Tag Archive for: patient advocates

Empowered Care: A Patient’s Guide to Navigating Endometrial Cancer

Empowered Care: A Patient’s Guide to Navigating Endometrial Cancer from Patient Empowerment Network on Vimeo.

Meet Sharon, a 61-year-old endometrial cancer survivor who knows firsthand the importance of being an active participant in her healthcare. After a two-year struggle with misdiagnosed symptoms and a dismissive doctor, she took charge and found the right medical support, leading to a diagnosis of endometrial cancer.

Sharon’s journey, from diagnosis to treatment and recovery, highlights the vital role of self-advocacy and patient activation. Her story is a beacon for others, especially women of color facing similar challenges, emphasizing the power of being informed, asking questions, and seeking support.

Download Guide | Descargar Guía en Español

See More from [ACT]IVATED Endometrial Cancer

Related Resources:

Addressing Disparities in Gynecologic Oncology | Key Challenges and Solutions

Addressing Disparities in Gynecologic Oncology | Key Challenges and Solutions

How Is Gynecological Cancer Care Impacted by Social Determinants of Health?

How Is Gynecological Cancer Care Impacted by Social Determinants of Health?

How Can Gynecologic Oncology Racial Disparities Be Addressed

How Can Gynecologic Oncology Racial Disparities Be Addressed

Transcript:

Being activated is a critical part of endometrial cancer care, especially for patients like me. 

My name is Sharon, I’m 61, and my diagnosis came after a two-year struggle with unidentified symptoms. Sharing my experience is my way of reaching out, hoping it might provide guidance to others facing similar challenges.

My symptoms began with abnormal vaginal bleeding, but my periods had ended over 10 years ago. That had me worried, and my sister encouraged me to see a doctor after I told her about the bleeding. I scheduled an appointment, but my doctor dismissed my symptoms. I felt like he wasn’t really listening to me and decided to find a doctor who looks more like me and would be more likely to listen to me. I found a Black female doctor who was concerned about my symptoms, which had worsened by then. I was also feeling pelvic pain. My new doctor scheduled an endometrial biopsy, and I was diagnosed with papillary serous carcinoma shortly afterward.

With an aggressive type of cancer, my oncologist scheduled a laparoscopic hysterectomy to remove my uterus along with my ovaries, fallopian tubes, and sentinel lymph nodes. I had the surgery within a few days, which was quickly followed by radiation to help ensure any remaining cancer cells were wiped out. My recovery went smoothly, and I continue to live a full life while getting regular scans to ensure I remain cancer-free.

After my cancer experience, I want to educate other women about what I’ve learned about endometrial cancer. Black women have nearly twice the death rate from endometrial cancer compared to white women. Hispanic, Black, and Asian women are not represented in clinical trials at equal rates to white women. And Black women are also diagnosed more frequently with rare but aggressive endometrial cancer forms. Remember that you shouldn’t have to suffer with your pain, and you can advocate for yourself and ask about patient advocates to advocate on your behalf.

Here are my activation tips for patients facing an endometrial cancer diagnosis:

  1. Ask your care team questions to learn about the status of your endometrial cancer, treatment options, and what to expect during and after treatment.
  2. Join a patient support group to offer and receive emotional support.
  3. Last but not least, inquire if a clinical trial may be a potential treatment option for your endometrial cancer.

Remember, stay activated by being informed, empowered, and engaged in your cancer care.


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Patient Advocacy: 10 Tips For Creating A Powerful PowerPoint Presentation

Patient advocacy involves sharing your unique knowledge and experience with a disease or condition with the ultimate aim of raising awareness and influencing people to effect a desired change.

For us to be able to effectively advocate for our cause, we need to have a variety of advocacy tools in our toolbox. I shared tips and techniques with you last month for improving your writing skills. For this month’s advocacy skill, I want to focus on designing impactful slide decks.

Many times when asked to speak at a conference or event, we turn to PowerPoint to help us tell our story and make our key points more memorable. If you’ve ever sat through a boring slide presentation, you’ll know there’s an art to creating a great slide deck. The following tips will teach you how to avoid creating a boring presentation – the so-called “death by PowerPoint” syndrome.

Let’s start by preparing the ground.

1. Decide What You Want To Say

A good slide deck begins with thorough preparation. Before opening PowerPoint, ensure that your message is clear. A common mistake is to launch PowerPoint, add a slide, think of points, and then add more slides.

