How to Be a Good Care Partner 101

How to Be a Good Care Partner 101 from Patient Empowerment Network on Vimeo.

 What is the most important aspect of being a good care partner? MPN Network Managers, Jeff and Summer give tips on best practices for being a phenomenal care partner. Jeff breaks down his strategy for managing Summer’s myelofibrosis, including modifying their schedules due to Summer’s fatigue.

Most important tip?
Jeff: “To be a good caregiver, you have to take care of yourself.”

Want to connect our MPN Network Managers, Jeff and Summer? Email them, question@powerfulpatients.org

MPN Patient and Care Partner Share the Importance of Staying Positive and Setting Goals

MPN Patient and Care Partner Share the Importance of Staying Positive and Setting Goals from Patient Empowerment Network on Vimeo.

In the midst of a crisis, it’s quite difficult to set goals. With so much changing rapidly, how can we keep focus?

PEN MPN Network Managers Jeff and Summer share tips for tapping into resilience, keeping focus and setting goals. Both share their rituals for staying focused and having fun.

Want to connect with Jeff and Summer? Email them at question@powerfulpatients.org

Cancer Patient and Care Partner Tips for Keeping Busy During A Pandemic

Cancer Patient and Care Partner Tips for Keeping Busy During Pandemic from Patient Empowerment Network on Vimeo.

MPN managers Summer and Jeff share tips for keeping busy during a crisis. They both share how exercise, scrapbooking, and zoom improvisational theater has kept them occupied.

Summer, who lives with myelofibrosis, shares her experience with getting her regular blood draw and some of the new procedures in place allowing her visit to be smooth.

How are you keeping busy? Let Summer and Jeff know: question@powerfulpatients.org

Service as Medicine: Cheer Someone Else Up and Cheer Yourself Up

Service as Medicine: Cheer Someone Else Up and Cheer Yourself Up from Patient Empowerment Network on Vimeo.

MPN Network Managers, Summer and Jeff sheltering in place from San Diego, California, challenge listeners to be less consumed with worry by looking at service as medicine. They share how their theater programs, mentoring others and church activities have empowered them to give more of themselves and focus on the positive.

What activities do you enjoy that help you serve others? Share it with Jeff and Summer! question@powerfulpatients.org

How Can MPN Patients Amplify Their Voice?

How Can MPN Patients Amplify Their Voice? from Patient Empowerment Network on Vimeo.

MPN Network Managers Jeff Bushnell and Summer Golden, a husband and wife team, share how they cope with a diagnosis of myelofibrosis. Both highlight the importance of patients and care partners amplifying their voice as part of the coping process.

The Importance of Living in the Moment

The Importance of Living in the Moment from Patient Empowerment Network on Vimeo.

Jeff Bushnell and Summer Golden, MPN Network Managers at the Patient Empowerment Network share the importance of truly living in the moment. Summer shares how Betty Boop, her pink poodle, was diagnosed with lymphoma. Fortunately, Betty was able to pull through, emerging as resilient. Both Jeff and Summer were inspired by Betty Boop, to redefine what it means to live in the moment. They both share how living in the moment has allowed them to cope with Summer’s diagnosis of Myelofibrosis.

What activities keep you living in the moment? Share it with Jeff and Summer! question@powerfulpatients.org

Meet Our MPN Network Managers: Jeff and Summer

Meet Our MPN Network Managers: Jeff and Summer from Patient Empowerment Network on Vimeo.

Our MPN Network managers, Summer Golden and Jeff Bushnell of San Diego, California, discuss how a diagnosis of myelofibrosis–a rare blood cancer of the bone marrow–almost derailed their lives. Jeff and Summer share how transforming their fears, using comedy as medicine and becoming more knowledgeable about myelofibrosis led to them becoming more empowered partners in care.