PEN Blog Archives

Newsy Nuggets featuring Dr. Gary Puckrein

Newsy Nuggets brought to you by Diverse Health Hub


Data and Predictions in Healthcare: Lessons from the COVID-19 Pandemic

Using data to predict outcomes is healthcare in the 21st century. In light of the pandemic, Dr. Gary Puckrein of the National Minority Quality Forum brings up important lessons about how projections from data on COVID-19 correctly anticipated hospitalization rates. This ability to anticipate is also relevant for other disease areas, and informs therapy to maximize positive individual outcomes.

Transcript:

Christian Strohm: You’re listening to a Newsy Nugget brought to you by Diverse Health Hub, a health equity education and awareness channel. I’m Christian Strohm, and thanks for tuning in! We had the opportunity to speak with Dr. Gary Puckrein, president and CEO of the National Minority Quality Forum. Dr. Puckrein highlights the power of data in predicting health outcomes, and discusses the opportunity for intervention in context of the COVID pandemic.

Dr. Puckrein, can you speak on any valuable lessons that we all should learn from this COVID pandemic?

Dr. Gary Puckrein
So, there’s a couple, you know – obviously we’re very early into the epidemic and so it’s hard to draw a lot of lessons and as we get through this, we’ll have time for that. But a couple of quick observations that I would like to make, one is that where healthcare is going these days, it’s about predictions, right? Here, we can predict in January what this virus is going to be doing in populations in April and May. You could do the same thing with diabetes, with heart failure, renal disease, all of those chronic diseases. When you look at hospitalization rates, mortality costs, those are all highly predictable and the ability to predict means you have the opportunity to intervene and that’s what big data is about. It’s about using that data to get the best possible outcome for patients and so, one of the lessons we hope – as we move away from this virus and get control over it, is that we learn a big-time lesson which is we have a lot of ability to control. And so, what we talk about less these days is about health disparities and more about controlling health outcomes. We have the capacity to control health outcomes which is a big deal. You couldn’t say that in the 20th century or the 19th century, so the partnerships that we form is really about how do we support local care networks to get predictable positive outcomes for patients.

Christian Strohm: Thank you for listening. I’m Christian Strohm and we hope you enjoyed this newsy nugget. Find more on our website, diversehealthhub.com


Does the Pandemic Reveal Cracks in our Healthcare System?

The COVID-19 pandemic is a stress on global healthcare systems. Dr. Gary Puckrein of the National Minority Quality Forum remarks on the cracks in the American healthcare system that have appeared under this stress. He reminds us about the Constitution as the social contract that all Americans have entered into, and the role of healthcare in guaranteeing life, liberty, and the pursuit of happiness.

Transcript:


Christian Strohm
:
You’re listening to a Newsy Nugget brought to you by Diverse Health Hub, a health equity education and awareness channel. I’m Christian Strohm, and thanks for tuning in! We had the opportunity to speak with Dr. Gary Puckrein, president and CEO of the National Minority Quality Forum. Dr. Puckrein remarks on the American social contract, and what this means for access to basic healthcare.

Dr. Puckrein, I’d like to ask you from a policy perspective, do you see benefits to expanded coverage in reducing healthcare inequities?

Dr. Gary Puckrein:
Well certainly, ACA (Affordable Care Act) has expanded the number and diversity of the population with health insurance in this country. One of the – one of the key things to bear in mind. And this is where politics and healthcare come together, when you go back to the founding fathers and you look at the system that they designed, what they said was the reason that we’re all coming together in this social contract is life, liberty, and the pursuit of happiness. Life meant preservation of life, that one of the reasons why we agree to come together is to conserve life and denying someone in the 21st century healthcare is in fact, breaking that social contract. We didn’t enter this to say that some people should have healthcare, and some people should not. That wasn’t the deal. The deal was we’re all coming together, in the body politics to conserve life, preserve our liberties, and pursue happiness. And so, I think what we’re seeing now and I think this pandemic is a great example, the cracks in our system that are showing up from access to basic health insurance. Think about it, people today who have no healthcare insurance going into hospitals or physicians because of the pandemic and the burden that places on those hospitals, unfortunately with new legislation some of that care will get reimbursed, but we still don’t know what after effects come out of this virus in terms of impact on populations and exacerbation of things like asthma and diabetes and whatever chronic diseases that people might face. And so, we sort of crossed the Rubicon in terms of whether everyone should have healthcare. The answer is yes indeed, they must have it and obviously the discussion is to be around what is at healthcare and what ought to be its purpose and as I said I think its purpose has got to be reducing the risks of that and anything short of that is really not quality care.

Christian Strohm:
Thank you for listening. I’m Christian Strohm and we hope you enjoyed this newsy nugget. Find more on our website, diversehealthhub.com


Does COVID-19 Illuminate Healthcare Cost Hypocrisy in America?

The COVID-19 pandemic does not care about the ranks we decide to lay upon people. Dr. Gary Puckrein of the National Minority Quality Forum tackles the policy positions that result in the access to and cost of healthcare in America.

Transcript:


Christian Strohm:

You’re listening to a Newsy Nugget brought to you by Diverse Health Hub, a health equity education and awareness channel. I’m Christian Strohm, and thanks for tuning in! We had the opportunity to speak with Dr. Gary Puckrein, president and CEO of the National Minority Quality Forum. Dr. Puckrein discusses access to healthcare in America, and how the COVID pandemic is shaping the dialogue.

For us in America, we often hear it argued that the cost of quality healthcare makes it impossible to extend to everyone. Dr. Puckrein, can you remark on this policy position in light of the COVID pandemic?

Dr. Gary Puckrein:
Yeah, I see when people talk about the cost of healthcare, what they’re really talking about is the cost of healthcare for their neighbor, they’re not talking about the cost of healthcare for themselves because the cost of healthcare for themselves is “I want the best possible healthcare I can get. It’s my neighbor’s healthcare that I’m afraid that you’re asking me to pay for that I’m really concerned about.” And that’s a wrong way to look at it. We cannot build a healthcare system for the 1%. Look at this virus, look at what it’s doing to the 1% — the heir apparent to the throne of England, or actors and actresses, and senators — it doesn’t care, the virus actually is complete agnostic to all of the ranks that we decide to lay upon people and treats everyone just the same. And so, if we’re going to fight the pandemic we have to fight it collectively. It’s not that we can say everybody’s whose income level is “x” stay home and everybody whose income is “y” can get to go outside. No, everybody has got to go indoors because the virus doesn’t care. And the same way with diabetes, heart failure and renal disease, cancers in none of those can we just build a healthcare system for that 1%. And so, when we’re talking about reducing risks we have to be talking about if everyone and the idea that we can’t afford it is ridiculous, it’s where we want to put our money is really what the answer is.

Christian Strohm:
Thank you for listening. I’m Christian Strohm and we hope you enjoyed this newsy nugget. Find more on our website, diversehealthhub.com


Newsy Nuggets podcast, produced by Diverse Health Hub. Special thanks to Dr. Gary Puckrein, President and Chief Executive Officer National Minority Quality Forum.

How to Stay Healthy after Breast Cancer Treatment

Numerous research studies have shown that avoiding sedentary life and taking regular physical exercise, along with a healthy diet and habits, is essential to prevent breast cancer.

