Posts

Open Mic #patientchat Highlights

Last week, we hosted an Open Mic Empowered #patientchat. The #patientchat community came together for an engaging discussion and shared what was their mind.

Top Tweets


“How do you keep focused on yourself and the things you have rather than what you don’t?”


Mental Health’s Stigma


Mental Health Should Be Apart of Care Coordination


Full Chat

How to Read and Understand Scientific Research #patientchat Highlights

Last week, we hosted an Empowered #patientchat on how to read and understand scientific research. The #patientchat community came together for an engaging discussion and shared their best advice and tips.

Top Tweets and Advice


Understanding Scientific Research Is Critical


Science should be accessible to all


“The whole of science is nothing more than a refinement of everyday thinking”


Full Chat

Managing the Emotions of a Chronic Illness #patientchat Highlights

Last week, we hosted an Empowered #patientchat on managing the emotions of a chronic illness. The #patientchat community came together for an engaging discussion and shared their best advice and tips.

Top Tweets and Advice


Step One: Acknowledgement


Emotions Aren’t “Negative” or “Positive”


“We all deserve the freedom to express feelings all the time”


Full Chat

How Does An Empowered Patient Approach Care Coordination? #patientchat Highlights

Last week, we hosted an Empowered #patientchat on leveraging social media for patient advocacy. The #patientchat community came together for an engaging discussion and shared their best advice and tips.

Top Tweets and Advice


Care Coordination Means Everyone Is Working Together

 

 

 

 


You Are Your Own Best Advocate

 

 

 

 

 

 

 


Work For What You Deserve

 

 

 

 


Full Chat

Leveraging Social Media for Patient Advocacy #patientchat Highlights

Last week, we hosted an Empowered #patientchat on leveraging social media for patient advocacy. The #patientchat community came together for an engaging discussion and shared their best advice and tips.

Top Tweets and Advice


Social Media Helps Your Connect with Others

 

 

 

 

 

 

 

 

 

 

 

 

 


Just Start

 

 

 

 


Think About When You Were Sick

 

 

 

 


Full Chat

 

Patient Access: Let’s Talk Healthcare Conferences #patientchat Highlights

Last week, we hosted an Empowered #patientchat on the power of patient storytelling with special guest HealthSparq (@HealthSparq) to explore the accessibility of patients to attend healthcare conferences. Lisa Deck (@lbdeck) and Emily McIntosh (@mcintose) the winners of two patient scholarship also joined us. Their scholarship goes towards attending the The Patient Experience Symposium.

The #patientchat community came together and shared their best advice and tips.

Top Tweets and Advice


We Still Have A Long Way To Go


Importance of Inclusion


Less Swag, More Patients


Full Chat

 

Applying Patient Advocacy Initiatives to Your Patient Journey #patientchat Highlights

Last week, we hosted an Empowered #patientchat on applying patient advocacy initiatives to the patient journey with special guest Seth Rotberg (@Srotberg15). Seth is a rare disease advocate and motivational speaker who is passionate about bringing his personal experience to better support the health community. The #patientchat community came together and shared their best advice and tips.

Top Tweets and Advice

 

You Have Power

 

 

 

 

Be Confident

 

 

 

 

Patient Advocacy Has Benefits

 

 


Full Chat

 

Finding Your Voice #patientchat Highlights

Last week, we hosted an Empowered #patientchat on finding your voice and what stops patients from seeking a second opinion.

A second opinion is crucial to prevent misdiagnosis or unnecessary procedures or surgeries. A study done by Mayo Clinic showed that as many as 88% of patients who get a second opinion go home with a new or refined diagnosis. That shows that only 12% of patients receive confirmation that their original diagnosis was complete and correct. Still, a lot of patients never get second opinions. So, we wanted to chat about this and see what the Empowered #patientchat community had to say, and these were the main takeaways:

The Top Tweets…

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 


Full Chat

Starting the Year Empowered #patientchat Highlights

On Friday, January 11th, we hosted an Empowered #patientchat on starting the new year off empowered. This time of year is a good time to reflect on the past year and set goals for the new year – including being empowered in your health.