If you find that you have several messages you would like to deliver, challenge yourself to write down your core message in one or two clear sentences.  Once you have a clear focus for your talk, you can then group your other ideas around it.

Start by jotting down answers to the following questions:

  • What is the purpose of this talk?
  • What level of knowledge will your audience have?
  • What do you want them to know, feel, or do after they have heard you speak?

Your presentation should always have a clear purpose, something that the audience walks away eager to do. It may help to start by identifying the main takeaway you want people to remember – and then work backward to figure out how to get there.

2. Gather Supporting Facts and Figures

Which key facts and figures are you going to present? Could you incorporate any research studies to make your message stronger?  You can use diagrams and charts (PowerPoint has a selection of shapes and SmartArt) to help you present information in a visually appealing way.

3. Structure Your Points

Now it’s time to organize your key messages and research points. Following a structure helps you stay on track and helps your audience follow along with your points logically.

Prepare the opening to your presentation. What would you like to share? Statistics, or a research study from Step 2? Or perhaps you’d like to share your personal story to introduce your work. As I wrote last month, one of the most effective ways to capture attention is by sharing a story. Your brain reacts differently to a story than it does to any other type of information, including straight facts and data. While facts and figures engage only a small portion of the brain, stories engage multiple brain regions that combine to create rich emotional responses.

Next, order your main points in a way that will make sense to your audience. Reflect on your key points and how you might emphasize them.

Finally, decide on the take-home message or call-to-action you want to deliver to your audience and how you will do so. Your call to action should convey a sense of urgency. Why is it critical that they hear your message and take action right away? What will happen if they don’t do anything?

4. Get Creative With Your Slide Design

Now comes the fun part – designing your slide deck. Remember you don’t have to stick to the standard over-used slide templates provided by PowerPoint. Get creative and design your own customized template with your own choice of colors and logo.  The design tool Canva is a super tool to help you with this.

5. Less Is More When It Comes To Text

One of the main causes of boring slides is overloading the slide with too much information. When too many details appear on the slide, your risk losing the audience’s attention. Think of PowerPoint as a visual background to your presentation. It is not your talk. You want your audience to listen to you, rather than read the screen.

Present one key point per slide so that the audience can fully process each point before moving on to the next idea. The information is easier to understand when presented one point at a time, and the audience is less likely to experience information overload.

6. Choose Fonts With Care

When selecting fonts for your presentation, keep in mind that how you present your text is an important factor in making your slides clear and compelling. As a general rule, sans-serif fonts like Arial, Veranda, and Helvetica work well for headlines, while serif fonts like Palatino, Courier, and Times New Roman work well for body text.

If you’re presenting in a large room, use a font size that everyone can read. If possible, you should test your slides on the screen you’ll be using to present to determine the font size that works best.

7. Maintain Consistency

Stick to a consistent visual theme throughout your presentation. Use a grid system on your master slide pasteboard to keep your layouts well-structured and clean.

8. Add Visual Appeal

Find some compelling images to capture the audience’s attention. To ensure that your image looks good when blown up to full-screen proportions, choose an image with a high resolution. Be wary of using images from Google unless they’re licensed under “Creative Commons.”

Aim for one image per slide. More than that looks cluttered and is less impactful. When adding text to a background image, choose an image with plenty of “whitespace” so that it can be read clearly. If your background image lacks whitespace, use a blur effect or a gradient fill when adding text.

Slides with animated transitions should be used sparingly. The gradual slide-in or fade-in of the next slide can add a touch of style to a presentation, but on long presentations avoid excessive use of transitions from slide to slide or animated bullet points.

9. Make Your Slides Accessible For All Viewers

Did you know that PowerPoint has a built-in Accessibility Checker to help you prepare your slides for people with disabilities?

Go to File > Info > Check for Issues > Check Accessibility to find this feature.

10. Rehearse and Rehearse and Rehearse

Finally, practice your presentation with your slides until you feel confident delivering your speech in front of an audience. The best PowerPoint tips won’t help you if you trip over your slide transitions or if you can’t fit the number of slides within the time allotted to you. You can practice your presentation using PowerPoint’s Rehearse Timing feature.

I hope you found these tips useful. Giving a presentation can be stressful, but you can be more confident doing so knowing that you’ve designed an impactful slide deck.

Best of luck with your next presentation!