Posts

#patientchat Highlights: What is Patient Advocacy?

Last week we hosted a “What is Patient Advocacy?” #patientchat. The #patientchat community came together on Twitter for a lively discussion. Take a look at the top tweets and full transcript from the chat.

Top Tweets

“You are your own best advocate.”


How can you maintain knowledge of community services and resources in your disease area?


Closing Thoughts


Full Transcript

#patientchat Highlights: Rare but Not Invisible: Finding Your Community

Last week we hosted a “Rare but Not Invisible: Finding Your Community” #patientchat. The #patientchat community came together on Twitter for a lively discussion. Take a look at the top tweets and full transcript from the chat.

Top Tweets

What Resources Have You Used to Find Your Community?


How do you use your community to improve your health or the health of those you love?


What are some of the challenges patients in your community face?


Full Transcript

#patientchat Highlights: Healthcare Trends: Are They Here to Stay?

Last week we hosted a “Healthcare Trends: Are They Here to Stay?” #patientchat. The #patientchat community came together on Twitter for a lively discussion. Take a look at the top tweets and full transcript from the chat.

Top Tweets

Health Equity


Telehealth


Lack of Access


Full Transcript

#patientchat Highlights: Ask Me Anything (AMA) with Marie Ennis-O’Connor

Last week we hosted an “Ask Me Anything (AMA)” Empowered #patientchat with Marie Ennis-O’Connor (@JBBC) where she answered everyone’s pressing questions about social media. The #patientchat community came together on Twitter for a lively discussion. Take a look at the top tweets and full transcript from the chat.

Top Tweets

Learn How to Create Professional Graphics


“Sharing can be used as medicine, mental health support, a tool to raise ur quality of life”


Practical information presented in human-centered language


Full Transcript

#patientchat Highlights: Genome-Wide Sequencing: What an Empowered Patient Needs to Know

Last week we hosted an Empowered #patientchat with GenCOUNSEL (@GenCOUNSEL_CA) titled “Genome-Wide Sequencing: What an Empowered Patient Needs to Know”. The #patientchat community came together on Twitter for a lively discussion. Take a look at the top tweets and full transcript from the chat.

Top Tweets

“Genetic counselors help patients know what they’re dealing with.”

Genetic Counseling Helps Patients and Families Feel More Empowered

What can stakeholders do to make genome-wide sequencing and genetics services more equitable and diverse?


Full Transcript

#patientchat Highlights: Vaccine Hesitancy: Let’s Talk About It

Last week we hosted a “Vaccine Hesitancy: Let’s Talk About It” Empowered #patientchat, the community came together on Twitter for a lively discussion. Take a look at the top tweets and full transcript from the chat.

Top Tweets

Concerns from Chronic Patients

“People are afraid of what they don’t understand.”

Coordinate Efforts with Community Leaders


Full Transcript

Let’s Talk Mental Health #patientchat Highlights

Last week we held an Empowered #patientchat discussion on “Let’s Talk Mental Health: How are you doing?”. The #patientchat community came together for a lively discussion and below are some highlights.

Top Tweets

Is anything worrying you at the moment?

Do you have tips for when someone is feeling overwhelmed or anxious?

“Be kind to yourself”

 


Full Transcript

Moving Awareness into Action #patientchat Highlights

Last week we held an Empowered #patientchat with The Hereditary Neuropathy Foundation (@CMTNeuropathy) on Moving Action into Awareness. The #patientchat community came together for a lively discussion and below are some highlights.

Top Tweets

Share Your Story

Be Your Own Advocate

How do you communicate with a healthcare professional who is unfamiliar with your diagnosis?

Be Your Own Advocate


Full Transcript

#patientchat Highlights: The Engaged Patient: Utilizing Digital Health

Last week we hosted a “The Engaged Patient: Utilizing Digital Health” Empowered #patientchat, the community came together on Twitter for a lively discussion. Take a look at the top tweets and full transcript from the chat.

Top Tweets

Shared Decision Making is Key

Advocate for Access and Equity

The Patient is a Respected Member of their Care Team


Full Transcript

#patientchat Highlights: A Year in Review: Looking back on 2020 and Ahead to 2021

Last week we hosted a “A Year in Review: Looking back on 2020 and Ahead to 2021” Empowered #patientchat, the community came together on Twitter for a lively discussion. Take a look at the top tweets and full transcript from the chat.

Top Tweets

No regrets

“Spread the love”

How can we empower others?


Full Transcript

#patientchat Highlights: Checking the Pulse on Patient Influencers

Last week we hosted a “Checking the Pulse on Patient Influencers” Empowered #patientchat, the community came together on Twitter for a lively discussion. Take a look at the top tweets and full transcript from the chat.

Top Tweets

Patient Advocate/Activist Over Influencer

“Supporting patients (regardless of approach) is paramount”

What is a patient influencer?


Full Transcript

#patientchat Highlights Open Mic

Last week we hosted an “Open Mic” Empowered #patientchat, the community came together on Twitter for a lively discussion. Take a look at the top tweets and full transcript from the chat.

