new procedures in place allowing her visit to be smooth.
How are you keeping busy? Let Summer and Jeff know: firstname.lastname@example.org