But what about women who have already suffered from this disease and are still in the treatment and recovery phase? Although studies focus on specific sports such as Nordic walking or archery; experts are clear: physical activity can bring many benefits both physically and psychologically.

Fewer Relapses and Higher Quality of Life

According to data from the GEICAM Breast Cancer Research Group, women who remain active after diagnosis have a 67% lower risk of relapse than those with an inactive lifestyle.

In addition, regular exercise improves your quality of life. Exercising helps reduce fatigue and sleep problems. Besides, staying active improves the patient’s mood, increases her sense of well-being and reduces stress and anxiety.

Recovering from Breast Surgery

If there is no edema (swelling) or pain, the patient can return to normal life one week after the surgery. And if everything goes well, she can start playing sports in the first few weeks.

In some cases, however, it may be necessary to put yourself in the hands of a specialised physiotherapist before that. The consequences of the surgery vary depending on whether it has been conservative – the tumour has been removed while maintaining the breast – or a mastectomy has been necessary.

There may be a shortening of the skin between the chest and the armpit that affects the length of the arm. There may also be peripheral nerve-type sequelae, such as pain or lack of sensation. Especially in the case of mastectomy, but sometimes it also happens with conservative surgery.

“Physio” to Prevent Lymphedema

When it has also been necessary to remove the lymph nodes (lymphadenectomy), there is a 10% chance that the patient will suffer from lymphedema, a risk that increases to 20-25% if radiotherapy is also performed in the armpit, according to data from the Spanish Association Against Cancer.

Lymphedema consists of an accumulation of fluid in the arm, which causes an increase in its perimeter, heaviness, hardening, pain and difficulty in moving it.

In cases of lymphadenectomy and mastectomy 3 weeks or a month of physical therapy aimed at mobilizing the arm to prevent and treat these problems are recommended.

The specialized physiotherapist will adapt the treatment to each patient and then recommend which sports are most indicated in each case. As well as the stretching, relaxation and breathing exercises that can be done at home.

Exercising Strengthens the Immune System

What if the patient has to have radiation or chemotherapy? In this case, the treatment does not influence the possibility of starting physical exercise, although it is recommended to individualize it. In other words, adapt it to the patient’s condition and the physical activity to which she was previously accustomed.

There is evidence when regular practice can improve recovery of defenses, for example, influence of chemo is reduced.

Decrease the Side Effects

The breast cancer specialist also points out that after surgery most patients have to follow hormonal treatment for 5 years which causes a series of metabolic changes.

It can cause different disorders such as increased cholesterol, mood swings, etc. And it has been proven that exercising can help regulate these changes, reduce the side effects of hormone treatment or at least lower its intensity.

Better Aerobic Sports

As for what type of sports can be most recommended; there are none that are contraindicated, but that they should be evaluated individually.

The recent scientific evidence is in favor of aerobic and endurance exercise. Increased body mass index is associated with an increased risk of recurrence (reoccurrence of the disease) due to the mechanism of hormone production. And the weight control achieved with aerobic exercise is associated with the prevention of relapses.

Walking at a good pace, running, cycling or swimming are some of the aerobic exercises. Being lower intensity sports, but performed for longer, they are beneficial for the cardiovascular system and lung capacity, and improving endurance.

Besides, doctors highlight swimming, since in addition to mobilizing the arms, in water exercises the impact on the joints is cushioned, an aspect that must be taken into account if the patient suffers from osteoporosis or osteoarthritis as can happen after menopause. Swimming does not harm anyone.

Nordic Walking

I’m sure you’ve seen quite a few people walking around town with sticks lately. It’s called Nordic Walking and several studies have shown that this sport, which is affordable and easy to practice and can also be very beneficial in the recovery from breast cancer.

A publication by a group of Italian scientists describes that Nordic walking activates the trunk and upper limbs when walking, increasing their range of motion and the body’s total muscle strength.

By working the upper body (arms, shoulders, back), it improves blood circulation in the arms, stimulates lymphatic drainage and can improve secondary lymphedema in breast cancer.

The specialist recalls that lymphedema and alterations in local sensation, as well as the risk of deep vein thrombosis due to local circulation being affected are the main sequelae in the case of mastectomy if accompanied by lymphadenectomy.

And to prevent these problems, it may be advisable to do any exercise that is aimed at weight control and improving the venous return of the extremities”.


About the author: Nicholas H. Parker is a nutritionist and allergy expert. Besides, he has his own column on the site, hire essay writer service. So he can share his experience with others. In this case, Nicholas has an opportunity to deal with work and hobbies simultaneously.

Tips For Seniors Who Have Cancer and Dementia

As people age, the body deteriorates and so does health. This is why getting or developing diseases is much more common to elderly individuals. While diseases are more common in the elderly, it is worth noting that this is not normal, in any way. You can grow old without having to suffer or live with a disease of any kind.

But, due to several reasons and factors, like a weakened immune system, diseases may still develop. And some of these include dementia and cancer.

If you know someone, especially within your family who is at risk for dementia and/or cancer, this post might help.

Introduction: Understanding Dementia and Cancer

Dementia

Dementia is very common for seniors and older adults. But, just like any disease and condition, it is not normal for aging people to develop dementia despite the fact that many senior citizens have the condition.

By and large, dementia is not a disease. Rather, it is a syndrome that encompasses a group of symptoms that has not been diagnosed with any condition yet. Alzheimer’s Disease is one of the many forms of dementia, and it is the most common of all.

As per data, AD accounts for almost 80 percent of people diagnosed with dementia. Although the two conditions may have similar symptoms, there are different ones as well.

Cancer

Meanwhile, cancer can happen to anyone at any age. But, the median age is above 40. Also, it can occur anywhere in the body as it is the uncontrolled growth of abnormal cells in the human body.

Individuals develop cancer when the body’s ability to control the growth of the abnormal cells stop working. Instead of the old cells dying, it grows out of control, which then forms new abnormal cells.

There are different types of cancer. For women, the most common is breast cancer while for men, it is prostate cancer.

The Risk of Cancer In Dementia Patients

According to https://www.memorycarefacilities.net/, the risk of developing cancer in dementia patients is very low. While there is no direct relationship between the two, studies and data show that there is an inverse relationship between the two conditions.

In conclusion, people who are living with dementia have a very low risk of developing cancer. However, low risk is still different from no risk. So, there are still a few individuals who are living with dementia who have developed cancer.

The Risk of Dementia In Cancer Patients

As mentioned, there is no direct relationship found between cancer and dementia. So, there is an insignificant number of cancer patients who have developed dementia. But, the same with reversed dynamic, there are still a few people who obtain and develop the two conditions at the same time.

It is also worth noting that several studies reportedly show that cancer patients tend to develop some symptoms that may be similar to dementia. Typically, people who have brain cancer are the most common ones who show some symptoms of dementia. These symptoms may include forgetfulness, confusion, and disorientation.

These studies also noted that cancer patients who have developed dementia are normally the ones who have undergone treatments and surgeries. While the studies have remained inconclusive, there are significant factors that seemingly prove so.

When Dementia and Cancer Collide

Dealing with dementia patients and cancer patients alone is already challenging enough. These two conditions are very different from each other. So, the care, treatment, and management also differ from one another. Therefore, when a patient develops both cancer and dementia, this is certainly very challenging not only for the patient but, also to the caregivers and family members involved.

