Tag Archive for: healthcare professionals

Aïcha Diallo: Why Is It Important for You to Empower Patients?

 Why is it important to empower patients? Aïcha Diallo, MPH, CHES discusses her approach to patient empowerment, the benefits of engaging patients, and the importance of including care partners in informative conversations.

 

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Transcript:

Aïcha Diallo:

I empower patients by first defining empowerment and shared decision-making to them and their care partners. And I do this because when patients first hear the word cancer, nothing else makes sense, and they start feeling overwhelmed and even lost. So it’s very important to provide them information that is digestible and easy to comprehend, and making sure that they understand what it means to be empowered and having a seat at the table to effectively communicate with their healthcare teams so they get the equitable care they need.

It is essential for them to know that they are at the center of their care. They are the most important voice, they’re the leader and the CEO of their own care and their healthcare team. So for them to know that and to cherish that is very, very important. And I also want patients to know that the healthcare professionals are the experts at what they do, but they, the patients, are the experts at what they need, what they want, and who they are as unique individuals. So it’s important for them to remember that.

For me, empowering patients is also encouraging them to value this important role, and opening the door to engaging in shared decision-making by feeling comfortable to speak up about their care and being equipped to ask their healthcare professionals the right questions, share their goals and their concerns, because those matter as well. And being empowered is also involving their care partners in their decision-making process. You’ll hear me talk about care partners a lot alongside patients, because we want to celebrate them and emphasize that they are an important part of their loved one’s care, and often make the decisions with them or for them. So we always want to include them in the informative conversations to help make the best treatment decisions for patients living with cancer. 

Peer Insights | Cultural Humility Case Studies and Practical Applications

What are some cultural humility examples? PEN’s Aicha Diallo discusses the concept of cultural humility and provides real-world scenarios of healthcare provider reactions to perceptions about patients versus exercising cultural humility.

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Transcript:

Dr. Nicole Rochester:

What do real-world scenarios teach us about cultural humility? I have the pleasure of connecting with Aïcha Diallo, Vice President of Programs at Patient Empowerment Network to really dive into this topic. Aïcha, could you share some real-life scenarios or challenges where cultural humility comes into play in healthcare settings?

Aïcha Diallo:

First, I think it’s important to get a better understanding of what cultural humility is. As a healthcare professional, practicing cultural humility is taking a step back to say, I have a patient in front of me, or I’m interacting with a patient, and I don’t know who they are. So I’m going to take a step back. I won’t make any assumptions. I’m going to listen to them. I’m going to let them share with me who they are, where they’re from, what their needs are, and what’s going on in order to meet them exactly where they are and to understand who is sitting in front of you and be able to then engage in shared decision-making and coming up with the best treatment option for them. So really, taking the time to see the unique elements of your patients instead of automatically characterizing them can also demonstrate respect and can help healthcare professionals give their patients the care that they need and want.

For instance, a physician is seeing a patient and to him the patient looks Latina. The patient has an accent, and the doctor assumes that she doesn’t speak English and automatically requests medical translation services for her in Spanish. Come to find out that the patient is fluent in English, is not Latina, but is from North Africa. So in this scenario, if the physician had taken the time to really listen to their patient and ask more questions and not make any assumptions, it would have really helped them identify their patient’s needs during their diagnosis.

Another scenario that I have that we should always try to avoid is, for instance, a patient of color comes to their doctor’s appointment, and the doctor assumes that they live in a lower income neighborhood and may not have a high level of education. And with that, assumes and chooses not to share any information about clinical trials with them because they believe that they may not be able to access those resources.

So one of the things that I would encourage that we do is to work really hard to remove any biases that we have and to really continuously practice cultural humility with your patients and their families and really remember that we can all be on the same page even though we have different stories.

Dr. Nicole Rochester:

Thank you, Aïcha, for explaining what cultural humility is and for sharing those life scenarios. Can you talk about what these actions look like in reality, how can providers truly apply cultural humility in their daily practice?

