PEN Partner Archives

AssistedLiving.org

AssistedLiving.org‘s mission is to collaborate with like-minded individuals, to provide effective solutions to real challenges impacting seniors everyday.

They believe that constant innovation based on scientific, intensive research can richly improve the quality of life for seniors for years to come. That’s why they foster a culture of that constantly pushes us to pursue innovation, by collaborating with industry influencers, experts, and caregivers.

CancerGRACE

The Global Resource for Advancing Cancer Education (GRACE) provides expert-mediated information on current and emerging cancer management options in order to empower patients, caregivers, and health professionals to become direct partners in cancer care

GRACE is a nonprofit organization that was developed as a means of improving the overall medical care for cancer patients by democratizing cutting edge information on optimal cancer management and providing it directly to patients. We recognized that while there is an overwhelming amount of new information available to physicians, actually more than they could integrate, patients and their families often have a deep interest in their own care and often have the time and motivation to ensure that they are receiving the best treatment possible.

Bag It

Mission

To educate, support, and empower those impacted by cancer.

Vision

Bag It’s vision is to provide every cancer patient with the Bag It resource bag. Our materials are designed to conquer fear through information and to empower patients to be more involved in their care and become self-advocates.

Each year Bag It provide tens of thousands of cancer patients with the Bag It bag. This one-of-a-kind resource includes select publications from the most respected organizations as well as the My Companion Guidebook, which gives patients a way to organize information. The Bag It bag includes information for patients with any type of cancer—at any phase of the treatment process, caregivers, and cancer advocates.

National Organization for Rare Disorders (NORD)

National Organization for Rare Disorders (NORD), a 501(c)(3) organization, is a patient advocacy organization dedicated to individuals with rare diseases and the organizations that serve them.  NORD, along with its more than 300 patient organization members,  is committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and patient services.

MyHealthTeams

MyHealthTeams creates social networks for communities of people facing chronic conditions (everything from Lupus and multiple sclerosis, to autism, breast cancer, and COPD). We believe that when people facing the same chronic condition are able to connect with and learn from each other, ask questions, get referrals and share tips with other people who personally understand what it’s like to face that condition, health outcomes improve. You’re not alone, and you don’t have to re-invent the wheel. In a few years time, we believe that if you’re diagnosed with a chronic condition your doctor will prescribe one of our social networks. The evolving healthcare system is not set up to provide the day-to-day validation, perspective and practical tips that patients can provide each other, and a growing body of evidence is showing that strong social patient networks lead to improved health outcomes.

The National Comprehensive Cancer Network® (NCCN®)

The National Comprehensive Cancer Network® (NCCN®) is a not-for-profit alliance of 31 leading cancer centers devoted to patient care, research, and education. NCCN is dedicated to improving and facilitating quality, effective, efficient, and accessible cancer care so patients can live better lives. Through the leadership and expertise of clinical professionals at NCCN Member Institutions, NCCN develops resources that present valuable information to the numerous stakeholders in the health care delivery system. By defining and advancing high-quality cancer care, NCCN promotes the importance of continuous quality improvement and recognizes the significance of creating clinical practice guidelines appropriate for use by patients, clinicians, and other health care decision-makers around the world.

World-renowned experts from NCCN Member Institutions diagnose and treat patients with a broad spectrum of cancers and are recognized for dealing with complex, aggressive, or rare cancers. NCCN Member Institutions pioneered the concept of the multidisciplinary team approach to patient care and conduct innovative research that contributes significantly to understanding, diagnosing, and treating cancer. NCCN programs offer access to expert physicians, superior treatment, and quality and safety initiatives that continuously improve the effectiveness and efficiency of cancer care globally.

CancerCare

CancerCare® is the leading national organization dedicated to providing free, professional support services including case managementcounselingsupport groupseducational workshopspublications and financial assistance to anyone affected by cancer. All CancerCare services are provided by oncology social workers and world-leading cancer experts.

Lung Cancer Initiative

Lung Cancer Initiative is the leading nonprofit in North Carolina that provides support to the lung cancer community by connecting patients, survivors, and loved ones with the medical and research community. Our mission is to advance survivorship and provide support to those affected by lung cancer through research, education and access programs.

Know AML

Know AML

Know AML is the first global acute myeloid leukemia (AML) awareness initiative.