As per actual caregivers and experts from https://www.seniorlivinghelp.org, when dealing with patients who have both cancer and dementia, the most important thing to be resolved is to decide whether treatments for both conditions will be given to the patient. While it is a very difficult thing to decide on as life is on the line, sadly, this is a must.

So, if dealing with this kind of situation, it was said that two questions will help you move forward. First, how advanced is dementia; second, what is the stage, type, and severity of cancer.

After understanding and learning the answers to these questions, this will help you decide how to effectively deal with a patient who has both cancer and dementia.

How Does Cancer Affect Dementia In Elderly

Cancer has a huge impact on dementia patients. When treating cancer, keep in mind that the process will be tedious, rigorous, and meticulous. It will take time, effort, and resources for the treatment to become a lot more effective. Accordingly, dementia patients will certainly have a harder time dealing with this kind of condition.

There are times medications will be forgotten, treatments will not be followed, and necessary processes may become much more confusing. So, the challenge will become even more apparent not only to the patients but, to the caregivers as well.

Tips When Considering All Aspects Moving Forward

As repeatedly mentioned, this kind of case is very challenging. So, serious considerations and regards to matters involved in the case are largely needed.

In the past, medical experts and doctors would decide what’s best for the patients. But, times have changed and the decision-making is now being given mainly to the family and loved ones of the patients.

Here are some of the things that you may need to look at when moving forward:

  • Condition of the patient
  • Financial matters
  • Personal challenges
  • Treatment options
  • Possible impact and result of treatments

Final Thoughts

Seniors who have both cancer and dementia are faced with tremendous challenges physically, mentally, and emotionally. The same is also true for the caregivers and families involved in the situation. While some families are able to care for their loved ones at homes, others may need to look for assisted living for cancer patients. So, there is no doubt that considering all matters at hand is a must when deciding the best action to move forward for the betterment of everyone’s condition.

These tips and points might help you in doing so. Hence, you may want to check each and try to analyze further what could help. In the end, though, this remains to be a case-to-case basis as no situation is the same.


Fact or Fiction: Finding Scientific Publications Infographic

Our AML Network Manager, Gerri Smoluk, shares her tips for finding and understanding scientific publications.

Finding-Scientific-Publications-1-1

 

How Can MPN Patients Amplify Their Voice?

How Can MPN Patients Amplify Their Voice? from Patient Empowerment Network on Vimeo.

MPN Network Managers Jeff Bushnell and Summer Golden, a husband and wife team, share how they cope with a diagnosis of myelofibrosis. Both highlight the importance of patients and care partners amplifying their voice as part of the coping process.

Family Life When Dealing With Cancer

Ways for families to deal with cancer. How to support patients and how to get used to a new lifestyle.

How Does Cancer Affect Family Life?

A cancer diagnosis doesn’t only affect the patient but his or her family. For family members, it’s difficult to hear such a diagnosis since their worries become much more intense and can affect the life of a patient. Cancer is scary and we don’t want to believe that it can happen to any of us one day. However, the statistic shows that a huge percent of people who fight cancer die.

My mother was diagnosed with cancer almost 2 years ago and life has changed a lot. Many times I wished it should have never happened but then I realized that I just have to get used to a new lifestyle. It happened to the person who I love a lot and we just have to deal with it. 

How Does Cancer Affect Marriage?

Over the last two years since my mother was diagnosed with cancer, I thought that my parents could divorce. Why? There is a lot of pressure on a person who was diagnosed and his/her partner who is watching another suffer. My parents have experienced anger a lot. They were arguing, getting annoyed with each other and felt helpless. My father felt especially helpless at times when he couldn’t help my mother. All he could do was to suggest what my mother should do. When a partner becomes an “expert” and thinks he/she knows best, it provokes conflicts and this is what everyone should avoid. Now I know that no one knows better than a patient. We can follow other people’s examples, read many books, listen to advice but no one knows better than a person who is suffering from cancer. 

My parents had many dreams and plans. They wanted to travel especially to hot countries. However, when you are diagnosed with cancer, doctors suggest avoiding the sun as much as possible. Of course, this also affects the relationship because both people get frustrated. Instead of traveling to somewhere you wanted for the last few months, you continue going to work and the feeling of a “tense atmosphere” is always present. 

How Can Family Members Help? 

At first, you don’t want anyone to know what kind of problem you are dealing with. Not everyone likes when others feel sorry for you. Even though family members try to support you they can’t help but feel sorry for you. My mother didn’t want anyone to know about her diagnosis. However, my father insisted on telling the family members and seeking help. As a result, it made everyone worry. People started calling my mother asking how she feels and suggesting her to have surgery and chemotherapy immediately. This is when my mother regretted others knowing her diagnosis. 

When we hear too many opinions and advice, it can be difficult to hear ourselves. My mother was strong enough to stay true to herself and follow the route she thought was the best for her. 

Healing

After visiting many doctors and hearing the same verdict which didn’t sound positive, my mother decided to change her life. She changed her diet, she started to exercise more, and she made her dream come true which was to become a nutritionist. She works hard mentally every single day: she doesn’t allow the fear of death to overcome her positive emotions and she believes that everything she does heals her. What did we have to do? Me, my father and our family members had to accept that from when my mother was diagnosed with cancer, life could have never been the same. 

It’s still difficult at times because my mother didn’t fully recover but she loves herself much more than before. My parents have a better relationship than before the scary diagnosis. My mother found many like-minded people who support her. The diagnosis taught us all to be more patient, caring, supportive,  understanding and live every day gratefully.

Ways Families Should Deal With Cancer

Medical experts say that communication is important between people with cancer and those who care for them. We have to try to understand each other and try to put ourselves in someone else’s shoes sometimes. It teaches us to be compassionate and express words of love instead of criticism.

It’s important to know what a patient wants. Family members should ask how they can help. Pushing help and feeling sorry for someone who has been diagnosed is what we need to avoid. There are several ways in which family members can help a patient: come on medical appointments with a patient, helping with treatment or just being a good friend who can listen and support.

Cancer shouldn’t create distance. People shouldn’t isolate. A family should adjust to a new lifestyle and don’t look at a diagnosis as at a dark cloud hanging over their lives. We took the diagnosis as another challenge in life that has been given as a lesson. In my mother’s case, the diagnosis brought us closer. 


Resource Links:

The Crisis of Cancer: Psychological Impact on Family Caregivers

The Effects of Cancer on Family Life

How Cancer Affects Family Life

Author’s Bio: 

Louis Robidoux is a blogger who enjoys writing articles that are of great interest to society. After having lots of posts published on different platforms, Louis decided to create his own site deeptop10.com where he’s covering topics about food, interesting hacks, and lifestyle.

Best Practices for Participating in a Patient Community #patientchat Highlights

Last week, we hosted an #patientchat on “Best Practices for Participating in a Patient Community” with Carly Flumer (@carlyflumer). The #patientchat community came together for an engaging discussion and shared what was their mind.

Top Tweets

Dos and Don’ts


A Good Online Community


Always Somebody There


Full Chat

Your Guide: How a Proactive Cancer Patient Tackles Lymphedema

Patients and caregivers are often consumed in the weeks after diagnosis with learning medical jargon, interpreting data, and understanding their options. Lymphedema is one of many new terms they may hear, and their medical provider may not spend much time discussing this potential post-treatment affliction. Understandably, treating cancer is the priority.