Top Tweets

Burnout is Real

“We already have the power”

Shining a Light on Passionate Causes


Full Transcript

How to Apply Your Empowerment Skills to Your Health Journey #patientchat Highlights

Last week, we hosted our third Virtual Empowered #patientchat. The Virtual Empowered #patientchat was a moderated 45-minute conversation conducted online via Zoom and Facebook Live along with a lively discussion on Twitter. Below you will find the highlights from the online events and highlights from the conversation on Twitter.

Virtual #patientchat Highlights

Replay

How to Apply Your Empowerment to Your Health Journey from Patient Empowerment Network on Vimeo.

Panel

Top Tweets

What are some frustrations you are dealing with right now?


What is the biggest hurdle you’ve had to overcome in your health journey?


What are your go-to trusted resources and how did you find them?


Full Tweetchat


For a list of all past #patientchat topics and transcripts, click here.

Asking the Right Questions at the Right Time #patientchat Highlights

Last week, we hosted an Empowered #patientchat titled “Asking the Right Questions at the Right Time: Navigating Your Path to Empowerment”. Below you will find the top tweets and the full transcript from the conversation on Twitter.

Top Tweets

Your Goals Matter


The Importance of Self-Advocacy and Support


Full Chat

Best Practices for Sharing Your Patient Story #patientchat Highlights

Last week, we hosted an Empowered #patientchat titled “Best Practices for Sharing Your Patient Story” with special guest The Patient Story (@Patient_Story). Below you will find the top tweets and the full transcript from the conversation on Twitter.

Top Tweets

Sharing Your Story Can Help Others


A Free Public Speaking Toolkit


Don’t Give Weight to Other People’s Thoughts


Full Chat

Events

No Empowered #patientchat – Happy Holidays!

There will be no Empowered #patientchat today. Enjoy the holidays and we hope to see you in 2022!

Empowered #patientchat – December 10

You’re Invited! We hope you’ll join us for our next Empowered #patientchat discussion.

Empowered Patient Chats (#patientchat) are held every other Friday at 10:00 am Pacific / 1:00 pm Eastern and during the chat patients and advocates come to learn from each other and discuss topics of interest to empowered patients.

Click HERE to learn more about the Empowered #patientchat Series plus read tips on how to participate.

We hope to see you Friday, December 10th on Twitter (or tchat.io/rooms/patientchat) at 10:00 am Pacific / 1:00 pm Eastern. Be sure to include the hashtag #patientchat in all your responses!

I'll be at the Empowered #patientchat on Fri 12/10 1pm ET. Join me! Click To Tweet

No Empowered #patientchat – Happy Thanksgiving!

There will be no Empowered #patientchat today due to Thanksgiving (U.S.).

Empowered #patientchat – November 12

You’re Invited! We hope you’ll join us for our next Empowered #patientchat discussion.

Empowered Patient Chats (#patientchat) are held every other Friday at 10:00 am Pacific / 1:00 pm Eastern and during the chat patients and advocates come to learn from each other and discuss topics of interest to empowered patients.

Click HERE to learn more about the Empowered #patientchat Series plus read tips on how to participate.

We hope to see you Friday, November 12th on Twitter (or tchat.io/rooms/patientchat) at 10:00 am Pacific / 1:00 pm Eastern. Be sure to include the hashtag #patientchat in all your responses!

I'll be at the Empowered #patientchat on Fri 11/12 1pm ET. Join me! Click To Tweet

Empowered #patientchat – October 29

You’re Invited! We hope you’ll join us for our next Empowered #patientchat discussion.

Empowered Patient Chats (#patientchat) are held every other Friday at 10:00 am Pacific / 1:00 pm Eastern and during the chat patients and advocates come to learn from each other and discuss topics of interest to empowered patients.

Click HERE to learn more about the Empowered #patientchat Series plus read tips on how to participate.

We hope to see you Friday, October 29th on Twitter (or tchat.io/rooms/patientchat) at 10:00 am Pacific / 1:00 pm Eastern. Be sure to include the hashtag #patientchat in all your responses!

I'll be at the Empowered #patientchat on Fri 10/29 1pm ET. Join me! Click To Tweet

Empowered #patientchat – October 15

You’re Invited! We hope you’ll join us for our next Empowered #patientchat discussion.

Empowered Patient Chats (#patientchat) are held every other Friday at 10:00 am Pacific / 1:00 pm Eastern and during the chat patients and advocates come to learn from each other and discuss topics of interest to empowered patients.

Click HERE to learn more about the Empowered #patientchat Series plus read tips on how to participate.

We hope to see you Friday, October 15th on Twitter (or tchat.io/rooms/patientchat) at 10:00 am Pacific / 1:00 pm Eastern. Be sure to include the hashtag #patientchat in all your responses!

I'll be at the Empowered #patientchat on Fri 10/15 1pm ET. Join me! Click To Tweet

Empowered #patientchat – October 1

You’re Invited! We hope you’ll join us for our next Empowered #patientchat discussion.

