Posts

#patientchat Highlights – Patient Advocacy in Drug Development: What Role Does it Play?

Last week we hosted a “Patient Advocacy in Drug Development: What Role Does it Play?” #patientchat. The #patientchat community came together on Twitter for a lively discussion. Take a look at the top tweets and full transcript from the chat.

Top Tweets

What does patient-centered care mean to you?


What barriers have you observed to patient-centered care?


How can patient experiences, needs, perspectives, and priorities be incorporated into the drug development process?


How can drug developers collaborate with patient advocacy groups?


Full Transcript

#patientchat Highlights – Empowerment and Your Healthcare Team

Last week we hosted a “Empowerment and Your Healthcare Team” #patientchat with Teresa Hagan Thomas, PhD, RN (@TLHagan). The #patientchat community came together on Twitter for a lively discussion. Take a look at the top tweets and full transcript from the chat.

Top Tweets

How easy is it for you to speak openly with your healthcare team?


How does your healthcare team empower you to make decisions about your care?


How can you help to empower your healthcare team?


Full Transcript

#patientchat Highlights – How Can You Utilize Telehealth Services?

Last week we hosted a “How Can You Utilize Telehealth Services?” #patientchat with Diverse Health Hub (@DHealthHub). The #patientchat community came together on Twitter for a lively discussion. Take a look at the top tweets and full transcript from the chat.

Top Tweets

What are known misconceptions of telehealth services?


What barriers present themselves with telehealth services?


If anything, what can we do to address and help raise awareness about them?


Full Transcript

#patientchat Highlights – Wellness Matters: Risk-Reducing Care

Last week we hosted a “Wellness Matters: Risk-Reducing Care” #patientchat. The #patientchat community came together on Twitter for a lively discussion. Take a look at the top tweets and full transcript from the chat.

Top Tweets

Risk-reducing care? Health maintenance? Preventative care? What term for this topic resonates with you and why?


Connection


Aside from your physical health, how are you currently maintaining your emotional and mental health?


Full Transcript

#patientchat Highlights – Transforming Healthcare as a Patient Leader

Last week we hosted a “Transforming Healthcare as a Patient Leader” #patientchat with Seth Rotberg from @wegohealth. The #patientchat community came together on Twitter for a lively discussion. Take a look at the top tweets and full transcript from the chat.

Top Tweets

What does it mean to be a patient leader in the community?


Connection


Closing Thoughts 


Full Transcript

#patientchat Highlights – Are You an Empowered Survivor?

Last week we hosted a “Are You an Empowered Survivor?” #patientchat with Alicia Staley (@stales). The #patientchat community came together on Twitter for a lively discussion. Take a look at the top tweets and full transcript from the chat.

Top Tweets

Use What Resonates with You


Some Language Reinforces the Idea That Patients Have More Control Than They Do


What does resiliency regarding your mental and emotional health look like to you? 


Full Transcript

#patientchat Highlights – Being Intentional With Your Mental Health

Last week we hosted a “Being Intentional With Your Mental Health” #patientchat. The #patientchat community came together on Twitter for a lively discussion. Take a look at the top tweets and full transcript from the chat.

Top Tweets

Just a Bad Day


“You are Always Enough”


What does resiliency regarding your mental and emotional health look like to you? 


Full Transcript

#patientchat Highlights – Collaboration: Connecting and Empowering Patient Communities

Last week we hosted a “Collaboration: Connecting and Empowering Patient Communities” #patientchat with Amanda (@LAlupusLady). The #patientchat community came together on Twitter for a lively discussion. Take a look at the top tweets and full transcript from the chat.

Top Tweets

Working Together Encourages Support and Awareness


What Does Collaboration in Patient-Driven Communities Do?


How Can You Help a Collaborative Partner?


Full Transcript

#patientchat Highlights: What is Patient Advocacy?

Last week we hosted a “What is Patient Advocacy?” #patientchat. The #patientchat community came together on Twitter for a lively discussion. Take a look at the top tweets and full transcript from the chat.

Top Tweets

“You are your own best advocate.”


How can you maintain knowledge of community services and resources in your disease area?