However, lymphedema is a chronic, progressive, and incurable condition and the risk should not be ignored. If your cancer treatment involves removal or damage of lymph nodes, understanding lymphedema can go a long way preparing for and even mitigating the risks of developing a debilitating condition in the months and years following your cancer treatment.

Be Proactive Before Surgery

Understand What Lymphedema Is

Lymphedema is a lifelong disease. It cannot be cured. It most often involves swelling in arms or legs but can also affect the head, neck, trunk, and genital area.  While some people are born with a genetic condition that leads to lymphedema, seven of the estimated 10 million Americans with lymphedema developed it as a result of cancer treatment.

It is caused when a person’s lymph nodes are removed or damaged. This impairs the lymphatic system causing lymphatic fluid to build up in the body.  Pain and fatigue are common with lymphedema.  Swelling can limit mobility and lead to structural change in the affected body part. Impairment of the lymphatic system can affect a sufferer’s immune system and cardiac or neurological health. Lymphedema sufferers are also at a higher risk for social isolation and depression.

Know Your Risk

There is a risk of lymphedema for any cancer patient who has lymph nodes removed or damaged, such as by radiation. While most patients do not develop the condition, medical experts do not yet understand why some patients develop lymphedema and others undergoing the same treatment do not.

Certain cancer patients are at a higher risk for treatments that result in lymphedema. The Lymphatic Education & Research Network offers these estimates for the percentage of patients by cancer type that develop lymphedema:

  • 30% of breast cancer patients  
  • 30% of sarcoma patients
  • 20% of gynecological cancer patients
  • 16% of melanoma patients
  • 10% of urinary cancers patients
  • 4% of head & neck cancers patients

The risk of developing lymphedema never completely disappears after the loss of lymph nodes.  Approximately 80-90 percent of those who develop it, do so in the first year after the loss of the lymph nodes. The remaining cases can develop even years after cancer treatment.

That’s why recognizing the signs of lymphedema is essential for a survivor who loses lymph nodes to cancer treatment.

Have a Monitoring Plan in Place

There are several ways to monitor a patient for lymphedema including circumference measurements, bioimpedance spectroscopy (BIS), water displacement, tissue tonometry, perometer, or lymphangiography. 

Circumference measurement is the most common tool because it’s inexpensive and easy to do. Patients undergoing lymph node removal should have preoperative measurements taken. Regardless of which monitoring strategy used, its important monitoring is overseen by a professional with training and experience with lymphedema.

If this monitoring is not part of your post-treatment or post-surgery plan, you can advocate for it. Monitoring is most crucial during the first year after removal or damage to the lymph nodes. Waiting for the patient to notice and report lymphedema symptoms like swelling, pain, or mobility limitations is not a good strategy. Medical monitoring can allow for earlier intervention and better outcomes.

Research Insurance Coverage

Investigate what your insurance plan will cover for therapy, prosthetics, orthotics, and durable medical supplies. Compression garments are one of the most common treatment tools for lymphedema. Yet most insurance plans—including Medicare—do not usually cover them.  Some plans limit the number of therapy visits or the types of therapy covered. Knowing what your insurance covers will prepare you should the need for treatment arise. Start by reading the Lymphatic Education & Research Network’s guide to insurance coverage for lymphedema.

If You Develop Lymphedema After Cancer Treatment

The Faster You Act, The Better

While there is still much to learn about lymphedema, one thing is certain: the earlier after developing lymphedema you begin treatment, the better the results. While it is incurable, lymphedema progresses in stages. Specialized therapies can not only improve symptoms but also slow the progression of the condition, resulting in a better quality of life for the patient.

Find a Certified Lymphedema Therapist or Other Experienced Professional

Patients who experience lymphedema induced swelling might notice that elevating the affected body part reduces swelling. A medical professional unfamiliar with lymphedema may even prescribe elevation.  While this might reduce swelling temporarily, elevating an affected limb is not treatment.

Treatment can involve compression wrapping or garments, lymphatic drainage massage, and decongestive exercise. In extreme cases, surgery is sometimes an option. While there are ongoing clinical studies into lymphedema treatments, no studies have yet identified an effective medication for treatment.

Look for a therapist or other medical provider with training specific to lymphedema when creating a treatment plan. You may be able to find a Certified Lymphedema Therapist in your area from the Lymphatic Education & Resources Network. Or ask your oncologist for a referral. 

Look for a licensed massage therapist with specialized training in manual lymph drainage. Sometimes referred to as lymphatic massage, this treatment differs from a traditional massage. Instead of manipulating soft tissue like muscles, fascia, and ligaments, the therapist works body areas where lymph nodes are located. They stimulate the flow of lymph with light, gentle pressure. Be aware, not all massage therapists are qualified to perform manual lymph drainage massage.

“While it is legal for a licensed massage therapist to perform lymph drainage, a practitioner who has gone through a certification program will have a greater knowledge of the scientific basis of lymphology, along with the physical handwork skills that are necessary to excel in this therapy,” explained LMT Nicole Anderson. “Most programs are around 135 hours for certification.”

Focus on Healthy Choices

Lymphedema can predispose a patient to skin breakdown, infection, and delayed wound healing. Meticulous attention to skincare and protection are essential to self-management of lymphedema. A small cut or even a sunburn can have significant consequences for someone with lymphedema.  The body produces extra fluid to deliver infection-fighting white blood cells to an injury, but in a person with lymphedema, the lymphatic system will struggle to remove the extra fluid.  The National Cancer Institute offers helpful guidelines for basic preventative self-care for people with lymphedema.

Other things that can exacerbate lymphedema include wearing restrictive jewelry or clothing. Excessive heat can be a problem and people with lymphedema are often told to avoid hot tubs and saunas. Alcohol can worsen symptoms. Air travel can also be a triggering event and people with lymphedema should consult with their medical provider before traveling. Sometimes special compression garments can be worn during travel to lower the risk of an adverse reaction.   

Good nutrition and staying active are also important for mitigating the effects of lymphedema. Regular movement and maintaining muscle tone help lymph fluid circulate and drain. Weight gain makes monitoring and treating lymphedema more difficult.

Educate Yourself

The Lymphatic Education & Research Network and the National Lymphedema Network are both great resources for people with lymphedema or anyone who wants to learn more. They provide educational resources, information about clinical trials, access to local support groups, and the latest research into lymphedema.

Don’t let lymphedema catch you or a loved one by surprise. There is much a proactive patient can do to prepare for and respond to lymphedema. Odds are in your favor you won’t have to confront this condition, but if you do, a little preparation will have a positive impact on your quality of life. 

Technology Updates in Curing Cancer 2020

Curing cancer is undoubtedly one of the biggest challenges of the 21st century. One can still not say for sure if the scientists would be able to find the cure for cancer by the year 2020 ends. Nonetheless, there is no denying the fact that the last two decades have seen significant advancements being made to cure cancer if not from the root, but at least after it has been diagnosed. Many technological advances have been made with more investments being made for the research and development of highly advanced equipment that can help from conducting tests, diagnoses, confirmation to providing a relatively easier solution to making it better.

According to the latest statistics published in the ACS Journal for cancer research and diagnostics, in 2020, there are an estimated 1.8 million cancer cases in the US alone. However, the cancer rate has increased since 1991 consistently declined throughout till 2017, bringing about a total of 29% decline. These figures estimate that if approximately 606,520 cancer deaths are going to occur in the US, it is 2.9 million fewer than what it had been like if no new advances would have been made.

