This resource was originally published by Cancer Care.org here.
CancerCare has partnered with LUNGevity, the nation’s leading lung cancer-focused nonprofit organization to provide the LUNGevity Lung Cancer Helpline: 844-360-LUNG (5864).
Find resources and support to manage your financial concerns. Limited assistance from CancerCare® is available to eligible families for cancer-related costs.
Connect with others in our free support groups led by oncology social workers.
- Lung Cancer Patient Support Group (Long Island)
If you live in New York, New Jersey, or Connecticut, learn about and view the full calendar of our free community programs.
Connect Education Workshops
Listen in by telephone or online as leading experts in oncology provide up-to-date information about cancer-related issues in one-hour workshops. Podcasts are also available.
- Progress in the Treatment of Lung Cancer, Nov 5, 2019
- For Caregivers: Practical Tips for Coping with Your Loved One’s Lung Cancer During the Holidays, Nov 19, 2019
- Preventing Chemotherapy Induced Nausea and Vomiting, Oct 28, 2019
- Care for Your Bones During & After Cancer Treatment: Tips to Improve Bone Health, Nov 18, 2019
- Highlights from the 2019 American Society of Clinical Oncology (ASCO) Annual Meeting: Caring for Every Patient, Learning from Every Patient
- For Caregivers: Practical Tips for Coping with Your Loved One’s Lung Cancer
- What’s New in the Treatment of Lung Cancer
- Participating in Decisions about Your Care
- New Trends in Cancer Survivorship
- For Caregivers: Care Coordination for Your Loved One Living with Cancer and Other Health Problems
- Managing Your Costs of Recovery
- Balancing Your Needs and Your Role as a Caregiver
- Is It My Cancer or Am I Getting Older?
- The Bereaved Caregiver in the Workplace
- Stress Management Tips for Survivors
- The Challenge of Creating Supportive Work Environments for Employees with Cancer and Their Caregivers
Read or order our free Connect booklets and fact sheets offering easy-to-read information about the latest cancer treatments, managing side effects and coping with cancer.
- Treatment Update: Lung CancerNEW!
- After a Lung Cancer Diagnosis: Questions to Ask Your Doctor
- Caring for Your Loved One with Lung Cancer
- Coping With Lung Cancer
- Improving the Quality of Life for Lung Cancer Patients
- Coping With Cancer: Tools to Help You Live
- Caregiving for Your Loved One With CancerNEW!
- Helping Children When a Family Member Has Cancer
- Communicating With Your Health Care Team
- Understanding and Managing Chemotherapy Side Effects
Every month, featured experts answer your questions about coping with cancer. View all questions and answers.
My 68-year-old husband was diagnosed with lung cancer in 2004, had radiation and chemo, and is currently in remission. Since ending his treatment, his personality has changed drastically and he directs his anger towards me. Can chemo affect a person mentally?
My husband has just been diagnosed with small cell lung cancer with small tumors in his liver. He starts chemo next week with 4 hours, day 1 and 2 hours, day 2 and 3. He repeats this every 18 days for six sessions. Is this the normal treatment for small cell lung cancer? Where would I look to find information on clinical trials?
How can I breathe with a lung after the pneumonectomy? Is there anything I should be doing?
My sister has stage 4 non-small cell lung cancer as well as tumors in her liver. Are there two different chemotherapy treatments for both the lung and the liver or are they treated with the same drugs?
My best friend’s husband has just started chemo for lung cancer but refuses to quit smoking. This is driving a huge wedge between the two of them. Does smoking impact the effectiveness of the chemo?
Magnolia Meals at Home
A meal delivery program that helps patients by providing nourishing meals to households affected by cancer. Is currently available in and around Woodcliff Lake, NJ and Andover, MA, Raleigh-Durham, NC and New Haven, CT (as well areas in New York, New Hampshire and Boston, MA). For more information please visit magnoliamealsathome.com or contact Kathy Nugent, LCSW at 800-813-4673, ext. 6809.
