Cora Connor founded R.M.C. (renal medullary carcinoma) Inc. to educate the public and healthcare professionals while enhancing the lives of individuals fighting a rare kidney cancer, renal medullary carcinoma (RMC.) Cora’s advocacy started after her brother Herman, was diagnosed in early 2012. Eight years following Herman’s battle with RMC, he is alive and well. From speaking with her state Senator to later having a bill passed in South Carolina ensuring that parents receive risk associated sickle cell disease educational information to lobbing for cancer research in Washington, DC, Cora continues to advocate tirelessly. Cora lives in Charleston, SC, and is the mother to three boys. She is honored to serve as the Renal Medullary Carcinoma Network Manager for the Patient Empowerment Network.
A:Patient advocacy is supporting, believing and being a spokesperson for someone navigating medical or healthcare challenges. Being a voice for the voiceless.
As a PEN Network Manager, what are your interests and how are you helping other patients?
A: As a PEN Network Manager my interests are learning more about patient needs and providing them with the latest information. Provide support and increase awareness. I help patients navigate their care with leading experts. I also provide patient/caregiver support so that they know they are not alone.