Over the years, technology has played its part in greatly reducing these numbers. Let’s see what the new decade has in store to help tackle this disease.

12 Newest Technological Advancements of 2020 in Curing Cancer

Thus, here are the top twelve newest technological advancements being made in the name of curing cancer, diagnosing it accurately early on, and aiding in making it easier for the patients who are already suffering.

1.Personalizing Cancer Vaccines

Believe it or not, but a genetic mutation of cells causes cancer. The healthy cells transform into tumor cells in different parts of the body to cause cancer. As simple as it may sound, cancer is much more complex. As each cell growth can be very different from any other, this disease has severity levels of many different types that each of which may require individual attention, care, and medication.

According to Sean Marett, who is the CBO of the German immune-oncology company BioNTech,

“Mutations are random. If you look at one patient’s tumor and compare it to another patient’s, it would be highly unlikely that there will be a match.”

This is the main reason why BioNTech is proceeding with the development of personalized vaccines that will cater to every different type of cell growth.  

2. Fluid Biopsy

Cancer itself is gradually spreading, but the treatments of this disease put the person in a way more vulnerable position to adhere to pain. For instance, as a part of cancer treatment, there may come a situation where a single biopsy is not enough. There are many biopsies and re-biopsies required that put the patient in an uncomfortable position as it is a painful test performed through your back using your spinal cord. In such circumstances, a fluid biopsy would reduce the chances of going through the biopsy pain more than once by allowing to test the cancer cells through a single blood sample.

3. Guiding Immune Cells

The first approval of this cell therapy for cancer was seen in 2018. The technology behind this therapy is known as CAR-T cell therapy, is responsible for taking the patient’s immune T-cells, and by using genetic engineering, the cells would target the specific cancer antigen. There is no denying the huge success and immense progress that the clinical trials of the CAR-T cells have shown. Especially for patients that have already gotten rid of cancer but relapsed after some time and have already consumed all other options of medication to no avail, this technology guiding the immune cells to do the job would work progressively.

4. Smart Surgical Knife

Developed by Zoltan Takats of Imperial College London, this intelligent surgical knife is known as the iKnife, is a great tool to be soon incorporated in the surgical kit for oncologists. It works by integrating a rather traditional technology of electrical currents heating the tissue to make incisions. This allows precision, as well as minimal blood loss. And as the iKnife vaporizes smoke and analyzes it by a mass spectrometer, it detects chemicals in the biological sample for an accurate result and a successful surgery. Not only does this save time for the real-time identification of malignant tissue, but surgeons love the tool for saving their time as well by cutting the surgery time almost in half.

5. Using Microbes

In the last ten years, where the technological advancements were paving the way, the associated research allowed the scientists to uncover that many of the answers that we are looking for may reside right within our body. One of those discoveries was learning that our own microbiome that is the collection of the microorganisms that live inside our body, plays a huge role not only for cancer but for overall many other health aspects.

According to Christophe Bonny, CSO of a French company responsible for developing microbiome medicines,

“Elements of the microbiome play a role in suppressing an overactive immune system in inflammatory diseases, and in boosting a suppressed immune system in cancers.”

6. Next Generation of Targeted Therapies

Auto-Immune Deficiency Syndrome or AIDS became one of the more dangerous diseases sometime back in the last decade. However, by combining drugs that were developed to cater to different targeted diseases, it resulted in an overall major treatment success that was finally able to put a gap between the disease carriers. Now, applying the same trial and error logic to cancer, research was able to pick up that the same can be proven beneficial. New advancements made in the field of biology that utilizes computer models to predict which targeted medicines may work in the perfect combination to provide reduction for the cancer ailments.

7. Molecular Diagnostics

Many major research companies like Foundation Medicine are focusing on the early diagnosis of the disease than the actual cure. They believe the cure resides with the chemotherapy only if we turn down the severity of the disease and diagnose it as early as possible. They are adamant about working through molecular cancer diagnostics to develop test batches and clinical trial drugs that work just to recognize a stage one cancer right as soon as it develops in the cell. They hope that over time this will become the standard testing procedure followed by the tried and tested chemotherapy sessions that may even reduce in the number given how early the disease is caught.

8. Multifunctional Radiology

Radiology is already a successful domain in a lot of medical fields. However, without a doubt, future innovations are based on doing one successful technology work for interdisciplinary aspects. For instance, Magnetic Resonance Imaging or MRI machines is currently used for delivering gene therapy, but for the future, it can be a potential treatment for brain tumors. You can find related articles on the essay writers service that further elaborate on how multifunctional innovations would be the go-to technological aspect application for the future.  

9. AI-based Therapy Design

The initial steps that we take like extracting the tumor cells from blood and sequencing the DNA as fast as possible; the decision making part of choosing with which treatment to follow up is still complicated. Even the most expert oncologist is not on the level to make a blind call based off of millions of studies and clinical trials for keeping the billion genetic mutations that could happen in a human body. It is why artificial intelligence or AI is the next big thing even in a cure for cancer research and development. The algorithms can not only remember the mutations but program them through to come up with a treatment in minutes.

10. Advanced Sensor Technology

Now coming to how can you can ease the process of measuring your health and updates about your internal body organs. So in many cases, the parameters taken for that can already be a huge aid for cancer reduction for pain. The advanced sensor technology is developed across all boards. You can work by having it embedded, implanted, or even continue by digestible sensors. These sensors can be swallowed to go through your digestive tract and come around the other way by sensing and recording whatever temperature changes it felt.

11. Wearable Technology for Pain Management

Wearable technology is already a huge market domain for fitness and tech enthusiasts alike. It can become a great tool for measure pain, heartbeat, blood, sugar, and chemo levels for patients by just a band around their wrist. Not only will it ease the pain of multiple tests, disruptions, and medicines, but wearable technology will automatically record data and keep it safe for further use and analysis.

12. Pre-existing Technology To Become More Precise

Lastly, cancer has seen many developments been made to its name for numerous to cure it, treat it, or just to provide even a little relief in pain. So the future holds many different opportunities as the technology advances for the already successful ways to become more precise and have a hundred percent guaranteed results.

In Conclusion;

Even if scientists and researchers are unable to find the complete cure for cancer by the end of the year 2020, there is still immense hope and gratification towards newer technology paving ways for the treatment and making it all the easier day after day for the patients who go through the unfortunate disease that is cancer.

Cancer Survivors: Managing Emotions After Cancer Treatment

Since the 1980s, doctors have tried to describe the stages cancer survivors normally go through. Most divide them into a version of the three stages described below:

Acute Survival (Living With Cancer) – Covers cancer diagnosis and any subsequent treatment. During this time, patients will undergo treatment and may be invited to participate in a clinical trial to study new cancer treatments. Sometimes services are offered to patients and their caregivers to address emotional, psychological and financial problems.

Prolonged survival (transient cancer): Post-treatment period during which the risk of recurrence is relatively high. Many patients are relieved that treatment has ended, but are concerned that they will not visit the oncologist regularly. During this stage, patients often visit the oncologist two to four times a year, depending on their circumstances.

Permanent survival (living after cancer): survival after treatment and long-term. Although two out of three survivors declare that their lives have returned to normal, a third affirms that they continue to have physical, psychosocial or economic problems. During this stage, most survivors are cared for again by their GP. Ideally, they have developed a long-term follow-up plan with the oncologist for their regular doctor to implement.

