Have MPN Disparities Been Addressed by Institutions?
Have MPN Disparities Been Addressed by Institutions? from Patient Empowerment Network on Vimeo.
Have myeloproliferative neoplasm (MPN) disparities been addressed by institutions? Expert Dr. Idoroenyi Amanam from City of Hope explains MPN disparities that need to be improved, how institutions can collaborate on improvements, and how patients can advocate to lessen disparities.
[ACT]IVATION TIP:
“…we need to ask and understand the biology of different groups a bit better, and I would ask my provider, is your institution working towards that goal?”
Related Resources:
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MPN-Related Complications | Are BIPOC Patients at Higher Risk? |
Bone Marrow Registries | What Myeloproliferative Neoplasm Patients Should Know |
Transcript:
Lisa Hatfield:
So, Dr. Amanam, what can institutions do to better address racial and socioeconomic disparities in MPNs? And what has changed? Have there been improvements in that?
Dr. Indoroenyi Amanam:
Yeah, I think that along the lines of improving access to care and understanding what are the socioeconomic reasons for poor outcomes in specific groups, I do believe that from a scientific perspective, we have to understand why some specific groups have poor outcomes. So what are the biologic differences? And I do believe that centers should work together to get this understanding especially since MPNs are a rare disease. And each institution may not have the numbers to really be able to answer those questions. So my activation tip for this question is, we need to ask and understand the biology of different groups a bit better, and I would ask my provider, is your institution working towards that goal?
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