PEN Partner Archives

CLL Society

Mission:

The CLL Society Inc. is a patient–centric, physician–curated nonprofit organization focused on patient education, support and research. Dedicated to addressing the unmet needs of the (CLL) chronic lymphocytic leukemia and related blood cancer communities, we explain the rapidly changing therapeutic landscape and the importance of clinical trials, support and build patient networks, engage in research and educate providers and patients.

Vision:

We act to help shape a smarter, brighter future for those with CLL and related B cell blood cancers by encouraging and supporting smart patients, providers, clinical trials, research, healthcare delivery systems, and therapies.

Leukemia Research Foundation

Fund Worldwide Medical Research

Based on recommendations from our prestigious Medical Advisory Board, the LRF provides research grants to scientists around the world. The LRF exclusively funds New Investigators – individuals who are beginning to establish their own laboratories and are no longer under the tutelage of a senior scientist mentor. These one year grants are $100,000 each, an impressive amount that allows innovative scientists to act on their ideas, and try new procedures and experiments that will lead to significant breakthroughs.

Over the years, the LRF has funded hundreds of research scientists and projects on five different continents with our exclusive focus on New Investigators.

Patient Financial Assistance

The LRF’s Patient Financial Assistance Program provides support to patients and families struggling under the financial burden of a blood cancer diagnosis. The Program alleviates expenses not covered by insurance that may include doctor visits and co-pays, hospital care, laboratory work, and prescription expenses for transplant recipients.

Support Programs
The LRF conducts educational and support programs for patients, family members, caregivers and medical professionals. These conferences, including the Treatment Options for Blood Cancer Patients Conference, the Town Hall Meeting, and Town Hall Meeting in Spanish, are offered free of charge or registration. They provide opportunities for direct dialogue between patients and prominent hematology/oncology and transplant specialists to discuss treatment options and procedures.

American Urological Association

Founded in 1902, the American Urological Association (AUA) is a premier urologic association, providing invaluable support to the urologic community. Our mission is to promote the highest standards of urological clinical care through education, research and the formulation of health care policy.

Lung Cancer Research Foundation

 Mission

The mission of the Lung Cancer Research Foundation (LCRF) is to improve lung cancer outcomes by funding research for the prevention, diagnosis, treatment and cure of lung cancer.

 Vision

Our vision is a world free of lung cancer.

 History

We can accomplish more together than one of us can alone. That’s why LCRF has merged with like-minded organizations over the years. Here’s our history at a glance:

Diverse Health Hub

Diverse Health Hub bridges the gap between healthcare practices and the needs of multicultural communities. We answer unique questions through educational programs intended to strike a dialogue from diverse and global perspectives.
  • A learning channel that sources diverse knowledge and research in healthcare for underserved communities around the world.

  • Raising awareness  of health inequities through programs with medical experts, patients, key opinion leaders and community based organizations.

  • Diversify minds, diversify care through a series of community led events, community building and sharing of best practices.

MDS Foundation

The Myelodysplastic Syndromes Foundation was established by an international group of physicians and researchers to provide an ongoing exchange of information relating to MDS.

A major Foundation effort is the international information network. This network provides patients with referrals to Centers of Excellence, contact names for available clinical trials, sharing of new research and treatment options between physicians, and extension of educational support to physicians, nurses, pharmacists and patients.

In response to the needs expressed by patients, families, and healthcare professionals, they have established patient advocacy groups, research funding, and professional educational initiatives.

The MDS Foundation is a publicly supported organization, exempt from federal income tax under section 501(C)(3) of the IRS code.

HealthUnlocked

HealthUnlocked is the world’s largest social network for health, with 1 million members across the globe, and growing. We connect people with the same health conditions, where they can share experiences and get answers to questions about their chronic conditions and wellbeing needs – empowering people with knowledge for enhanced self-care.

Lazarex

Lazarex Cancer Foundation improves the outcome of cancer care, giving hope, dignity and life to advanced stage cancer patients and the medically underserved by providing assistance with costs for FDA clinical trial participation, identification of clinical trial options, community outreach and engagement. They provide resources for cancer patients who have been told they have no other options, but who are not yet done with their journey in life and refuse to give up.