Social and Emotional Repercussions of Cancer

In addition to the physical effects of cancer, survivors experience psychological, emotional, and spiritual consequences. Many of them affect quality of life and can manifest many years after treatment. Here are some of the most common problems cancer survivors face:

Fear of Recurrence

Many survivors live in fear that the cancer will return at some point. In some cases, a major event, such as the anniversary of the diagnosis or the end of treatment with the oncologist, can trigger these feelings. Fear can be good if it encourages you to discuss your health changes with your doctor, but it can also cause unnecessary worry. Knowing your own body will help you distinguish between normal changes and more serious symptoms.

Pain

Grief is the natural result of loss. In cancer, losses refer to health, sexual desire, fertility, and physical independence. To overcome your pain, it is important to experience all of these feelings. Support groups and psychological assistance can help you deal with these problems.

Depression

It is estimated that 70% of cancer survivors experience depression at some point. Depression can be difficult to diagnose in cancer survivors, since the symptoms are very similar to the side effects of cancer treatment, such as weight loss, tiredness, insomnia, and inability to concentrate. In a 10-year follow-up study, symptoms of depression have been found to be associated with shorter survival, so seeking treatment for depression is essential.

Body Image and Self-esteem

Cancer survivors who have suffered amputations, disfigurements, and loss of organs such as the colon or bladder often have to overcome their problems to relate to themselves and to others. A negative body image and low self-esteem can affect the survivor’s ability to maintain relationships with their partner, which will have important consequences on their quality of life. Good communication is essential to maintain or regain intimacy after cancer. Consult a doctor if problems persist.

Spirituality

Many survivors feel that life takes on new meaning after cancer and renew their commitment to certain spiritual practices or organized religion. Research indicates that spirituality improves quality of life through a strong social support network.

Survivor’s Fault

Some people feel guilty about surviving cancer when others don’t. You may be wondering “Why me?” Or reevaluate your goals and ambitions in life. If you have a prolonged feeling of guilt, a psychotherapist, a member of the clergy, or a support group can help you express your feelings.

Relations

Possibly the biggest challenge cancer survivors face is how others react to their disease. Friends, coworkers, and family members may feel uncomfortable when discussing the diagnosis of cancer. They can keep silent, avoid you, or pretend that nothing has happened. Others may use humor to try to distract you and not think about your situation, instead of offering to talk about your problems. Cancer can be a long-lasting disease, so it is essential to overcome communication barriers.

Social and Work Life

Social and professional reintegration can be accompanied by many fears: concern about being exposed to a higher risk of infection, lack of enough energy to reach the end of the workday and anxiety about not being able to think clearly due to the so-called “neurological impairment by chemotherapy “or memory loss. In overcoming a life and death situation, many cancer survivors feel alienated from people who have not had the same experience and turn to other survivors for support and friendship.

You may be reluctant to reveal to your bosses and colleagues that you are receiving cancer treatment for fear of being treated differently or even losing your job and health insurance. This creates an atmosphere of uncertainty that contributes to emotional stress. Again, honest communication with your colleagues will help you overcome these feelings.


About the author: Diane H. Wong is copywriter at write essay for me service. She is also a professional nutritionist and plans to start her own blog to share her knowledge with others.

The Value of Patient Communities

When I was diagnosed with cancer, I thought “This is all on me. I’m going to get through this on my own.” I didn’t want to burden anyone with my new “problem.” I had my family, of course, but even then, I didn’t wear them down with upcoming medical bills. In my mind cancer equaled a solo journey.

It wasn’t until late into my journey as a cancer patient that I found that I needed others. I needed a community of people like me who were going through the same thing I was. A group of people that I could call a “second family.” Searching for “thyroid cancer groups” on Google led me to Thyca, Inc., an organization specifically for thyroid cancer patients. They offer face-to-face support groups in my area, which I still try to attend.  In these groups, we’re able to freely share what we’re going through as a cancer patient and provide support to one another. Additionally, I found a group on Facebook that was specific for my type of thyroid cancer which provided even greater benefit, as we know that all cancers are different. In this group, we also share our experiences, but in a virtual format. In this way, more patients are able to come together to create a larger network of people with whom to connect and learn from.

Finding these online and in-person support groups provided me an outlet for which I could share my ups and downs and often find them reciprocated. Additionally, I learned information about what to look for in and how to communicate with an endocrinologist, a special type of physician for thyroid cancer patients. I learned about the different blood work levels to monitor in a language that made sense to me and not the scientific jargon I usually heard from my doctor. Most importantly, I found people who “get me.”

However, I was hesitant to share everything, even little bits and pieces of what I was going through and what I was feeling. Sharing data online can be scary, especially health data. That’s why it’s important to find websites and organizations that have confidentially and/or privacy policies in place and monitor people’s behavior. Look at what other patients are saying. How revealing are they being? Are they displaying appropriate behaviors (ex. helpful vs malicious)? If you feel uncomfortable, report it!

“Finding your tribe” is something I wish I had done earlier in my journey. I wish my doctors would’ve told me about support groups. As I’ve learned, a chronic illness is not something you go through alone, much less cancer. Having a group, whether it be large or small, face-to-face or virtual, can provide immense benefit for both emotional and mental health.If you’re struggling through your health journey alone and feel like you need someone to talk to or even provide a listening ear, find your community. Find “your” people. A simple Google search helped me, but there are a number of organizations to look out for. Here are some of my favorites I found as a cancer patient:

– Inspire (chronic conditions, including cancers)

Our Odyssey (rare diseases, including cancers)

Facebook groups (general and specific to the type of cancer)

Twitter (find groups using hashtags)

American Cancer Society (search for support groups)

Stupid Cancer (virtual and in-person support groups)

– Cancer Support Community (all cancers)

Cancerfighter.com (all cancers)

Don’t miss the Best Practices for Participating in a Patient Community Empowered #patientchat Friday 4/3 at 1pm ET | 10am PT with Carly!

The Importance of Living in the Moment

The Importance of Living in the Moment from Patient Empowerment Network on Vimeo.

Jeff Bushnell and Summer Golden, MPN Network Managers at the Patient Empowerment Network share the importance of truly living in the moment. Summer shares how Betty Boop, her pink poodle, was diagnosed with lymphoma. Fortunately, Betty was able to pull through, emerging as resilient. Both Jeff and Summer were inspired by Betty Boop, to redefine what it means to live in the moment. They both share how living in the moment has allowed them to cope with Summer’s diagnosis of Myelofibrosis.

What activities keep you living in the moment? Share it with Jeff and Summer! question@powerfulpatients.org

How Long-Distance Communication Benefits Doctors and Patients

Technology has changed medicine as we know it. Not only have surgical and diagnostic procedures been revolutionized in incredible ways, but so has the communication process between doctor and patient.  The days of having to sit in a crowded waiting room to seek advice from a doctor are long over, as remote patient monitoring software is making it easier than ever before for doctors and patients to communicate from afar. Long-distance communication is as beneficial to doctors as it is to patients, especially in times when social isolation is required because of infectious disease or in the case of natural disasters.