Aims to direct patients, carers, families, and healthcare professionals to the available information, resources, and support they need to deal with AML.

Know AML collaborates with a vast global network of advocates, who together ensure that the AML community has access to the latest information and resources providing the best possible support and care for patients with AML and their families.

Tigerlily Foundation

Tigerlily Foundation

Tigerlily Foundation is a national breast cancer foundation providing education, awareness, advocacy and hands-on support to young women (15-45) – before, during and after breast cancer.

VISION

Tigerlily Foundation envisions a future where breast cancer diagnosis doesn’t inspire fear, but ignites hope for a future because:

  1. They inspire young women diagnosed with breast cancer to transform inside and out as they journey through treatment to live their best life going forward.
  2. They empower young women to be advocates for change
  3. Breast cancer will no longer be a terminal disease, but become a chronic disease that will someday be cured.
  4. They will end disparities – of age, stage and color, in our lifetime.

Through their programs, they seek to educate and empower women of all backgrounds, including those at heightened risk, those facing health disparities, and those with less access to care. They strive to improve the quality of life and end isolation among breast cancer survivors. Most importantly, they encourage and endeavor to empower fearless females in every stage of their journey, and to show them that they are not or alone, but are beautiful, strong like the tiger and the lily, and that they can be transformed – during and after breast cancer.

Association of Community Cancer Centers: ACCC

Association of Community Cancer Centers: ACCC

The Association of Community Cancer Centers (ACCC) is a powerful community of more than 28,000 multidisciplinary practitioners and 2,100 cancer programs and practices nationwide.

Founded in 1974, ACCC brings together healthcare professionals across all disciplines in oncology to promote quality cancer care. It is estimated that 65 percent of the nation’s cancer patients are treated by a member of ACCC.

Members rely on ACCC for education and advocacy support in adapting and responding to complex changes and challenges in the delivery of quality cancer care. ACCC provides resources on operations and management for programs and practices, reimbursement issues, policy and regulatory changes at the state and national levels, trends in cancer care, integrating new technologies and therapies, and more.

Lymphoma Research Foundation

The Lymphoma Research Foundation (LRF) is the nation’s largest lymphoma-focused health organization devoted to improving care through education and support services and improving outcomes through investment in the most promising lymphoma research. LRF’s mission is to eradicate lymphoma and serve all those impacted by this blood cancer.

Triage Cancer

Triage Cancer is a national, nonprofit organization that provides education on the practical and legal issues that may impact individuals diagnosed with cancer and their caregivers, through free eventsmaterials, and resources.

CLL Society

Mission:

The CLL Society Inc. is a patient–centric, physician–curated nonprofit organization focused on patient education, support and research. Dedicated to addressing the unmet needs of the (CLL) chronic lymphocytic leukemia and related blood cancer communities, we explain the rapidly changing therapeutic landscape and the importance of clinical trials, support and build patient networks, engage in research and educate providers and patients.

Vision:

We act to help shape a smarter, brighter future for those with CLL and related B cell blood cancers by encouraging and supporting smart patients, providers, clinical trials, research, healthcare delivery systems, and therapies.

Leukemia Research Foundation

Fund Worldwide Medical Research

Based on recommendations from our prestigious Medical Advisory Board, the LRF provides research grants to scientists around the world. The LRF exclusively funds New Investigators – individuals who are beginning to establish their own laboratories and are no longer under the tutelage of a senior scientist mentor. These one year grants are $100,000 each, an impressive amount that allows innovative scientists to act on their ideas, and try new procedures and experiments that will lead to significant breakthroughs.

Over the years, the LRF has funded hundreds of research scientists and projects on five different continents with our exclusive focus on New Investigators.

Patient Financial Assistance

The LRF’s Patient Financial Assistance Program provides support to patients and families struggling under the financial burden of a blood cancer diagnosis. The Program alleviates expenses not covered by insurance that may include doctor visits and co-pays, hospital care, laboratory work, and prescription expenses for transplant recipients.

Support Programs
The LRF conducts educational and support programs for patients, family members, caregivers and medical professionals. These conferences, including the Treatment Options for Blood Cancer Patients Conference, the Town Hall Meeting, and Town Hall Meeting in Spanish, are offered free of charge or registration. They provide opportunities for direct dialogue between patients and prominent hematology/oncology and transplant specialists to discuss treatment options and procedures.