Closing Thoughts


Full Transcript

#patientchat Highlights: Rare but Not Invisible: Finding Your Community

Last week we hosted a “Rare but Not Invisible: Finding Your Community” #patientchat. The #patientchat community came together on Twitter for a lively discussion. Take a look at the top tweets and full transcript from the chat.

Top Tweets

What Resources Have You Used to Find Your Community?


How do you use your community to improve your health or the health of those you love?


What are some of the challenges patients in your community face?


Full Transcript

#patientchat Highlights: Healthcare Trends: Are They Here to Stay?

Last week we hosted a “Healthcare Trends: Are They Here to Stay?” #patientchat. The #patientchat community came together on Twitter for a lively discussion. Take a look at the top tweets and full transcript from the chat.

Top Tweets

Health Equity


Telehealth


Lack of Access


Full Transcript

#patientchat Highlights: Ask Me Anything (AMA) with Marie Ennis-O’Connor

Last week we hosted an “Ask Me Anything (AMA)” Empowered #patientchat with Marie Ennis-O’Connor (@JBBC) where she answered everyone’s pressing questions about social media. The #patientchat community came together on Twitter for a lively discussion. Take a look at the top tweets and full transcript from the chat.

Top Tweets

Learn How to Create Professional Graphics


“Sharing can be used as medicine, mental health support, a tool to raise ur quality of life”


Practical information presented in human-centered language


Full Transcript

#patientchat Highlights: Genome-Wide Sequencing: What an Empowered Patient Needs to Know

Last week we hosted an Empowered #patientchat with GenCOUNSEL (@GenCOUNSEL_CA) titled “Genome-Wide Sequencing: What an Empowered Patient Needs to Know”. The #patientchat community came together on Twitter for a lively discussion. Take a look at the top tweets and full transcript from the chat.

Top Tweets

“Genetic counselors help patients know what they’re dealing with.”

Genetic Counseling Helps Patients and Families Feel More Empowered

What can stakeholders do to make genome-wide sequencing and genetics services more equitable and diverse?


Full Transcript

#patientchat Highlights: Vaccine Hesitancy: Let’s Talk About It

Last week we hosted a “Vaccine Hesitancy: Let’s Talk About It” Empowered #patientchat, the community came together on Twitter for a lively discussion. Take a look at the top tweets and full transcript from the chat.

Top Tweets

Concerns from Chronic Patients

“People are afraid of what they don’t understand.”

Coordinate Efforts with Community Leaders


Full Transcript

Let’s Talk Mental Health #patientchat Highlights

Last week we held an Empowered #patientchat discussion on “Let’s Talk Mental Health: How are you doing?”. The #patientchat community came together for a lively discussion and below are some highlights.

Top Tweets

Is anything worrying you at the moment?

Do you have tips for when someone is feeling overwhelmed or anxious?

“Be kind to yourself”

 


Full Transcript

Events

Empowered #patientchat – Ask Me Anything (AMA) Part 2

You’re Invited! We hope you’ll join us for the “Ask Me Anything (AMA) Part 2″ Empowered #patientchat with special guest Marie Ennis-O’Connor (@JBBC).

Empowered Patient Chats (#patientchat) are held every other Friday at 10:00 am Pacific / 1:00 pm Eastern and during the chat patients and advocates come to learn from each other and discuss topics of interest to empowered patients.

Click HERE to learn more about the Empowered #patientchat Series plus read tips on how to participate.

We hope to see you Friday, October 29th on Twitter (or tchat.io/rooms/patientchat) at 10:00 am Pacific / 1:00 pm Eastern. Be sure to include the hashtag #patientchat in all your responses!

I'll be at the Empowered #patientchat on Fri 10/29 1pm ET. Join me! Click To Tweet

Empowered #patientchat – Let’s Talk Burnout: Patients and Care Partners

You’re Invited! We hope you’ll join us for our next Empowered #patientchat discussion.

Empowered Patient Chats (#patientchat) are held every other Friday at 10:00 am Pacific / 1:00 pm Eastern and during the chat patients and advocates come to learn from each other and discuss topics of interest to empowered patients.