  • Help patients of all ages and walks of life, with all forms of cancer.
  • Help patients take advantage of medical breakthroughs today, because they may not have a tomorrow.
  • Believe that the size of a patient’s bank account should not stand between them and the choices they make or the treatments they need.
  • Present clinical trials as an alternative to hospice care for those who want to remain engaged in their fight against cancer.
  • Aspire to improve cancer survival rates through screenings and early detection, with a focus on the medically underserved to address health disparities.

Health Content Collective

Health Content Collective specializes in developing content for online healthcare platforms. We work with brands to create high-quality, in-depth educational content, dynamic in-person and online events, and produce easy-to-understand marketing materials. Unlike an agency, Health Content Collective works directly with patients and caregivers, allowing us to better understand and assess their needs.

The Leukemia & Lymphoma Society

The Leukemia & Lymphoma Society (LLS) is the world’s largest voluntary health agency dedicated to blood cancer. The LLS mission: Cure leukemia, lymphoma, Hodgkin’s disease and myeloma, and improve the quality of life of patients and their families. LLS funds lifesaving blood cancer research around the world and provides free information and support services.

The Aplastic Anemia and MDS International Foundation

The Aplastic Anemia & MDS International Foundation (AA-MDS) is the world’s leading nonprofit health organization dedicated to supporting patients and families living with aplastic anemia, myelodysplastic syndrome (MDS), paroxysmal nocturnal hemoglobinuria (PNH),  and related bone marrow failure diseases. The Foundation provides answers, support, and hope to thousands of patients and their families around the world.

Moffitt Cancer Center

Moffitt Cancer Center has made a lasting commitment to the prevention and cure of cancer, working tirelessly in the areas of patient care, research and education to advance one step further in fighting this disease.

The Conference Forum

The Conference Forum is a life science industry research firm that develops conferences primarily around how to get therapeutics to patients faster. We examine and challenge the complex ecosystem of drug development and delivery, bringing good ideas together from a variety of sources to help advance clinical research with common goals that are patient-focused.

The Conference Forum presents strategic level conferences, both public and private, as well as developing focus groups and advisory boards for professionals in the life science and healthcare industries. We currently offer conferences for pharma/biotech professionals including R&D leaders, CEOs, business development/licensing, medical affairs/safety, chief patient officers/advocates, clinical innovation champions, investors and drug delivery specialists. We are committed to creating the best content, exchange of ideas and solutions among peers, as well as providing high quality networking.

Intake.Me

Founded in 2013, Intake.me is an innovative digital health company located in Los Angeles building a patient­ and doctor engagement platform that lets patients capture all their health matters and share it with their entire health care team. Health care consumers, such as patients and caregivers, can track symptoms, conditions, diagnoses and store medical records in their private Intake.me account. Health care professionals can request that data via an electronic intake record from their patients before the medical encounter so that the limited time at each visit can be used more effectively and support shared decision making. Intake.me’s mission is to empower all your health matters through technology, education, and community. Intake.me launched the fast-growing health education site, ePatient101.com, with e-learning classes on patient empowerment, caregiving, and chronic disease management. Intake.me also hosts the popular Empowered Patient Chat #patientchat on Twitter.

“At Intake.me we’re passionate about empowering people in their health. As a cancer survivor myself, I understand the burden placed on patients managing multiple doctor visits and hundreds of medical records, tests, prescriptions, and more. With Intake.me, you can capture and track all your health matters in your own private, secure account and share them with your healthcare team at check-in. Win-win for both doctor and patient!” – Darla Brown, Founder

Cancer Support Community

The Cancer Support Community is an international non-profit dedicated to providing support, education and hope to people affected by cancer. Likely the largest employer of psychosocial oncology mental health professionals in the United States, CSC offers a menu of personalized services and education for all people affected by cancer. Its global network brings the highest quality cancer support to the millions of people touched by cancer. These support services are available through a network of professionally-led community-based centers, hospitals, community oncology practices and online, so that no one has to face cancer alone.