Tag Archive for: PEN Partner

Marguerita Holistic Health Center

Marguerita Holistic Health Center (M2HC) is a non-governmental organization based in Yaoundé, Cameroon. Their mission is to alleviate the suffering of individuals, affected by various diseases, through health, psychosocial, economic, educational, sports and recreational support; to carry out integrated and comprehensive interventions for individuals, and to promote solidarity and living together.

Learn More About Marguerita Holistic Health Center

 

 

Side Effect Support LLC (SES)

Side Effect Support LLC (SES) is an online resource dedicated to improving the comfort and overall well-being of those with cancer through a focus on oral health and the management of side effects in the mouth. SES empowers patients, family caregivers, and healthcare providers with information and access to products and services to proactively address oral side effects and improve quality of life during the treatment process and throughout survivorship.

National Coalition for Cancer Survivorship (NCCS)

National Coalition for Cancer Survivorship’s (NCCS) mission is to advocate for quality cancer care for all people touched by cancer.  Founded by and for cancer survivors, NCCS created the widely accepted definition of survivorship and defines someone as a cancer survivor from the time of diagnosis and for the balance of life. NCCS has worked with legislators and policy makers to represent cancer patients and survivors in efforts to improve their quality of care and quality of life after diagnosis. Their vision is to be an advocacy organization that reflects the needs of all cancer survivors to effect policy change at the national level. NCCS represents the millions of Americans who share a common experience – the survivorship experience – living with, through and beyond a cancer diagnosis. That experience has value and can be a transforming, positive force. NCCS also knows that cancer survivors and those who care for them face many challenges.

NCCS Resources

Survivorship Checklist

NCCS Survivorship Checklist

Cancer Policy Advocacy Team

Alira Health

Alira Health is a global healthcare firm whose mission is to humanize healthcare and life sciences in partnership with patients. We provide consulting and clinical services enabled by technology and real-world evidence. From development to medical care, we complement the expertise of our Pharma, Biotech, and MedTech clients with a full spectrum of services across their entire solutions lifecycle.

Patients Rising

Patients Rising partners with The Patient Helpline to provide patient support and navigation services.

The Patient Helpline is a patient support and navigator program that provides online, email, and phone support to help connect patients to the services they need.

The Patient Helpline is here to help patients, caregivers, and allies find solutions when they are not sure how to find them on their own. The services may be out there; the Navigators can help people find them.

The Patient Helpline can…

  • Find an organization that specializes in addressing your specific concern at the federal, state, or local level
  • Give you websites and phone numbers to problem-solving agencies
  • Share the solutions that have already been proven to help others
  • Listen with care and compassion to your need

The Patient Helpline is a program of Patients Rising. Formed in 2015 as a 501(c)3, Patients Rising has developed a significant following of over 110,000 patients and caregivers and has guided more than 25,000 of them on their journeys to advocate for themselves and their loved ones to get the care and treatments they need to live a fulfilling life.

Stuck? Call 800-685-2654 or email HELP@patientsrising.org

Visit THE PATIENT HELPLINE

Bright Spot Network

Bright Spot Network provides support to young parents and guardians who have cancer, as well as their partners, children, and loved ones. We offer a safe space for support and connection through programming that includes:  virtual support groups for parents and partners, connections for kids, tools to talk with kids about cancer, webinars, and web based educational resources.  Our programs are offered at no cost and available to all families living in the U.S.

Savor Health

Savor Health is a digital health company that provides precision nutrition interventions to cost effectively manage and reverse chronic disease.

Introducing Ina®

The Intelligent Nutrition Assistant from Savor Health®

Personalized clinically and contextually appropriate nutrition and symptom management interventions 24/7 “on demand” via SMS text.  Developed by oncology-credentialed medical experts to help cancer patients stay on treatment, prevent and manage side effects, and feel strong throughout the cancer journey.

  • Access to the knowledge of oncology-credentialed medical experts
  • Safe, secure, and free!

Learn More OR Register for Ina®https://adpen.savorhealth.com/portal/

MyCancerHaven

Worth the Wait

Worth the Wait eases the financial burden for young adult cancer survivors preserving fertility pre- and post-treatment and starting a family through adoption, IVF, IUI or gestational surrogacy.

Vision

To provide hope and emotional and financial support to EVERY young adult cancer survivor with dreams of parenthood.

Cactus Cancer Society

Cactus Cancer Society’s mission is to provide a safe space where young adults (ages 18-45) facing cancer can connect, cope, and thrive with one another in an online community through creativity and expression. Our vision is to end isolation among young adults facing cancer.

RMC Alliance

The RMC Alliance is a non-profit organization that brings together expert clinicians, researchers, and patient advocates, to better understand how and why renal medullary carcinoma (RMC) occurs, and to develop better strategies to screen for, diagnose, and treat this deadly disease.

The goals of the RMC Alliance are:

  • To support renal medullary carcinoma research.
  • To educate clinicians, patients, and caregivers about renal medullary carcinoma.
  • To organize regular meetings designed to accelerate progress in understanding and treating of renal medullary carcinoma.

The Aplastic Anemia and MDS International Foundation

The Aplastic Anemia & MDS International Foundation (AA-MDS) is the world’s leading nonprofit health organization dedicated to supporting patients and families living with aplastic anemia, myelodysplastic syndrome (MDS), paroxysmal nocturnal hemoglobinuria (PNH),  and related bone marrow failure diseases. The Foundation provides answers, support, and hope to thousands of patients and their families around the world.

ASCP Patient Champions

ASCP Patient Champions educates patients and caregivers about the role of the laboratory in patient care, so they can leverage that knowledge to ensure they are choosing the treatments that work best for them. When patients have more insight into their laboratory and pathology results, they can better participate in their own care. ASCP Patient Champions use that knowledge and insight to advocate for themselves and share what they’ve learned to help others do the same, ultimately creating optimal health care for all.

Canadian MPN Network

The Canadian MPN Network was founded in 2014. Their purpose as an organization is to connect and help Canadians from coast to coast to coast who are dealing the challenges of living with a myeloproliferative neoplasm (MPN) disorder.

Vision

Better lives for all Canadians with a Myeloproliferative Neoplasm (MPN) disorder.

Mission

They are a patient-led organization committed to improving the lives of all Canadians living with myeloproliferative neoplasms through patient advocacy, patient support groups, and patient communication while connecting with the MPN medical community and providing up-to-date information on research, treatments and clinical studies.

Goals

  • Patient communication: Provide reliable and accurate information about MPNs for Canadian patients through many platforms.
  • Patient advocacy: Inform healthcare decision-makers about MPNs and the needs of Canadians living with them.
  • Annual conference: Hold an annual conference that will allow Canadian patients to connect with other patients and medical experts.
  • Regional support groups: Encourage the development of patient groups in every region of Canada.
  • Collaboration with MPN medical community: Engage the Canadian MPN medical community to provide patient perspective and seek collaboration on effective communications.

CanCare

CanCare, Inc. is a 501 (c)(3) nonprofit organization that provides one-on-one, personal support to cancer patients and their loved ones by matching them with a survivor or caregiver of the same type of cancer they are experiencing. CanCare’s services are confidential and provided without charge.