Stories of Help and Hope
Read inspiring personal accounts from people affected by cancer and the ways they’ve found to cope.
- Suzanne W., Diagnosed with lung cancer
- Nila W., Diagnosed with lung cancer
- Cynthia B., Diagnosed with lung cancer
- Phyllis D., Diagnosed with lung cancer
- Cari D., Diagnosed with lung cancer
- Arlene C., Diagnosed with lung cancer
- Allen M., Diagnosed with lung cancer
- Valarie K., Caring for her mother with non-small cell lung cancer
The Community Transportation Association estimates that approximately 3.6 million Americans miss or delay medical care because of transportation issues that cost the health care system $150 billion each year.
To help combat this issue, Uber has created a new app called Uber Health. Earlier this month Uber announced that they are working with providers to offer reliable rides for patients, care partners, and families to get to and from doctor’s appointments and the hospital.
The app will allow medical and administrative staff to either call an Uber to drive a specific patient home, or to dispatch an Uber to the patient’s house for pick up. The app also allows users to schedule the ride up to 30 days in advance, so important appointments are never missed. Planning transportation in advance enables patients to schedule rides to and from follow-up appointments even while they are still in the healthcare facility. With the ability to schedule and manage multiple rides from a single dashboard, healthcare professionals can take their level of care to the next level with Uber Health.
How It Works
Uber Health saves patients time and money, as they can focus their attention on their health instead of worrying about how they might get to their next appointment. With the help of Uber’s cost-saving methodology, patients and healthcare professionals can save money utilizing the app over hailing taxis or paying for expensive hospital parking.
Uber Health enables older patients and those with chronic pain gain independence and mobility. Because all communication with Uber Health is completed via text message, patients no longer need a smartphone and the corresponding Uber app to access Uber Health’s benefits.
The Uber Health dashboard was designed with HIPAA standards in mind, ensuring that all aspects of the service meet health care privacy and security standards.
As a part of Uber’s beta program, over 100 healthcare organizations in the U.S, including hospitals, clinics, rehab centers, senior care facilities, home care centers, and physical therapy centers are already using Uber Health.
For more information, please visit the Uber Health site: https://www.uberhealth.com
The ePatient virtual classrooms are designed to empower patients in all their healthcare matters.
ePatient101: How to be an Empowered Patient, is an online course for anyone interested in becoming an empowered patient, empowered caregiver, or patient advocate. Through this online course taught by Alex Barfuss, you will learn:
- The meaning of the term “ePatient”
- Why being an ePatient is so important in today’s healthcare system
- How you can save time and money and get better overall value from your health care providers
- How to advocate for yourself
- Tools, tips and best practices to help manage your or your loved one’s chronic disease
Caregiver 101 is full of useful tools for caregivers and taught by Caregiving.com founder, Denise Brown. By taking this course, you will learn:
- How the carer/caree relationship can be a health relationship
- How to find balance
- How to find more time for your self
- How to ask for support
- Tips, tools, and tactics to be a better carer/caree
- Curated links and resources
- Knowledge quizzes
- Support from a community of caregivers at cargiving.com
Chronic Lymphocytic Leukemia (CLL) 101
We are excited to be partnering up with Intake.me to bring you CLL 101. We wanted anyone struggling with a recent CLL diagnosis to become empowered through knowledge and support. By taking this course, you will receive:
- An overview of CLL
- Facts about CLL
- Curated links and resources
- Knowledge quizzes
- Printable checklists with questions to ask your doctor
- Why you should immediately get a second, expert opinion
- Tips on building your healthcare team, and how your local doctor can work with a CLL expert to provide the best treatment
- Where to find the latest CLL research, clinical trials, and other treatment options
- Ability to ask questions from other CLL 101 students
These courses are part of the Intake.me experience and are free to everyone. You can sign up be clicking one of the buttons below. Enjoy!