Benefits of remote communication

By communicating via a dedicated application, the risk of person-to-person contamination is reduced drastically which I of immense benefit to patients with compromised immune systems.  It also allows patients and doctors to honor appointments regardless of unforeseen circumstances such as out-of-town travels and other obligations. There are a number of quality applications available that boasts superb features such as crystal clear audio and video transmission and even multiple-provider integration.  Apart from enabling patients to get remote medical assistance, these applications also permit medical practitioners to attend to more patients in a day and even keep to irregular working hours with increased ease.

Medici connects providers with patients

Medici is a popular U.S.-based, HIPPA-compliant application that connects doctors and patients through video chat and text. One of the biggest appeals of Medici is that it does not merely function as an online hospital but rather connects patients with their own doctors.  Through the app a doctor is able to diagnose ePrescribe, bill, and eRefer from anywhere in the world. A patient can easily set up a useful network of doctors, therapists, dentists, and even veterinarians and get diagnoses, advice, and prescriptions issued without leaving home. The Medici platform has proven to be especially beneficial during the cold & flu season as well as during periods of extreme weather. The Medici app can be downloaded for free via the Apple App Store or Google Play Store.

MeMD provides online medical consultations

The innovative MeMD application allows patients to connect with physicians, nurses, and physician assistants in order to save time when dealing with minor health concerns ranging from bronchitis and diarrhea to anxiety and eating disorders. The specialists consulting on MeMD can also write prescriptions for medications as permitted by the various state laws. These prescriptions can be collected from the patient’s nearest participating pharmacy. Apart from issuing prescriptions, MeMD also offers subscribers 24/7 service access and real-time video examinations and will readily assist in finding a participating pharmacy nearby. At present, the cost of a MeMD consultation is in the region of $60, and the app is available for download from both the App Store and Google Play Store.

Technology is making long-distance communication between doctors and patients easier than ever before. For the first time ever it is possible to be diagnosed and issued with a prescription without having to leave the house.

Practicing Self-Care in the Time of Coronavirus – How to Mind Your Mental Health and Well-Being During Covid-19

As the coronavirus outbreak continues its relentless spread, the impact of the pandemic is being felt across the globe. We are facing a critical time of fear and uncertainty individually and in our communities.

COVID-19 will affect us all to varying degrees –  physically, emotionally, socially and psychologically.  

You may notice an increase in some of the following feelings:

  • feeling stressed and anxious
  • fearing that normal aches and pains might be the virus
  • excessively checking for symptoms, in yourself, or others
  • becoming irritable more easily
  • feeling insecure or unsettled
  • having trouble sleeping
  • feeling helpless or a lack of control
  • having irrational thoughts

Both The Centers For Disease Control and Prevention (CDC)[1] and  The World Health Organisation (WHO)[2] have responded to the psycho-social impact of coronavirus by releasing  guidelines for those whose mental health is being negatively impacted.

In addition to these guidelines, many patient leaders are providing information and support to their communities through their social media channels.  To quote board certified coach, Nancy Seibel (@NancyLSeibel)  “those of us who have had cancer and other serious health challenges know something about how to self-calm and cope with uncertainty.  We know a lot about life being upended; uncertainty; living with but not in fear. It’s a hard-won gift, one that we can share with others.”  

While this is naturally a worrying time, there are many things we can do to mind our mental health and boost our immunity and well-being at this time. Being proactive about how you handle this crisis can help to keep both your mind and body stronger. I hope you will find the following tips helpful and reassuring as you navigate your way through this time of global crisis. 

10 Ways To Take Care Of Your Mental Health And Wellbeing During Covid-19

1. Recognize  What You Can Control

While many of the things that surround this crisis are outside of your control, you can still focus on those things that are within your control. Hand washing,  staying at home,  limiting unnecessary travel and contact with others are steps we can all take to decrease our personal risk and protect others.   If you’re a cancer patient, currently undergoing treatment, you are in a high-risk group because cancer treatment compromises your immune system[3]. Follow the advice for High Risk Patients outlined on the Centers for Disease Control and Prevention (CDC) website.[4] 

That said, the reality of life as a cancer patient has probably prepared you for this moment better than most.  As breast cancer survivor, Diane Mapes, wrote in a recent Fred Hutch [5] article, “For the immunocompromised and those with disease, social distancing and uncertainty are a way of life.”

2. Focus On  The Facts

In a world of 24/7 rolling news and social media updates, it’s easy to get drawn into speculation and hype.   “It’s ok to be scared,” says breast cancer survivor, Karen Murray (@MurrayKaren),  “but don’t let fear take hold.” Rumors, myths and falsehoods can take on a life of their own if we let them, but as patient advocate, Nancy Stordahl[6] reminds us, “calmness is contagious too.”   

Keeping a realistic perspective of the situation based on facts is important at this time. Avoid media outlets that build hype or dwell on things that can’t be controlled. Stick to respected sources of information on the coronavirus and how to handle it. 

If you’re unsure  about something you’ve  read or heard, check it on the International Fact-Checking Network (IFCN) at the Poynter Institute[7].   If you’re concerned about whether you may have COVID-19,  the Cleveland Clinic[8] has a free screening tool to find out your risk level, based on your symptoms and travel. Additionally,  Intermountain’s COVID-19 Symptom Checker[9] is an easy to use, digital tool to help people get important information about COVID-19, assess their risk, and navigate to the most appropriate care setting.  “These are scary times, for sure,” points out Nancy, “but knowledge is power. Learn what you need to in order to keep you and your loved ones safe.” 

3. Limit Your Exposure To The News

The constant stream of social media updates and news reports about coronavirus could cause you to feel extremely stressed. If the constant drip feed of live news and social media is making you  anxious,  limit your exposure to news outlets.  I’m not suggesting you totally  ignore important news  updates – it’s essential to keep yourself informed. But you can reduce your anxiety by reducing the amount of time you expose yourself to the news.  Limit your media consumption to a certain amount of time each day. According to WHO, minimizing the amount of news you watch can be beneficial in helping people keep calm and positive.  The organization also suggests we “find opportunities to amplify positive and hopeful stories and positive images of local people who have experienced Covid-19.”

4. Practice Good Self-Care 

It’s important to pay attention to your self-care needs, especially during times of stress. Eating a healthy, balanced diet, avoiding excessive alcohol and stimulants, getting plenty of sleep, practising relaxation techniques, such as breathing exercises and meditation, and  taking daily exercise are key ways to stay physically and psychologically  healthy during stressful times.  Oncoplastic breast cancer and reconstructive surgeon,  Dr Tasha Gandamihardja (@DrTashaG) also suggests you “do little things that give you joy e.g. watch  a favorite program or read a favorite book.” 

Don’t put too much pressure on yourself at this time, advises metastatic breast cancer patient, Julia Barnickle (@JuliaBarnickle). “On days when I don’t have the energy to do much, I tell myself ‘just do one thing.’ If I feel like doing more, that’s great, but I never feel guilty about only being able to do one thing. So I choose the one thing that feels most important, whatever it is,” she says.

5. Keep Active

Build regular exercise into your day. There’s an abundance of scientific evidence showing how important fitness is for mental health: so during this very stressful time, it’s even more important.  The closure of gyms at this time doesn’t of course mean you can’t keep fit. Going for a walk or hike (if you  aren’t self-quarantined) watching a workout video online, practicing yoga or walking up and down stairs in your home are all ways to keep active and fit.   Cancer researcher, Emily Drake  (@EK_Drake), has seized on this time as an opportunity to learn to run. “I’ve never been a runner,” she explains, “ but with gyms and yoga studios closed – online just doesn’t work for me –  I need to get out.”

