How Can MPN Patients Amplify Their Voice?

How Can MPN Patients Amplify Their Voice? from Patient Empowerment Network on Vimeo.

MPN Network Managers Jeff Bushnell and Summer Golden, a husband and wife team, share how they cope with a diagnosis of myelofibrosis. Both highlight the importance of patients and care partners amplifying their voice as part of the coping process.

The Importance of Living in the Moment

The Importance of Living in the Moment from Patient Empowerment Network on Vimeo.

Jeff Bushnell and Summer Golden, MPN Network Managers at the Patient Empowerment Network share the importance of truly living in the moment. Summer shares how Betty Boop, her pink poodle, was diagnosed with lymphoma. Fortunately, Betty was able to pull through, emerging as resilient. Both Jeff and Summer were inspired by Betty Boop, to redefine what it means to live in the moment. They both share how living in the moment has allowed them to cope with Summer’s diagnosis of Myelofibrosis.

What activities keep you living in the moment? Share it with Jeff and Summer! question@powerfulpatients.org

Meet Our MPN Network Managers: Jeff and Summer

Meet Our MPN Network Managers: Jeff and Summer from Patient Empowerment Network on Vimeo.

Our MPN Network managers, Summer Golden and Jeff Bushnell of San Diego, California, discuss how a diagnosis of myelofibrosis–a rare blood cancer of the bone marrow–almost derailed their lives. Jeff and Summer share how transforming their fears, using comedy as medicine and becoming more knowledgeable about myelofibrosis led to them becoming more empowered partners in care.