The Aplastic Anemia & MDS International Foundation (AA-MDS) is the world’s leading nonprofit health organization dedicated to supporting patients and families living with aplastic anemia, myelodysplastic syndrome (MDS), paroxysmal nocturnal hemoglobinuria (PNH), and related bone marrow failure diseases. The Foundation provides answers, support, and hope to thousands of patients and their families around the world.
PEN Partner Archives
Abridge is an organization that produces audio-based solutions that record and summarize medical conversations, anywhere care happens. Their mission is to bring context and understanding to every medical conversation so people can stay on top of their health.
AceCancer‘s mission is to empower all cancer patients to be their own best advocate to improve outcomes. You can manage your cancer journey with AceCancer by tracking key health indicators, logging symptoms, and setting up an assistant to keep your personal community and doctor informed.
Advocates for Community Wellness Inc. is a faith-based organization with a mission of reducing barriers to health equity and increase health literacy for underserved populations by helping to identify risk factors linked to chronic illnesses through the education of healthy lifestyles, fitness and proper nutrition.
Founded in 1902, the American Urological Association (AUA) is a premier urologic association, providing invaluable support to the urologic community. Our mission is to promote the highest standards of urological clinical care through education, research and the formulation of health care policy.
Association of Community Cancer Centers: ACCC
The Association of Community Cancer Centers (ACCC) is a powerful community of more than 28,000 multidisciplinary practitioners and 2,100 cancer programs and practices nationwide.
Founded in 1974, ACCC brings together healthcare professionals across all disciplines in oncology to promote quality cancer care. It is estimated that 65 percent of the nation’s cancer patients are treated by a member of ACCC.
Members rely on ACCC for education and advocacy support in adapting and responding to complex changes and challenges in the delivery of quality cancer care. ACCC provides resources on operations and management for programs and practices, reimbursement issues, policy and regulatory changes at the state and national levels, trends in cancer care, integrating new technologies and therapies, and more.
The Bladder Cancer Advocacy Network (BCAN) is a community of patients, caregivers, survivors, advocates, medical and research professionals united in support of people impacted by bladder cancer. BCAN is on the front-lines advocating for greater public awareness and increased funding for research to identify effective treatments and eventually, a cure for bladder cancer.
CanCare, Inc. is a 501 (c)(3) nonprofit organization that provides one-on-one, personal support to cancer patients and their loved ones by matching them with a survivor or caregiver of the same type of cancer they are experiencing. CanCare’s services are confidential and provided without charge.
The main goal of the Cancer Awareness Network for Children (CAN) is a nonprofit organization dedicated to eliminating and diminishing some of the fears associated with the diagnosis of cancer for people of all ages. CAN is designed to inform, motivate, and educate individuals assisting in an effective and positive health care experience.
Cancer Can’t is a non profit organization started by a cancer patient named Jonathon Van Kuelen and his wife, Becky Van Keulen. Their mission is to help people fighting cancer in the Inland Northwest by improving their daily lives and circumstances. Jonathan has since passed away, but Becky continues to work with Cancer Can’t making sure Jonathan’s vision of helping other patients comes to fruition.
Cancer Commons is a 501(c)(3) nonprofit founded by metastatic melanoma survivor Marty Tenenbaum, PhD that provides personalized action plans to metastatic cancer patients, while learning from every patient to help others urgently seeking answers.
The Global Resource for Advancing Cancer Education (GRACE) provides expert-mediated information on current and emerging cancer management options in order to empower patients, caregivers, and health professionals to become direct partners in cancer care
GRACE is a nonprofit organization that was developed as a means of improving the overall medical care for cancer patients by democratizing cutting edge information on optimal cancer management and providing it directly to patients. We recognized that while there is an overwhelming amount of new information available to physicians, actually more than they could integrate, patients and their families often have a deep interest in their own care and often have the time and motivation to ensure that they are receiving the best treatment possible.
Cancer Research Institute is a 501(c)(3) nonprofit organization dedicated to harnessing the immune system’s power to control and potentially cure all types of cancer. They fund the most innovative clinical and laboratory research around the world, support the next generation of the field’s leaders, and serve as the trusted source of information on immunotherapy for cancer patients and their caregivers.