Aïcha Diallo:

I think it’s important to identify any personal biases that you may have, reflect on your own identity, remember to treat your patients with respect, dignity, and empathy, and listen to them more, hear them out, find out who they are, what their needs are, what their goals are. Have conversations with them, it’s important to hear them share where they’re coming from and where they’re headed, and this will really help in terms of coming up with the best treatment option for them. I think it’s also important to participate in courses to educate oneself on the different aspects of cultural humility, and how do you integrate that within your daily practices.

I think it’s important to not confuse cultural competency with cultural humility and really understand that you cannot be an expert at somebody else’s culture, that you have to take a step back and be humble and really listen to them and let them tell you and share with you who they are and what really matters to them. I think it’s also important to avoid making any assumptions as you could entirely be wrong, unless the person shares with you exactly what is important to them and who they truly are. And don’t forget to show some interest in what your patients are saying. And remember to recognize and really celebrate the uniqueness of their backgrounds, of their trade, and really do see them as people. I think that’s very important.

Dr. Nicole Rochester:

Aïcha, thank you so much for, again, sharing your wisdom. You’ve taught us a lot about what cultural humility is, the difference between cultural humility and cultural competence, and some real-life scenarios that we can all take away and some tactics for truly applying cultural humility in our practice. Thank you so much.

Aïcha Diallo:

Thank you for having me.


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Peer Insights: Understanding Cultural Competence vs. Cultural Humility

Peer Insights: Understanding Cultural Competence vs. Cultural Humility from Patient Empowerment Network on Vimeo.

What’s the difference between cultural competence versus cultural humility? PEN’s Vice President of Programs Aïcha Diallo defines cultural competence and cultural humility, and she discusses why they are both vital in healthcare and advice for putting them into practice.

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Transcript:

Dr. Nicole Rochester:

Today we’re going to talk about the differences between cultural competence and cultural humility, are both essential for fostering inclusive and respectful environments in the patient-physician dynamic. I have the honor and privilege of connecting with the Patient Empowerment Network’s, Vice President of Programs, Aïcha Diallo. Such a pleasure to connect with you today, Aïcha.

Aïcha Diallo:

I’m very happy to be here. Thanks for having me.

Dr. Nicole Rochester:

Wonderful. So, Aïcha, you have been leading community awareness efforts as a public health practitioner for over 11 years. You are a respected voice on cultural humility in healthcare. Can you explain why understanding the concepts of cultural competence and cultural humility is essential for fostering inclusive and respectful environments. And before you go there, if you could clarify for the audience, what is the difference between cultural humility and cultural competence?

Aïcha Diallo:

Absolutely. So they’re both very important concepts, but cultural humility is really taking the time to understand and see the unique elements of your patient’s identity and experience that shapes exactly who they are. And it’s very important because it allows healthcare professionals to be able to listen, show respect, be humble, help give their patients the care and need they want. It also opens up a door for them and their patients to engage better and share decision-making. Now, when it comes to cultural competence, it is knowledge we’ve required through a course or a curriculum is something that as healthcare professionals, we have learned. 

So it almost feels like checking off a box. It tends to promote competence and expertise when we know that we can never really be experts at somebody else’s culture or personal history, experience, preferences, and even beliefs. Cultural competence, I have to say, tends to focus on the group trait as a whole. So it would specifically touch on the ethnic and racial backgrounds of a person, while cultural humility looks at the bigger picture, what is their race, ethnicity, age, gender, sexual identity, and more. So that’s the difference between cultural humility and cultural competence. But having both and practicing both as you are interacting with patients, care partners and their families is very important.

Dr. Nicole Rochester:

Wonderful. I appreciate that. I personally have challenges with the term cultural competence, and so I really appreciate you explaining those differences and how really humility, they’re both important, but humility is really that journey that we all should take.

Aïcha Diallo:

Absolutely.