Guide the conversation will be the following Topic Questions (T#:)

T1: What does “burnout” look like for you? #patientchat

T2: Does burnout look differently for patients vs care partners? #patientchat

T3: Can patient/care partner burnout impact your or your loved one’s quality of care? #patientchat

T4: Are there any services or systems in place to help mitigate burnout? If not, what should be in place? #patientchat

T5: What would you like healthcare providers to know about patient/care partner burnout? #patientchat

Click HERE to learn more about the Empowered #patientchat Series plus read tips on how to participate.

We hope to see you Friday, October 15th on Twitter (or tchat.io/rooms/patientchat) at 10:00 am Pacific / 1:00 pm Eastern. Be sure to include the hashtag #patientchat in all your responses!

I'll be at the Empowered #patientchat on Fri 10/15 1pm ET. Join me! Click To Tweet

Empowered #patientchat – Patient Advocacy in Drug Development: What Role Does it Play?

You’re Invited! We hope you’ll join us for our next Empowered #patientchat discussion on “Patient Advocacy in Drug Development: What Role Does it Play?”

Empowered Patient Chats (#patientchat) are held every other Friday at 10:00 am Pacific / 1:00 pm Eastern and during the chat patients and advocates come to learn from each other and discuss topics of interest to empowered patients.

Guiding the conversation will the following topic questions (T#:)

T1: What does patient-centered care mean to you?

T2: What barriers have you observed to patient-centered care?

T3: How can patient experiences, needs, perspectives, and priorities be incorporated into the drug development process?

T4: How can drug developers collaborate with patient advocacy groups?

T5: How can we involve the patient voice in clinical trial enrollment? What ways have you seen it implemented?


Click HERE to learn more about the Empowered #patientchat Series plus read tips on how to participate.

We hope to see you Friday, October 1st on Twitter (or tchat.io/rooms/patientchat) at 10:00 am Pacific / 1:00 pm Eastern. Be sure to include the hashtag #patientchat in all your responses!

I'll be at the Empowered #patientchat on Fri 10/1 1pm ET. Join me! Click To Tweet

Empowered #patientchat – December 10

You’re Invited! We hope you’ll join us for our next Empowered #patientchat discussion.

Empowered Patient Chats (#patientchat) are held every other Friday at 10:00 am Pacific / 1:00 pm Eastern and during the chat patients and advocates come to learn from each other and discuss topics of interest to empowered patients.

Click HERE to learn more about the Empowered #patientchat Series plus read tips on how to participate.

We hope to see you Friday, December 10th on Twitter (or tchat.io/rooms/patientchat) at 10:00 am Pacific / 1:00 pm Eastern. Be sure to include the hashtag #patientchat in all your responses!

I'll be at the Empowered #patientchat on Fri 12/10 1pm ET. Join me! Click To Tweet

Empowered #patientchat – November 12

You’re Invited! We hope you’ll join us for our next Empowered #patientchat discussion.

Empowered Patient Chats (#patientchat) are held every other Friday at 10:00 am Pacific / 1:00 pm Eastern and during the chat patients and advocates come to learn from each other and discuss topics of interest to empowered patients.

Click HERE to learn more about the Empowered #patientchat Series plus read tips on how to participate.

We hope to see you Friday, November 12th on Twitter (or tchat.io/rooms/patientchat) at 10:00 am Pacific / 1:00 pm Eastern. Be sure to include the hashtag #patientchat in all your responses!

I'll be at the Empowered #patientchat on Fri 11/12 1pm ET. Join me! Click To Tweet

Empowered #patientchat – How Can You Utilize Telehealth Services?

You’re Invited! We hope you’ll join us for our next Empowered #patientchat discussion “How Can You Utilize Telehealth Services?” with Diverse Health Hub (@DHealthHub).

Empowered Patient Chats (#patientchat) are held every other Friday at 10:00 am Pacific / 1:00 pm Eastern and during the chat patients and advocates come to learn from each other and discuss topics of interest to empowered patients.

Click HERE to learn more about the Empowered #patientchat Series plus read tips on how to participate.

We hope to see you Friday, September 3rd on Twitter (or tchat.io/rooms/patientchat) at 10:00 am Pacific / 1:00 pm Eastern. Be sure to include the hashtag #patientchat in all your responses!