Editor’s Note: This blog was written by Winn Sams, D.C. Dr. Sams practices in Columbus, NC a small town snuggled in the foothills of the western part of the state. A native of Charlotte, NC with a B.A. in Economics from the University of North Carolina- Chapel Hill, Dr. Sams graduated from Sherman College of Chiropractic in 2002 summa cum laude and valedictorian of her class. From her own experience where personal health directives and choices were not heard nor respected, she decided to create a site where uniqueness and diversity could be anchored in healthcare. Being a healthcare provider, she knew how important it is for the “whole” person to be not only known, but included in a plan of care. Thus, Least Invasive First was born.
Recently, my youngest daughter broke her right arm and dislocated her elbow. The ER referred her out to an orthopedist nearby. We showed up at the appointment with a lot of questions and wanting to know what our options were. The doctor entered the room, did not make eye contact with me nor my daughter’s friend, who was sitting next to me. His handshake was a mere extension of his hand to us (friend and myself), kind of like a king might do to his subjects to kiss his ring. He said he would like to order a CT scan of my daughter’s elbow and do surgery. I asked were there any other options and he said “No” and that he would be back in a few minutes. He never came back, but his nurse showed up to schedule the surgery. I was furious and let her know my dissatisfaction, clearly acknowledging that it wasn’t her fault, but we would not be coming back.
Now, you have to understand I am a Doctor of Chiropractic. I see patients every day and I would never treat anyone the way we were treated. There was no informed consent , no shared decision making in developing a treatment and no respect for who my daughter was (or us for that matter) as a unique person seeking care. EVERYONE deserves all of the above! So, we left that office and made an appointment with another Orthopedist, who was absolutely fabulous. Our experience was night and day from the first one. We felt like we were a part of creating our plan of care, throughout the whole appointment and were at peace with the planned surgery, leaving there feeling like we were in good hands.
My concern is this. When we are in pain or an emergency situation, we usually are not thinking straight. We just want someone to help us get out of pain and/or tell us what is wrong. We may accept the first Doctor that we encounter, as he/she knows more than us. As far as what a Doctor is taught in school, the knowledge of how the body works and their expertise/experience, that is true. HOWEVER, the patient still has to be included in the whole process, otherwise, you are giving your power over to someone to do as they deem fit TO you. That is a recipe for disaster.
Data and evidence based science measure outcomes that can be repeated. That is a big help when trying to choose a plan of action, but healing and how our bodies RESPOND to said procedures or medications is not an exact science. This is where our uniqueness comes in. Some people are allergic to medications or do not need to start out with the highest dose, as their bodies may actually react unfavorably to what may be the standard practice. Some people would like to try other options first, if possible. In the best interest of all, seeing how that choice works and then moving on to more invasive choices if necessary. It is imperative that your Doctor know as much about ALL of you to make the best plan of care. But, you don’t have to back down or be ashamed of your choices if they don’t match up with your provider’s. Remember, a Doctor is only a person ( yes, just a person like you and I) who has certain training and experience in particular fields. You cannot assume that your Doctor has your best care in mind, when they don’t have a clear picture of who you are on all fronts.
So, with all of this in mind, I developed a site called Least Invasive First, www.leastinvasivefirst.org, where you can keep all of your advance health directives and info in one place, with everything digitally accessible at any time. You can upload forms and/or pictures into your profile that provide information, that in especially stressful times, you have available at the click of a button. Medications can be listed with dosage, so you can edit them as they change. You can also give your username and password information to a family member, so they have access to your information if you are unresponsive or not able to make decisions for yourself. There are a lot of creative ways that this service can be used.
Fortunately, this concept works well for the Doctor and/or hospital side too. I have interviewed many of both and all have voiced a resounding affirmation that information the patient provides would be a tremendous help. I am glad to offer a way to potentially change healthcare and it starts with you!