Dr. Nicole Rochester:

So in terms of advice or recommendations for the providers that are watching, how do we operationalize this? What does cultural humility look like on a practical level?

Aïcha Diallo:

So on a practical level, it’s important for healthcare professionals to first identify their own cultural identities and biases. You have to know your own and what you’re coming with in order for you to be equipped to be better present for your patients. It’s important as well, to be honest about their lack of knowledge about a patient’s culture and experience. We cannot know everyone, so learning directly from them is very important. It’s also crucial to not make any assumptions. It’s important to listen, ask appropriate questions.

Again, be humble and respectful of everyone’s culture and experiences. And I would say really give your patients and their care partners or other family members that are in the room or came with them more time to share about themselves. This is a way that healthcare professionals are going to learn directly from their patients and know who they are and what their needs and wants are. I would also add educating oneself and learn about other cultures is another very important component to that.

Dr. Nicole Rochester:  

Thank you so much. So if I could summarize what you’ve said, it sounds like it’s important. Of course, we know to practice both, and competency is really that knowledge and education, but as you stated, sometimes it turns into kind of a check the box. I’ve reached the destination and we know that this is really something. There’s never any end point to this journey.

And in contrast, you shared that humility is really about learning, being open to learning, wanting to learn, taking the time, which we know we don’t have a lot of time in these encounters, but taking the time to actually learn about our patients and listening to what they share. And I also appreciate you sharing, it’s also identifying our own identities and biases. So thank you so much for being here and for illuminating this conversation.

Aïcha Diallo:

I would also add to this, that cultural humility is really taking a step back and saying, I don’t know, and I would love to hear more about you. I’m not sure what may be going on here or what you need to add or how I can better find out about your background. Would you like to share more? It’s really that humility piece that’s extremely important.

And that opens up that door, I would say, or leaves room on the table for the patient to also feel comfortable to be  sharing more and for them to come to a common ground in order to find the best treatment course for them or the best plan for them and meet them exactly where they are.

Dr. Nicole Rochester:

Meeting them, where they are. Thank you so much, Aïcha. I agree. 


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Dr. Samuel Cykert: Why Is It Important for You to Empower Patients?

Dr. Samuel Cykert: Why Is It Important for You to Empower Patients? from Patient Empowerment Network on Vimeo.

Why is it important to empower patients? Non-small cell lung cancer (NSCLC) expert Dr. Samuel Cykert from UNC School of Medicine discusses the Greensboro Health Disparities Collaborative and ways that he works to empower his patients.

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Transcript:

Dr. Samuel Cykert: Yeah, I think the most important thing in empowering patients is communication. First of all, on the explanation side, you have to communicate to the patient that I’m talking to you in normal English that you can understand. I’m not using medicalese to make it impossible for you to understand, so I’m communicating in a way where I’m making it digestible, and then the other thing I always do is I use a teach-back and I ask the patient to tell me what they’ve heard, I want to make sure that the patient can translate back to me the kinds of things that I’ve been saying, but even on top of that, I try to always talk to patients about their families and how their families are fitting in because family is so important in the decision-making process, and even having a family member at the discussion who’s supportive of treatment and care, I think can be another important factor. And I want to communicate that I’m listening, I want the patient’s questions, I want to encourage him or her to ask questions, so that this decision is shared.

Yeah, the only important thing is I did mention the Greensboro Health Disparities Collaborative, which is a community group, some of whom have experienced cancer, some of whom are teachers and UPS drivers, some of whom are healthcare professionals, and there are also patients of color and white individuals and it’s a group where the feedback, particularly in the context of a racial equity training, where everybody’s speaking the same language, their feedback on designing the interventions of the studies we’ve done, the feedback was crucial, and it was a matter of, we heard them, we heard the principles that they wanted to establish, and then we took those principles and used our expertise to translate them into the healthcare system, into the cancer care system. So I just want to say that talking to the community, particularly the community that experiences barriers, really important.

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