I'll be at the Empowered #patientchat on Fri 9/3 1pm ET. Join me! Click To Tweet

Empowered #patientchat – Empowerment and Your Healthcare Team

You’re Invited! We hope you’ll join us for our next Empowered #patientchat discussion “Empowerment and Your Healthcare Team” with Teresa (@TLHagan).

Empowered Patient Chats (#patientchat) are held every other Friday at 10:00 am Pacific / 1:00 pm Eastern and during the chat patients and advocates come to learn from each other and discuss topics of interest to empowered patients.

Click HERE to learn more about the Empowered #patientchat Series plus read tips on how to participate.

We hope to see you Friday, September 17th on Twitter (or tchat.io/rooms/patientchat) at 10:00 am Pacific / 1:00 pm Eastern. Be sure to include the hashtag #patientchat in all your responses!

I'll be at the Empowered #patientchat on Fri 9/17 1pm ET. Join me! Click To Tweet

Empowered #patientchat – Wellness Matters: Risk-Reducing Care

You’re Invited! We hope you’ll join us for our next Empowered #patientchat as we discuss risk reduction.

We hope to see you Friday, August 6th on Twitter (or tchat.io/rooms/patientchat) at 10:00 am Pacific / 1:00 pm Eastern. Be sure to include the hashtag #patientchat in all your responses!

T1: Risk-reducing care? Health maintenance? Preventative care? What term for this topic resonates with you and why? #patientchat
T2: How do you identify your risks? Does knowing your risks help you make healthier choices? #patientchat
T3: What are some challenges for certain populations in getting routine health screenings? #patientchat
T4: What role does wellness play in your life? #patientchat
T5:  Aside from your physical health, how are you currently maintaining your emotional and mental health? #patientchat

Empowered Patient Chats (#patientchat) are held every other Friday at 10:00 am Pacific / 1:00 pm Eastern and during the chat patients and advocates come to learn from each other and discuss topics of interest to empowered patients.

Click HERE to learn more about the Empowered #patientchat Series plus read tips on how to participate.

I'll be at the Empowered #patientchat on Fri 8/6 1pm ET. Join me! Click To Tweet

Empowered #patientchat – Transforming Healthcare as a Patient Leader

You’re Invited! We hope you’ll join us for our next Empowered #patientchat discussion “Transforming Healthcare as a Patient Leader” with Seth Rotberg (@wegohealth).

We hope to see you Friday, July 9th on Twitter (or tchat.io/rooms/patientchat) at 10:00 am Pacific / 1:00 pm Eastern. Be sure to include the hashtag #patientchat in all your responses!

Guiding the conversation will the be the following Topic (T#:) Questions:

T1: What does it mean to be a patient leader in the community? #patientchat

T2: Where do you suggest someone should start when it comes to getting more involved in the community? #patientchat

T3: As a patient leader, what resources have you created or do you suggest to others? #patientchat 

T4: In what ways have you grown your advocacy skills so far? #patientchat 

T5: In what ways do you hope to get more involved in your community for the rest of 2021? #patientchat

T6: In what ways have you been recognized for the work you’ve done as a patient leader? #patientchat  


Empowered Patient Chats (#patientchat) are held every other Friday at 10:00 am Pacific / 1:00 pm Eastern and during the chat patients and advocates come to learn from each other and discuss topics of interest to empowered patients.

Click HERE to learn more about the Empowered #patientchat Series plus read tips on how to participate.

I'll be at the Empowered #patientchat on Fri 7/9 1pm ET. Join me! Click To Tweet

Empowered #patientchat – Are You an Empowered Survivor?

You’re Invited! We hope you’ll join us for our next Empowered #patientchat discussion “Are You an Empowered Survivor?” with Alicia Staley (@stales).

Empowered Patient Chats (#patientchat) are held every other Friday at 10:00 am Pacific / 1:00 pm Eastern and during the chat patients and advocates come to learn from each other and discuss topics of interest to empowered patients.

Click HERE to learn more about the Empowered #patientchat Series plus read tips on how to participate.

We hope to see you Friday, June 11th on Twitter (or tchat.io/rooms/patientchat) at 10:00 am Pacific / 1:00 pm Eastern. Be sure to include the hashtag #patientchat in all your responses!

I'll be at the Empowered #patientchat on Fri 6/11 1pm ET. Join me! Click To Tweet

No Empowered #patientchat – Happy Thanksgiving!

