Empowered Patient Chats Archives

#patientchat Highlights – Patient Advocacy in Drug Development: What Role Does it Play?

Last week we hosted a “Patient Advocacy in Drug Development: What Role Does it Play?” #patientchat. The #patientchat community came together on Twitter for a lively discussion. Take a look at the top tweets and full transcript from the chat.

Top Tweets

What does patient-centered care mean to you?


What barriers have you observed to patient-centered care?


How can patient experiences, needs, perspectives, and priorities be incorporated into the drug development process?


How can drug developers collaborate with patient advocacy groups?


Full Transcript

#patientchat Highlights – Empowerment and Your Healthcare Team

Last week we hosted a “Empowerment and Your Healthcare Team” #patientchat with Teresa Hagan Thomas, PhD, RN (@TLHagan). The #patientchat community came together on Twitter for a lively discussion. Take a look at the top tweets and full transcript from the chat.

Top Tweets

How easy is it for you to speak openly with your healthcare team?


How does your healthcare team empower you to make decisions about your care?


How can you help to empower your healthcare team?


Full Transcript

#patientchat Highlights – How Can You Utilize Telehealth Services?

Last week we hosted a “How Can You Utilize Telehealth Services?” #patientchat with Diverse Health Hub (@DHealthHub). The #patientchat community came together on Twitter for a lively discussion. Take a look at the top tweets and full transcript from the chat.

Top Tweets

What are known misconceptions of telehealth services?


What barriers present themselves with telehealth services?


If anything, what can we do to address and help raise awareness about them?


Full Transcript

#patientchat Highlights – Wellness Matters: Risk-Reducing Care

Last week we hosted a “Wellness Matters: Risk-Reducing Care” #patientchat. The #patientchat community came together on Twitter for a lively discussion. Take a look at the top tweets and full transcript from the chat.

Top Tweets

Risk-reducing care? Health maintenance? Preventative care? What term for this topic resonates with you and why?


Connection


Aside from your physical health, how are you currently maintaining your emotional and mental health?


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#patientchat Highlights – Transforming Healthcare as a Patient Leader

Last week we hosted a “Transforming Healthcare as a Patient Leader” #patientchat with Seth Rotberg from @wegohealth. The #patientchat community came together on Twitter for a lively discussion. Take a look at the top tweets and full transcript from the chat.

Top Tweets

What does it mean to be a patient leader in the community?


Connection


Closing Thoughts 


Full Transcript

#patientchat Highlights – Are You an Empowered Survivor?

Last week we hosted a “Are You an Empowered Survivor?” #patientchat with Alicia Staley (@stales). The #patientchat community came together on Twitter for a lively discussion. Take a look at the top tweets and full transcript from the chat.

Top Tweets

Use What Resonates with You


Some Language Reinforces the Idea That Patients Have More Control Than They Do


What does resiliency regarding your mental and emotional health look like to you? 


Full Transcript

#patientchat Highlights – Being Intentional With Your Mental Health

Last week we hosted a “Being Intentional With Your Mental Health” #patientchat. The #patientchat community came together on Twitter for a lively discussion. Take a look at the top tweets and full transcript from the chat.

Top Tweets

Just a Bad Day


“You are Always Enough”


What does resiliency regarding your mental and emotional health look like to you? 


Full Transcript

#patientchat Highlights – Collaboration: Connecting and Empowering Patient Communities

Last week we hosted a “Collaboration: Connecting and Empowering Patient Communities” #patientchat with Amanda (@LAlupusLady). The #patientchat community came together on Twitter for a lively discussion. Take a look at the top tweets and full transcript from the chat.

Top Tweets

Working Together Encourages Support and Awareness


What Does Collaboration in Patient-Driven Communities Do?


How Can You Help a Collaborative Partner?


Full Transcript

#patientchat Highlights: What is Patient Advocacy?

Last week we hosted a “What is Patient Advocacy?” #patientchat. The #patientchat community came together on Twitter for a lively discussion. Take a look at the top tweets and full transcript from the chat.

Top Tweets

“You are your own best advocate.”


How can you maintain knowledge of community services and resources in your disease area?


Closing Thoughts


Full Transcript

#patientchat Highlights: Rare but Not Invisible: Finding Your Community

Last week we hosted a “Rare but Not Invisible: Finding Your Community” #patientchat. The #patientchat community came together on Twitter for a lively discussion. Take a look at the top tweets and full transcript from the chat.

Top Tweets

What Resources Have You Used to Find Your Community?


How do you use your community to improve your health or the health of those you love?


What are some of the challenges patients in your community face?


Full Transcript

#patientchat Highlights: Healthcare Trends: Are They Here to Stay?

Last week we hosted a “Healthcare Trends: Are They Here to Stay?” #patientchat. The #patientchat community came together on Twitter for a lively discussion. Take a look at the top tweets and full transcript from the chat.

Top Tweets

Health Equity


Telehealth


Lack of Access


Full Transcript

#patientchat Highlights: Ask Me Anything (AMA) with Marie Ennis-O’Connor

Last week we hosted an “Ask Me Anything (AMA)” Empowered #patientchat with Marie Ennis-O’Connor (@JBBC) where she answered everyone’s pressing questions about social media. The #patientchat community came together on Twitter for a lively discussion. Take a look at the top tweets and full transcript from the chat.

Top Tweets

Learn How to Create Professional Graphics


“Sharing can be used as medicine, mental health support, a tool to raise ur quality of life”


Practical information presented in human-centered language


Full Transcript

#patientchat Highlights: Genome-Wide Sequencing: What an Empowered Patient Needs to Know

Last week we hosted an Empowered #patientchat with GenCOUNSEL (@GenCOUNSEL_CA) titled “Genome-Wide Sequencing: What an Empowered Patient Needs to Know”. The #patientchat community came together on Twitter for a lively discussion. Take a look at the top tweets and full transcript from the chat.

Top Tweets

“Genetic counselors help patients know what they’re dealing with.”

Genetic Counseling Helps Patients and Families Feel More Empowered

What can stakeholders do to make genome-wide sequencing and genetics services more equitable and diverse?


Full Transcript

#patientchat Highlights: Vaccine Hesitancy: Let’s Talk About It

Last week we hosted a “Vaccine Hesitancy: Let’s Talk About It” Empowered #patientchat, the community came together on Twitter for a lively discussion. Take a look at the top tweets and full transcript from the chat.

Top Tweets

Concerns from Chronic Patients

“People are afraid of what they don’t understand.”

Coordinate Efforts with Community Leaders


Full Transcript

Let’s Talk Mental Health #patientchat Highlights

Last week we held an Empowered #patientchat discussion on “Let’s Talk Mental Health: How are you doing?”. The #patientchat community came together for a lively discussion and below are some highlights.

Top Tweets

Is anything worrying you at the moment?

Do you have tips for when someone is feeling overwhelmed or anxious?

“Be kind to yourself”

 


Full Transcript