6. Eat To Beat Stress

Registered dietitian,  Cathy Leman[10] recommends you mix and match from these 29 foods each day to boost your body’s stress busting powers.

  • Vitamin C fruits and veggies
  • Green and red peppers, potatoes, oranges, grapefruit, strawberries, tomatoes, kiwi, cauliflower, cabbage, onions
  • Vitamin E foods
  • Dry roasted sunflower seeds, almonds, spinach, safflower oil, wheat germ, green leafy vegetables
  • Polyphenolic foods
  • Chocolate, tea, coffee
  • Complex carbohydrate foods
  • Barley, rye, oats, whole wheat
  • Omega 3 foods
  • Walnuts, ground flax seeds, fatty fish, chia seeds, canola oil

7.  Stick To A Daily Routine

Your daily routine may be affected by the coronavirus outbreak in different ways. But according to WHO, people should try to stick to their daily routines as much as possible.  “Ensure that you create a realistic and helpful daily routine and structure to your day, and stick to it, “ recommends psychotherapist, Karin Sieger.[11] “Have regular times for getting up and going to bed as well as meal times.”

For those of us who are working from home maintaining a routine can be challenging.  The temptation to sit in pajamas all day is real. Try to  stick to a working routine as much as possible – this includes structuring  your day with regular breaks (try working in 45-60 minute chunks of focused work followed by a short break),  minimizing distractions,  stopping for lunch, getting some fresh air, avoiding staying in the same position for prolonged periods  of time and keeping hydrated.  

8. Stay Connected

While “social distancing,” is hypothesized to flatten the curve of the contagion,[12] it’s not without costs. Research shows that social support is vital for our mental and physical health. According to WHO, individuals in isolation are one group that may feel the impact on their mental health the most.  To combat the loneliness of self-isolation, the organization advises people  to “stay connected and maintain your social networks”. 

Maintaining strong connections will help you to feel supported, but since face-to-face in-person support is limited we need to find other ways to connect and receive support. Patient advocate,  Terri Coutee (@6state)  recommends  utilizing online platforms. “Call/text family members often and talk about fun times together,” she suggests.  Social media and social messaging apps are  a boon at this time. Patient advocate, Siobhan Feeney (@BreastDense) says she is “so grateful for my social media friends in many countries as we share the burden of this pandemic.”  In addition,  individuals who are self-isolating can also use QuarantineChat,[13] a new app that aims to connect people who are quarantined and may not have close family or friends to call. [14]

9.  Find Creative Distractions

Doing something creative can help improve your mood when you feel anxious or low. Creative activities can also increase your confidence and make you feel happier. This is because creative hobbies often completely absorb your attention, helping you to temporarily forget negative thoughts.  Carolyn Thomas (@heartsisters) shares this lovely idea for creating together with friends: “my paper-crafting friends and I are having our first ever virtual card-making workshop together via the miracle of video chat…. We each have a number of springtime birthdays coming up among our families and friends, so we’ll be creating springtime-theme birthday cards today.”

Looking for some more creative ideas? From baking to blogging, journaling to jigsaws, Sara Liyanage, author of Ticking Off Breast Cancer, has compiled a bumper list of distractions[15] for you to try.  Also check out PEN’s own Activity Guide here.   Experiment until you find something that suits you.

10. Practice Kindness and Self-Compassion

Nancy Seibel recommends shifting your focus to giving and receiving kindness.  “You’ll be worried, anxious or fearful at times. That’s a natural response to what’s happening, “ she says. “Accept those feelings compassionately. See if there’s anything to learn from them. Then shift your attention. Focus on what you’re grateful for. Walk. Ride your bike. Write. Dance.” She recommends starting with your own self-care, before expanding it out to others. “Calm and center yourself with meditation, deep breathing, knitting – whatever soothes you. Then support others. Spread a contagion of joy, love and kindness! That’s what will get us through this turbulent time.”

This Too Shall Pass

One of the things that is helping me right now is to tell myself that this reality is not forever. Patient advocate, Liza Bernstein[16] reminds us that while  “for now, #COVID19 feels like the entire world’s permanent reality… [but] within that, there are moments, nuances, and joy. There is hope, a delicious piece of chocolate, or a beautiful flower, or a hilarious meme, of if you’re lucky, a dog to play with, a loved one to hug (if you’re in the same home and healthy!)… or whatever floats your boat.”

The spread of coronavirus is a new and challenging event. Most people’s lives will change in some way over a period of days, weeks or months. But in time, it will pass. My wish for you today, especially if you are feeling anxious, alone, or fearful, is that you can find something to hold onto in this moment. To quote psychologist and breast cancer and SCAD survivor, Elizabeth McKenzie[17], “In this moment, as I write this, I have all that I need. I have my breath. I have my mind. I have my family. I have friends. I have shelter. I have clean water and good food. I have the nearby woods in which to walk. Not all moments are like this but right now it is.”


Additional Resources

At Home Self-Care Tips for Parents During a Pandemic

References

[1] CDC. Coronavirus Disease 2019

[2] WHO. Mental Health and Psychosocial Considerations During

COVID-19 Outbreak  In January 2020, The WHO declared the outbreak of a new coronavirus disease to be a Public Health Emergency of International Concern.

[3] Fred Hutch. Coronavirus: what cancer patients need to know

[4] Centers for Disease Control and Prevention. Are You at Higher Risk for Severe Illness?

[5] Fred Hutch. Lessons from cancer patients in the time of coronavirus

[6] Nancy’s Point. What Can Cancer Patients (or anyone) Do to Protect Themselves & Others During the COVID-19 Pandemic?

[7] The #CoronaVirusFacts / #DatosCoronaVirus Alliance unites more than 100 fact-checkers around the world in publishing, sharing and translating facts surrounding the novel coronavirus https://www.poynter.org/coronavirusfactsalliance.

[8] Cleveland Clinic. Find Out Your COVID-19 Risk

[9] Intermountain Healthcare. COVID-19 Symptom Checker.

[10]Dam.Mad. About  Breast Cancer. Eat These 29 Foods to Help You Manage Stress

[11] Karin Sieger. Coping With Difficult Times.

[12] Live Science. Coronavirus: What is ‘flattening the curve,’ and will it work?

[13] https://quarantinechat.com

[14] Quarantine is the separation and restriction of movement of people who have potentially been exposed to a contagious disease to ascertain if they become unwell, so reducing the risk of them infecting others. This differs from isolation, which is the separation of people who have been diagnosed with a contagious disease from people who are not sick; however, the two terms are often used interchangeably, especially in communication with the public. The psychological impact of quarantine and how to reduce it: rapid review of the evidence

[15] Ticking Off Breast Cancer. Ways To Distract Yourself During Self-Isolation.

[16] It’s The Bunk. It’s #Covid19 – Start Where You Are

[17] My Eyes Are Up Here. All I Need

Cyber Hygiene: What Is It and Why Does It Matter? #patientchat Highlights

Last week, we hosted an Empowered #patientchat on “Cyber Hygiene: What Is It and Why Does It Matter?” with Casey Quinlan (@MightyCasey). The #patientchat community came together for an engaging discussion and shared what was their mind.

Top Tweets

Keep Your Online Info Safe


Physical Distancing 


Everything is Connected


Full Chat