There will be no Empowered #patientchat today due to Thanksgiving (U.S.).

No Empowered #patientchat – Happy Holidays!

There will be no Empowered #patientchat today. Enjoy the holidays and we hope to see you in 2022!

Empowered #patientchat – Being Intentional with Your Mental Health

You’re Invited! We hope you’ll join us for our next Empowered #patientchat discussion titled “Being Intentional with Your Mental Health”

We hope to see you Friday, May 28th on Twitter (or tchat.io/rooms/patientchat) at 10:00 am Pacific / 1:00 pm Eastern. Be sure to include the hashtag #patientchat in all your responses!

Guiding our discussion will be the following Topic (T#:) Questions:

T1: What is the purpose of being intentional with your mental, emotional and physical health? #patientchat  

T2: What have you done this year or month to support your emotional well-being? #patientchat 

T3: What is the most loving and supportive thing you can do for yourself right now? #patientchat 

T4: What does resiliency regarding your mental and emotional health look like to you? #patientchat  

T5: What do you engage in daily to bring yourself joy? #patientchat  


Empowered Patient Chats (#patientchat) are held every other Friday at 10:00 am Pacific / 1:00 pm Eastern and during the chat patients and advocates come to learn from each other and discuss topics of interest to empowered patients.

Click HERE to learn more about the Empowered #patientchat Series plus read tips on how to participate.

I'll be at the Empowered #patientchat on Fri 5/28 1pm ET. Join me! Click To Tweet

Empowered #patientchat – Collaboration: Connecting and Empowering Patient Communities

You’re Invited! We hope you’ll join us for our next Empowered #patientchat discussion “Collaboration: Connecting and Empowering Patient Communities” with Amanda (@LAlupudLady).

We hope to see you Friday, April 16th on Twitter (or tchat.io/rooms/patientchat) at 10:00 am Pacific / 1:00 pm Eastern. Be sure to include the hashtag #patientchat in all your responses!

Guiding our discussion will be the following Topic (T#:) Questions:

T1: How can collaboration help patient communities connect? #patientchat

T2: What does collaboration in patient-driven communities do? #patientchat

T3: How do you find collaborations as an individual and as a patient community leader? #patientchat

T4: Who can you approach to work with your patient community?  Who is your ideal collaboration with? #patientchat

T5: What do you bring to the collaboration? #patientchat

T5a: How can you help a collaborative partner? #patientchat

T5b: How can a partner help you and your community? #patientchat


Empowered Patient Chats (#patientchat) are held every other Friday at 10:00 am Pacific / 1:00 pm Eastern and during the chat patients and advocates come to learn from each other and discuss topics of interest to empowered patients.

Click HERE to learn more about the Empowered #patientchat Series plus read tips on how to participate.

I'll be at the Empowered #patientchat on Fri 5/14 1pm ET. Join me! Click To Tweet

Empowered #patientchat – Rare but Not Invisible: Finding Your Community

You’re Invited! We hope you’ll join us for our next Empowered #patientchat discussion “Rare but Not Invisible: Finding Your Community #patientchat” with our RMC Network Manager, Cora Connor (@RMCAwareness).

We hope to see you Friday, April 16th on Twitter (or tchat.io/rooms/patientchat) at 10:00 am Pacific / 1:00 pm Eastern. Be sure to include the hashtag #patientchat in all your responses!

Guiding our discussion will be the following Topic (T#:) Questions:

T1: What makes community meaningful?  #patientchat

T2: What resources have you used to find your community? What resources would you suggest to others? #patientchat

T3: How do you use your community to improve your health or the health of those you love? #patientchat

T4: What are some of the challenges patients in your community face? #patientchat

T5: How can we help amplify the voices of vulnerable patients in our community? #patientchat

Empowered Patient Chats (#patientchat) are held every other Friday at 10:00 am Pacific / 1:00 pm Eastern and during the chat patients and advocates come to learn from each other and discuss topics of interest to empowered patients.

Click HERE to learn more about the Empowered #patientchat Series plus read tips on how to participate.

I'll be at the Empowered #patientchat on Fri 4/16 1pm ET. Join me! Click To Tweet