Empowered Patient Chats (#patientchat) are held every other Friday at 10:00 am Pacific / 1:00 pm Eastern and during the chat patients and advocates come to learn from each other and discuss topics of interest to empowered patients.

Click HERE to learn more about the Empowered #patientchat Series plus read tips on how to participate.

We hope to see you Friday, October 1st on Twitter (or tchat.io/rooms/patientchat) at 10:00 am Pacific / 1:00 pm Eastern. Be sure to include the hashtag #patientchat in all your responses!

I'll be at the Empowered #patientchat on Fri 10/1 1pm ET. Join me! Click To Tweet

Empowered #patientchat – September 17

You’re Invited! We hope you’ll join us for our next Empowered #patientchat discussion.

Empowered Patient Chats (#patientchat) are held every other Friday at 10:00 am Pacific / 1:00 pm Eastern and during the chat patients and advocates come to learn from each other and discuss topics of interest to empowered patients.

Click HERE to learn more about the Empowered #patientchat Series plus read tips on how to participate.

We hope to see you Friday, September 17th on Twitter (or tchat.io/rooms/patientchat) at 10:00 am Pacific / 1:00 pm Eastern. Be sure to include the hashtag #patientchat in all your responses!

I'll be at the Empowered #patientchat on Fri 9/17 1pm ET. Join me! Click To Tweet

Empowered #patientchat – September 3

You’re Invited! We hope you’ll join us for our next Empowered #patientchat discussion.

Empowered Patient Chats (#patientchat) are held every other Friday at 10:00 am Pacific / 1:00 pm Eastern and during the chat patients and advocates come to learn from each other and discuss topics of interest to empowered patients.

Click HERE to learn more about the Empowered #patientchat Series plus read tips on how to participate.

We hope to see you Friday, September 3rd on Twitter (or tchat.io/rooms/patientchat) at 10:00 am Pacific / 1:00 pm Eastern. Be sure to include the hashtag #patientchat in all your responses!

I'll be at the Empowered #patientchat on Fri 9/3 1pm ET. Join me! Click To Tweet

Empowered #patientchat – August 6

You’re Invited! We hope you’ll join us for our next Empowered #patientchat discussion.

Empowered Patient Chats (#patientchat) are held every other Friday at 10:00 am Pacific / 1:00 pm Eastern and during the chat patients and advocates come to learn from each other and discuss topics of interest to empowered patients.

Click HERE to learn more about the Empowered #patientchat Series plus read tips on how to participate.

We hope to see you Friday, August 6th on Twitter (or tchat.io/rooms/patientchat) at 10:00 am Pacific / 1:00 pm Eastern. Be sure to include the hashtag #patientchat in all your responses!

I'll be at the Empowered #patientchat on Fri 8/6 1pm ET. Join me! Click To Tweet

Empowered #patientchat – July 9

You’re Invited! We hope you’ll join us for our next Empowered #patientchat discussion.

Empowered Patient Chats (#patientchat) are held every other Friday at 10:00 am Pacific / 1:00 pm Eastern and during the chat patients and advocates come to learn from each other and discuss topics of interest to empowered patients.

Click HERE to learn more about the Empowered #patientchat Series plus read tips on how to participate.

We hope to see you Friday, July 9th on Twitter (or tchat.io/rooms/patientchat) at 10:00 am Pacific / 1:00 pm Eastern. Be sure to include the hashtag #patientchat in all your responses!

I'll be at the Empowered #patientchat on Fri 7/9 1pm ET. Join me! Click To Tweet

Empowered #patientchat – June 11

You’re Invited! We hope you’ll join us for our next Empowered #patientchat discussion.

Empowered Patient Chats (#patientchat) are held every other Friday at 10:00 am Pacific / 1:00 pm Eastern and during the chat patients and advocates come to learn from each other and discuss topics of interest to empowered patients.

Click HERE to learn more about the Empowered #patientchat Series plus read tips on how to participate.

We hope to see you Friday, June 11th on Twitter (or tchat.io/rooms/patientchat) at 10:00 am Pacific / 1:00 pm Eastern. Be sure to include the hashtag #patientchat in all your responses!

I'll be at the Empowered #patientchat on Fri 6/11 1pm ET. Join me! Click To Tweet

Empowered #patientchat – May 28

You’re Invited! We hope you’ll join us for our next Empowered #patientchat discussion.

Empowered Patient Chats (#patientchat) are held every other Friday at 10:00 am Pacific / 1:00 pm Eastern and during the chat patients and advocates come to learn from each other and discuss topics of interest to empowered patients.

Click HERE to learn more about the Empowered #patientchat Series plus read tips on how to participate.

We hope to see you Friday, May 28th on Twitter (or tchat.io/rooms/patientchat) at 10:00 am Pacific / 1:00 pm Eastern. Be sure to include the hashtag #patientchat in all your responses!

I'll be at the Empowered #patientchat on Fri 5/28 1pm ET. Join me! Click To Tweet