Downloadable Guides
How Can Technology Help You Become an Empowered Patient?
Resource Guide_VID1
digital sherpa® Checklist
During your 1:1 call, you should be able to accomplish the following:
□ Review Digitally Empowered® Course and see if they have any questions
TIP: Refer to the downloadable guides
□ Ask if they have other questions or challenges that you can help with
□ Help them join the Cancer Experience Registry – Review why and how to register and how to begin survey
TIP: Review why/how to register and how to begin survey
Registry Link: cancerexperienceregistry.org
□ Share Cancer Support Community’s resources:
MyLifeLine – a free social network site where patients and care partners can build a community
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- Easily connect with friends and family by creating your own website to regain control and receive social, emotion, and practical support throughout your cancer journey
- Ability to share updates and photos, create a helping calendar, and collect funds
- Access to toll-free number and online chat for emotional support and guidance by licensed counselors
- Resources on financial issues, health insurance, treatment options, clinical trials, diagnoses, nutrition, and much more
□ Make sure they know they can engage with PEN at any time
Facebook – facebook.com/power4patients
Facebook Group – facebook.com/groups/empoweredpatient
Twitter – twitter.com/power4patients
Signup for PEN’s newsletters – powerfulpatients.org/connect
digital sherpa® Icebreaker
If you are unsure where to begin your 1:1 call, ask your assigned patient these sample questions below to help you get started.
1. What are your expectations of this workshop? What motivated you to register for the digital sherpa Workshop?
2. What is the number one thing you would like to learn today?
3. What category/categories that you would like to learn more about?
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- Basics
- MyLifeLine
- CSC Events
- Ridesharing
- Patient Communities
- YouTube
- Clinical Trials
- Video Chatting
4. Is there one thing (or more!) that we can help you with today that would make your life easier or more efficient? Examples:
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- Where can you find support?
- Where can you look for reliable information about your condition?
- What are the latest treatments and innovations for my condition?
- I have a specific tech issue(s)