Being an empowered patient can have many different definitions, but most include patients taking an active role in their health by furthering their education on disease and treatment options, participating in shared decision-making with healthcare professionals, and advocating for themselves to get the best care they deserve.

The Top Tweet Takeaways…

 

You Are the Expert of YOU

Inspire by Example

Organization is Key


Full Conversation

Introducing Our New Facebook Community: Empowered Patient Chat

We are excited to announce that our new Facebook group is now live, and waiting for you to join! This new online community builds on the success of our Empowered Patient Chat (#patientchat) tweetchat and aims to extend the discussion beyond Twitter and engage a larger population of patients and caregivers on Facebook.

Living with a disease or other chronic condition is challenging for patients, their families and friends. The Empowered #patientchat strives to engage and empower patients and caregivers by connecting them with each other, sharing resources and inspiration across conditions, and exploring important topics of interest to those in healthcare who want to elevate the patient voice in all healthcare matters. The community is guided by a belief in keeping the patient perspective at the forefront of all healthcare interactions, the strength of peer support, and the power of shared decision making in healthcare. 

Empowered Patient Chat (#patientchat) is a community of patients, caregivers, and healthcare professionals, interested in achieving their best health possible by discussing topics of interest in healthcare from a patient’s perspective. 

Topics of interest have included:

  • Including Patients and Care Partners: Let’s Talk Healthcare Conferences
  • Overcoming Disparity in Clinical Trials
  • Are We Missing the Mark with Patient Involvement
  • Understanding Medical Research
  • How Does Technology Benefit Patients
  • How to Include Patients in Design
  • What to Do When No One Will Listen
  • Caring for the Whole Person
  • Self-Care Goals
  • Managing Stress of Being a Patient
  • and more…

Join our group today

Press Release

Patient Empowerment Network to acquire

Empowered Patient Chat (#patientchat) series

June 1, 2017… Patient Empowerment Network (PEN) is pleased to announce the acquisition of the Empowered Patient Chat (#patientchat) series from Los Angeles digital health startup Intake.me. Empowered Patient Chats are hosted on Twitter by @patientchat every other Friday at 10:00 am Pacific / 1:00 pm Eastern. During the popular tweetchat, patients, care partners, advocates, and health care providers come together to learn from each other and discuss topics of interest to empowered patients.

A disease diagnosis can be overwhelming for patients and family members. Patients are suddenly buried in information and faced with difficult decisions. Living with a disease or other chronic condition is challenging for patients, their families, and friends. The aim of the #patientchat is to engage and empower patients by connecting them with each other, sharing resources and inspiration across conditions, and exploring important topics of interest to those in healthcare who want to elevate the patient voice in all healthcare matters. The community and series are guided by a belief in keeping the patient perspective at the forefront of all healthcare interactions, the strength of peer support, and the power of shared decision making in healthcare.

Intake.me launched the initiative in 2013 and most recently co-hosted an hour-long #patientchat that gained 5.4 million tweet impressions with 143 participants.  Past #patientchat guests have included Tal Givoly of Medivizor, Martine Ehrenclou who authored The Take-Charge Patient, Dr. Rob Lamberts, and patient advocates from different patient communities such as Alan Brewington @abrewi3010, Melissa Adams VanHouten @melissarvh, Liza Bernstein @itsthebunk and Richard Kreis @kreisr1. A variety of patient empowerment topics have been covered including: Coordinating Your Care, Building Your Healthcare Team, Accessing Your Medical Records, Caregiving, Participating in Research, Doctor-Patient Communication, Finding Support, Mental Health, and Integrative Medicine.

Intake.me’s Co-Founder and CEO, Darla Brown, shared, “Since its inception in 2013, the Empowered Patient Chats have grown from a few patient advocates tweeting and sharing ideas about the patient perspective to one of the most popular and influential tweetchats for patients.  Our mission has been to amplify the patient voice, connect advocates, caregivers, and healthcare providers, and host a safe space for meaningful dialogue to propel the patient experience forward and to let patients know they are not alone in their healthcare experience.”

