The Aplastic Anemia & MDS International Foundation (AA-MDS) is the world’s leading nonprofit health organization dedicated to supporting patients and families living with aplastic anemia, myelodysplastic syndrome (MDS), paroxysmal nocturnal hemoglobinuria (PNH), and related bone marrow failure diseases. The Foundation provides answers, support, and hope to thousands of patients and their families around the world.
PEN Partner Archives
Abridge is an organization that produces audio-based solutions that record and summarize medical conversations, anywhere care happens. Their mission is to bring context and understanding to every medical conversation so people can stay on top of their health.
AceCancer‘s mission is to empower all cancer patients to be their own best advocate to improve outcomes. You can manage your cancer journey with AceCancer by tracking key health indicators, logging symptoms, and setting up an assistant to keep your personal community and doctor informed.
Advocates for Community Wellness Inc. is a faith-based organization with a mission of reducing barriers to health equity and increase health literacy for underserved populations by helping to identify risk factors linked to chronic illnesses through the education of healthy lifestyles, fitness and proper nutrition.
Founded in 1902, the American Urological Association (AUA) is a premier urologic association, providing invaluable support to the urologic community. Our mission is to promote the highest standards of urological clinical care through education, research and the formulation of health care policy.
ASCP Patient Champions educates patients and caregivers about the role of the laboratory in patient care, so they can leverage that knowledge to ensure they are choosing the treatments that work best for them. When patients have more insight into their laboratory and pathology results, they can better participate in their own care. ASCP Patient Champions use that knowledge and insight to advocate for themselves and share what they’ve learned to help others do the same, ultimately creating optimal health care for all.
Association of Community Cancer Centers: ACCC
The Association of Community Cancer Centers (ACCC) is a powerful community of more than 28,000 multidisciplinary practitioners and 2,100 cancer programs and practices nationwide.
Founded in 1974, ACCC brings together healthcare professionals across all disciplines in oncology to promote quality cancer care. It is estimated that 65 percent of the nation’s cancer patients are treated by a member of ACCC.
Members rely on ACCC for education and advocacy support in adapting and responding to complex changes and challenges in the delivery of quality cancer care. ACCC provides resources on operations and management for programs and practices, reimbursement issues, policy and regulatory changes at the state and national levels, trends in cancer care, integrating new technologies and therapies, and more.
The Bladder Cancer Advocacy Network (BCAN) is a community of patients, caregivers, survivors, advocates, medical and research professionals united in support of people impacted by bladder cancer. BCAN is on the front-lines advocating for greater public awareness and increased funding for research to identify effective treatments and eventually, a cure for bladder cancer.
The Canadian MPN Network was founded in 2014. Their purpose as an organization is to connect and help Canadians from coast to coast to coast who are dealing the challenges of living with a myeloproliferative neoplasm (MPN) disorder.
Better lives for all Canadians with a Myeloproliferative Neoplasm (MPN) disorder.
They are a patient-led organization committed to improving the lives of all Canadians living with myeloproliferative neoplasms through patient advocacy, patient support groups, and patient communication while connecting with the MPN medical community and providing up-to-date information on research, treatments and clinical studies.
- Patient communication: Provide reliable and accurate information about MPNs for Canadian patients through many platforms.
- Patient advocacy: Inform healthcare decision-makers about MPNs and the needs of Canadians living with them.
- Annual conference: Hold an annual conference that will allow Canadian patients to connect with other patients and medical experts.
- Regional support groups: Encourage the development of patient groups in every region of Canada.
- Collaboration with MPN medical community: Engage the Canadian MPN medical community to provide patient perspective and seek collaboration on effective communications.
CanCare, Inc. is a 501 (c)(3) nonprofit organization that provides one-on-one, personal support to cancer patients and their loved ones by matching them with a survivor or caregiver of the same type of cancer they are experiencing. CanCare’s services are confidential and provided without charge.
Cancer 101‘s mission is to empower, inform and engage patients and their care partners to navigate their cancer care and partner with their healthcare team to make informed decisions
To fulfill its mission, CANCER101, founded in 2002:
- Meets the cancer patient and caregiver on the front line to help guide next steps
- Personalizes the patient experience…one patient at a time through tailored education based on their personal preferences
- Provides innovative tools and resources patients and their families need to manage their cancer in partnership with their health care team
- Creates a comprehensive roadmap for patients by filtering the “garbage from gold” so that patients can access important information when they need it most
The main goal of the Cancer Awareness Network for Children (CAN) is a nonprofit organization dedicated to eliminating and diminishing some of the fears associated with the diagnosis of cancer for people of all ages. CAN is designed to inform, motivate, and educate individuals assisting in an effective and positive health care experience.
Cancer Can’t is a non profit organization started by a cancer patient named Jonathon Van Kuelen and his wife, Becky Van Keulen. Their mission is to help people fighting cancer in the Inland Northwest by improving their daily lives and circumstances. Jonathan has since passed away, but Becky continues to work with Cancer Can’t making sure Jonathan’s vision of helping other patients comes to fruition.