“The Empowered Patient Chat community is a strong, supportive community and we are confident the Patient Empowerment Network will continue to host guests and topics of interest to all patients. Our work with the Patient Empowerment Network on ePatient101.com and other joint projects gives us great confidence in our shared mission of patient empowerment and education.”

“The participants make #patientchat great. It is an honor and a privilege to nurture the incredible space Intake.me created for thoughtful discussion, where diverse perspectives enhance and build the community,” said Christina Lizaso, Community Manager for Intake.me, who will remain involved during the transition. “I’m grateful and excited for the future of #patientchat and I look forward to participating.”

“We are thrilled to take up the reins of the Empowered Patient Chat. Intake.me has done a wonderful job creating and sustaining this initiative, and we look forward to continuing this important work. PEN aims to educate and empower patients so they can make the best and most informed decisions about their health. We can’t think of a better way to exemplify this than by carrying #patientchat forward,” said Joan Justice, Executive Director of Patient Empowerment Network.

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About Patient Empowerment Network (PEN)
PEN’s mission is to fortify cancer patients and care partners globally with knowledge and tools, boosting their confidence and putting them in control of their healthcare journey and assisting them to get the state-of-the-art, personalized care they deserve. For more information, please visit our website http://www.powerfulpatients.org/pen/

About Intake.me
Founded in 2013, Intake.me is an innovative digital health startup located in Los Angeles focused on amplifying the patient voice in their healthcare encounters. Founded by Emily Lu, MD, and Darla Brown, in addition to the Empowered Patient Chat series and the Intake.me digital health application, the company has focused on creating educational content for patients and caregivers through its online health academy ePatient101.com. Recent courses created by Intake.me on the platform have included Empowered Patient 101, Caregiver 101, and Chronic Lymphocytic Leukemia 101.

For Media Inquiries please contact:
Patient Empowerment Network
Kara Rayburn
Director of Digital Communications
kara@powerfulpatients.org

 

ePatient 101 Course – Thoughts and Opinions

Having trouble navigating the healthcare industry? Overwhelmed with all the decisions you need to make? Buried in all of the information? If you answered yes to any of those questions, then the ePatient 101 Course could be just what you’re looking for. ePatient 101 was created by Intake.me to empower patients, caregivers, or patient advocates in all of their health matters. Being an “ePatient” means becoming empowered, educated, and engaged in your disease.

The course is laid out in four key components:

  • The course itself with tips and advice from experts and patients
  • Exercises to form your own ePatient toolkit
  • Technological tools to help organize your information on the intake.me platform
  • Patient chat community for support and troubleshooting

This format allows you to have the confidence and strength to be able to best advocate for yourself. This course has received rave reviews and you can read some of those below. Oh, and did I mention it’s free to all!

“What’s great about the virtual learning environment is that it allows you to combine video, audio and other multimedia content from multiple sources into one, easy-to-access place. Users get carefully curated content that feels fresh and that they can complete at their own pace.

“The benefit of the eLearning environment is that its able to meet you where you are… you can do it anytime, anywhere, and you don’t need to spend a lot of time or money to gain valuable tools and insight on topics that can greatly impact your health and the health of those around you.”
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Coming Soon!
“We are excited to partner with the Patient Empowerment Network because our missions align perfectly: we’re all passionate about empowering patients throughout their healthcare journey. With the folks at Patient Empowerment Network, we’re able to provide our first disease-specific courses, starting with CLL 101 (Chronic lymphocytic leukemia), and we look forward to co-creating more courses through our partnership in the future.” – Darla Brown, intake.me founder

[lead]Join us on Fri 3/18 1 PM ET/10 AM PT for an Empowered #patientchat on Twitter (@power4patients) with our friends @intakeme[/lead]
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